Tissue Banking -
Pre-Surgery Information Sheet

To pre-register follow the steps below:

If you wish to donate tissue to VHL it is best to register in advance of surgery. This makes the process simple once you have a scheduled date for surgery. All costs and arrangements for recovery and transfer of tissue will be taken care of by the NDRI Tissue Bank.

How does it work? - A member's story

1. Request a sign-up kit contacting NDRI at 800-222-6374 or email bank@vhl.org. Click here to request your sign-up kit.
   

 

2. The kit will include materials for you to give a urine or saliva sample and/ or supplies to have a blood sample taken by your physician. To indicate the desire to donate for research, you and one witness must sign two copies of the consent form. You or a family member should retain one copy, and the other should be mailed to NDRI. You will also need to fill out and send to NDRI the medical questionnaire. All information will be kept in the strictest confidence.
   

 

3. Return the completed sign-up kit to:

Special Initiatives Coordinator
National Disease Research Interchange
1628 JFK Blvd.
8 Penn Center, Suite 800
Philadelphia , PA 19103
Fax #: 215-557-7154

• Make sure your loved ones, doctors, care givers and attorney are aware of your registration with NDRI. Designate one person as a contact for NDRI.
  
• Keep the NDRI 24 hour number -----800-222-6374----- handy. As soon as you know when you are going to have surgery, call NDRI with the name and contact details of the surgeon and the date of surgery. NDRI will then handle further details of the specific tissue donation. In the event of your death or the death of your loved one, as soon as death occurs or is imminent, your designated contact should get in touch with NDRI.

To register for tissue banking in an emergency . . .

For example if you are having urgent surgery or someone has died and you have not previously registered with NDRI

• Contact NDRI on their 24 hour line as soon as possible at 800-222-6374.
• Click here to access the consent forms.
• Return the consent forms by fax to NDRI

 Thank you for considering donating to the VHL Tissue Bank