vhl alliance

Clinical Care Centers Directory

In addition to existing for at least 2 years as strong CCCs, Comprehensive Clinical Care Centers (CCCCs) have been recognized for additional depth of expertise and experience treating VHL and their dedication to a true team approach for VHL patients. These centers have also made a commitment to educating their local physician communities about VHL. Centers are designated as Adult, Pediatric, or All Ages. Become a CCCC  

PLEASE NOTE: All of the medical facilities listed on this page have VHL CCC teams that have been evaluated and approved by VHL specialists comprising the Clinical Advisory Council. However, not all specialists at these facilities are on the CCC team. As such, you may very well encounter a physician working at an institution with a CCC that does *not* have experience with VHL. (You may also find specialists that have some experience with VHL but are not members of the CCC team that has been evaluated by the Clinical Advisory Council.) The VHL Alliance is *only* endorsing the VHL CCC team and its members. Please make sure to communicate with the CCC’s Point of Contact to verify that you receive care from specialists that have experience caring for VHL patients.

California

Stanford Hospital and Clinics/Stanford University School of Medicine.
Contact: Vee Vo, Clinic Coordinator.
Tel: 650.736.0262; Fax: 650.495.6813
E-mail: veevo@stanfordhealthcare.org
Website
ADULT ONLY

Connecticut

Yale University Hospital.
Contact: Susan Chmael, NP or Donna Lapolt, PCN
Tel: 203.200.4DNA (4362)
E-mail: Susan.Chmael@YNHH.ORG or Donna.Lapolt@YNHH.ORG
Website
ADULT AND PEDIATRIC

Illinois

University of Chicago.
Contact: Sarah Nielsen, MS, CGC, Genetic Counselor.
Tel: 773.702.4749; Fax: 773.834.3834
E-mail: snielsen@medicine.bsd.uchicago.edu
Website
ADULT AND PEDIATRIC

Massachusetts

Massachusetts General Hospital, Boston.
Contact: Gayun Chan-Smutko, MS, CGC.
Tel: 617.726.0292; Fax: 617.726.9418
E-mail: gchansmutko@partners.org
Website

Michigan

University of Michigan Medical Center, Ann Arbor.
Contact: Jenae Osborne, MS, CGC, Genetic Counselor.
Tel: 734.647.0822
E-mail: jenaej@umich.edu
Website

New York

Columbia University Medical Center, New York Presbyterian Hospital, New York City.
Contact: Donna Russo, MS, CGC, Genetic Counselor.
Tel: 212.305.0190; Fax: 212.305.0322
E-mail: russodo@nyp.org
Website
ADULT AND PEDIATRIC

North Carolina

University of North Carolina, Lineberger Cancer Center, Chapel Hill, NC.
Contact: Mary Dunn, NP.
E-mail: mwdunn@med.unc.edu
Website
ADULT AND PEDIATRIC

Ohio

Cleveland Clinic.
Contact: Jessica Marquard, MS, LGC, Genetic Counselor.
Tel: 216.445.6798; Fax: 216.445.6935
E-mail: marquaj2@ccf.org
Website
ADULT AND PEDIATRIC

Pennsylvania

Hospital of the University of Pennsylvania, Philadelphia.
Contact: Kara Welsh.
Tel: 215.662.4740; Fax: 215.614.0298
E-mail: kara.welsh@uphs.upenn.edu
Website
ADULT AND PEDIATRIC

Texas

M.D. Anderson Cancer Center, Houston.
Contact: Ashley Woodson, MS, CGC, Genetic Counselor.
Tel: 713.792.7172
Email: amhenriksen@mdanderson.org
Website
ADULT AND PEDIATRIC

Virginia

University of Virginia, Charlottesville.
Contact: Nancy Staton, RN, and Vicki Aylor.
Tel: 434.243.2757; Fax: 434.243.5634
Email: vhlsurgery@virginia.edu
Website
ADULT AND PEDIATRIC