Membership

Join the VHL Family Alliance online now:

Membership by mail: Click here for printable form and mail to:

VHL Family Alliance
US Non-profit corporation, Tax ID 04-3180414
2001 Beacon St, Suite 208, Boston, MA 02135-7787 USA
Tel:  1-617-277-5667 ; Fax: 1-858-712-8712

What it means to be a Member of VHLFA:

The VHL Family Alliance is YOU.  We are an alliance of families affected by VHL, banded together to learn from one another and support one another through the experience of managing VHL.

We are funded primarily through private donations from individuals and family members.  Your membership and donations are what sustains this service – for you and for others.  We depend on your contributions – sharing information as well as providing funds to pay the phone bill, coordinate the services of our many volunteers, and provide the services we have all come to depend upon. 

Most of our services are provided by a wonderful group of volunteers, both family members and physicians around the globe:

• Clinical care centers in some 30 major hospitals
• Contact persons and chapter chairpersons in 36 states and 20 countries
• Hotline volunteers who answer questions and provide family support
• Volunteer moderators of our online support groups in five languages
• Volunteer translators of our Handbook into eight languages and more coming
• Volunteer board of directors, overseeing all operations

Our small core staff of dedicated people make sure that legal and reporting requirements are met, that our volunteers’ efforts are coordinated and thanked. 

All of us – the volunteers and the staff – work for YOU, for our members.  We invite you to give us feedback – both positive and negative.  That is how we learn, improve, and grow. 

As a member, you have access to all our services: 

• You will receive a member packet containing one copy of all our current publications, including the most recent edition of the VHL Handbook
• You will receive a subscription to our quarterly newsletter, the VHL Family Forum.
• In the 2009-2010 year two new publications will come out.  Paid-up members will automatically receive one copy of each of these publications, and additional copies at the Members discount price.  Non-members will be able to purchase them through us or through Amazon.com.
• Members will also be eligible for special “coupon” prices in our online store.

Please help us sustain the services of the VHLFA and grow the service as you want to see us grow.

Clearly the modest price of membership does not cover our entire budget and does not fund the research grants we award each year.  Over the past 12 years we have awarded more than $1.2 Million in research grants to help find a cure for VHL.  In order to do that, all of us need to work at raising money.  Your help with local fundraising efforts is always appreciated.  See http://vhl.org/help for ideas that you might be able to implement in your own community to raise additional money for research and education.  Help us find others with VHL, help them learn to manage their medical condition, and help the research community find a cure for VHL.

Join the VHL Family Alliance online now:

OR

Download a printable version, click here

Mail to:

VHL Family Alliance
US Non-profit corporation, Tax ID 04-3180414
2001 Beacon St, Suite 208, Boston, MA 02135-7787 USA
Tel:  1-617-277-5667 ; Fax: 1-858-712-8712