Chapter and Patient/Provider Meetings

• Prior Annual Meetings

• Prior Symposia

• Recordings of Prior Meetings

Online discussions are conducted in English, German, Spanish, French, Japanese, and Scandinavian languages.  Click here for instructions on joining a group.

• Reports from previous chat sessions with scheduled speakers:
  • The Emotional Roller-Coaster, with Dr. Gary Wood, a clinical psychologist who has VHL
  • The Family, with Dr. Gary Wood
  • How VHL influences sexual feelings in a relationship, with Dr. Ron DeMayo, sexologist, and Dr. Gary Wood
  • Issues for Adoptees with VHL, with Ann Hughes, a reunited birthmother, author of Soul Connection, a birthmother's healing journey.
  • Getting over Brain Surgery, with Diane Roberts Stoler, author of Coping with Mild Traumatic Brain Injury.
  • Neck and Back Pain, with Deb Hogan, registered physical therapist
  • Pros and Cons of DNA Testing, with Joyce Graff
  • Dealing with Denial, with Dr. Gary Wood, a clinical psychologist who has VHL
  • Open Chat with Maria, Gale, and Joyce: pain, anti-depressants, preventive screening, DNA testing, "fuzzy" answers, mosaicism
  • Walking out of Worry, with Deb Hogan, Massachusetts

Reports on Prior VHL Meetings (also see Symposia below)

• Report from the Houston meeting, 2011 - see recordings
• Report from the St Louis meeting, 2010 - see also recordings
• Report from the Anaheim meeting, 2009 - also see recordings
• Report from the South Africa meeting, 2008
• Report from the Orlando meeting, 2008 - see recordings
• Report from the Boston meeting, 2007 - also see recordings
• Report from the Houston meeting, 2007 - see recordings
• Report from the Manchester, England meeting, 2006
• Report from the Salt Lake City meeting, 2006
• Report from the Kochi, Japan meeting, 2004
• Report from the Nashville regional meeting, 2003
• Report from the Cleveland Conference, 2002
• Report from the Padua Symposium, 2002
• Report from the Palo Alto Conference, 2001
• Report from the Minnesota Symposium, 2000
  • Consensus Report from the Symposium
• Report from the Atlanta Conference, 1999
• Report from the Paris Symposium, September 1998
• Report from the Seattle Conference, 1998
• Report from the Dutch Symposium on MEN and VHL, 1997
  • Using Pre-implantation Genetic Testing, Opinions from the MEN/VHL Conference
• Report from the Bethesda Conference, 1997
• Report from the 2nd International VHL Symposium, Honolulu, June 17-21, 1996
• Report from the Boston Conference, 1995
• Report from the 1st International VHL Symposium, Freiburg, Germany, May 1994
• Report from the Kansas City Conference, 1994

Index to Symposia, with reports and abstracts of presentations:

• 2012 Houston, Texas
• 2010 Budapest, Hungary
• 2010 Rio de Janeiro, Brazil
• 2008 Roskilde, Denmark
• 2006 London, Ontario, Canada - Univ of Western Ontario and the Robarts Research Institute
• 2004 Kochi, Japan - Kochi Medical School
• 2002 Padua, Italy - University of Padua
• 2000 Rochester, Minnesota - Mayo Clinic
• 1998 Paris, France - Necker Hospital
• 1996 Honolulu, Hawaii - University of Hawaii
• 1994 Freiburg, Germany - Albert Ludwings University

Meeting Recordings

• 2011 Houston Annual Meeting
• 2010 St. Louis Annual Meeting
• 2009 Anaheim Annual Meeting
• 2008 Orlando Annual Meeting
• 2007 Boston Annual Meeting
• 2007 Houston Conference

[Last edited 15-May-2012 ]