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Be an Active Members of your Child’s-- or your own -- Health
Care Team
Adapted from a Patient Fact Sheet. AHRQ Publication No. 02-P034,
September 2002. Agency for Healthcare Research and Quality, Rockville,
MD. www.ahrq.gov. Click here
to print or download the pdf
file.
Medical errors are one of the leading causes of death and injury. Rates
of medication errors and adverse drug events for hospitalized children
were comparable to rates for hospitalized adults in a 2001 study in the
Journal of the American Medical Association. However, the rate for potential
adverse drug events was three times higher in children, and substantially
higher still for babies in neonatal intensive care units. Studies of medical
errors outside the hospital are just getting underway.
This fact sheet is intended to help parents help their children avoid
medical errors. It is good advice for any patient and their partner or
advocate.
What are Medical Errors?
Medical errors happen when something that was planned as a part of medical
care doesn’t work out, or when the wrong plan was used in the first
place. A 1999 report by the Institute of Medicine estimates that as many
as 44,000 to 98,000 people die in U.S. hospitals each year as the result
of medical errors.
Medical errors can occur anywhere in the health care system: Hospitals,
Clinics, Outpatient Surgery Centers, Doctors’ Offices, Pharmacies,
and Patients’ Homes.
Errors can involve Medicines, Surgery, Diagnosis, Equipment, and Lab
Reports.
Most errors result from problems created by today’s complex health
care system. But errors also happen when doctors and their patients have
problems communicating. For example, a study supported by the Agency for
Healthcare Research and Quality (AHRQ) found that doctors often do not
do enough to help their patients make informed decisions. Uninvolved and
uninformed patients are less likely to accept the doctor’s choice
of treatment and less likely to do what they need to do to make the treatment
work.
What Can You Do?
Be Involved in Your Child’s Health Care
1. The single most important way you can help to prevent errors is to
be an active member of your child’s health care team. That means
taking part in every decision about your child’s health care. Research
shows that parents who are more involved with their child’s care
tend to get better results. Some specific tips, based on the latest scientific
evidence about what works best, follow.
Medicines
2. Make sure that all of your child’s doctors know about everything
your child is taking and his or her weight. This includes prescription
and over-the-counter medicines, and dietary supplements such as vitamins
and herbs.
At least once a year, bring all of your child’s medicines and
supplements with you to the doctor. “Brown bagging” your child’s
medicines can help you and your doctor talk about them and find out if
there are any problems. Knowing your child’s medication history
and weight can help your doctor keep your child’s records up to
date, which can help your child get better quality care.
3. Make sure your child’s doctor knows about any allergies and
how your child reacts to medicines. This can help you avoid getting a
medicine that can harm your child.
4. When your child’s doctor writes you a prescription, make sure
you can read it. If you can’t read the doctor’s handwriting,
your pharmacist might not be able to either. Ask the doctor to use block
letters to print the name of the drug.
5. When you pick up your child’s medicine from the pharmacy, ask:
Is this the medicine that my child’s doctor prescribed? A study
by the Massachusetts College of Pharmacy and Allied Health Sciences found
that 88 percent of medicine errors involved the wrong drug or the wrong
dose.
6. Ask for information about your child’s medicines in terms you
can understand--both when the medicines are prescribed and when you receive
them at the hospital or pharmacy.
What is the name of the medicine?
What is the medicine for?
Is the dose of this medicine appropriate for my child based on his
or her weight?
How often is my child supposed to take it, and for how long?
What side effects are likely? What do I do if they occur?
Is this medicine safe for my child to take with other medicines or
dietary supplements?
What food, drink, or activities should my child avoid while taking
this medicine?
Is the dose of this medicine appropriate for my child based on his
or her weight?
When should I see an improvement?
7. If you have any questions about the directions on your child’s
medicine labels, ask. Medicine labels can be hard to understand. For example,
ask if “four doses daily” means taking a dose every 6 hours
around the clock or just during regular waking hours.
8. Ask your pharmacist for the best device to measure your child’s
liquid medicine. Also, ask questions if you’re not sure how to use
the device. Research shows that many people do not understand the right
way to measure liquid medicines. For example, many use household teaspoons,
which often do not hold a true teaspoon of liquid. Special devices, like
marked oral syringes, help people to measure the right dose. Being told
how to use the devices helps even more.
9. Ask for written information about the side effects your child’s
medicine could cause.
If you know what might happen, you will be better prepared if it does--or,
if something unexpected happens instead. That way, you can report the
problem right away and get help before it gets worse. A study found that
written information about medicines can help people recognize problem
side effects. If your child experiences side effects, alert the doctor
and pharmacist right away.
Hospital Stays
10. If you have a choice, choose a hospital at which many children have
the procedure or surgery your child needs. Research shows that patients
tend to have better results when they are treated in hospitals that have
a great deal of experience with their condition. Find out how many of
the procedures have been performed at the hospital. While your child is
in the hospital, make sure he or she is always wearing an identification
bracelet.
11. If your child is in the hospital, ask all health care workers who
have direct contact with your child whether they have washed their hands.
Handwashing is an important way to prevent the spread of infections
in hospitals. Yet, it is not done regularly or thoroughly enough. A study
found that when patients checked whether health care workers washed their
hands, the workers washed their hands more often and used more soap.
12. When your child is being discharged from the hospital, ask his or
her doctor to explain the treatment plan you will use at home.
This includes learning about your child’s medicines and finding
out when he or she can get back to regular activities. Research shows
that at discharge time, doctors think people understand more than they
really do about what they should or should not do when they return home.
Surgery
13. If your child is having surgery, make sure that you, your child’s
doctor, and the surgeon all agree and are clear on exactly what will be
done.
Doing surgery at the wrong site (for example, operating on the left
knee instead of the right) is rare--but even once is too often. The good
news is that wrong-site surgery is 100 percent preventable. The American
Academy of Orthopaedic Surgeons urges its members to sign their initials
directly on the site to be operated on before the surgery.
Other Steps You Can Take
14. Speak up if you have questions or concerns. You have a right to
question anyone who is involved with your child’s care.
15. Make sure that you know who (such as your child’s pediatrician)
is in charge of his or her care.
This is especially important if your child has many health problems
or is in a hospital.
16. Make sure that all health professionals involved in your child’s
care have important health information about him or her.
Do not assume that everyone knows everything they need to. Don’t
be afraid to speak up.
17. Ask a family member or friend to be there with you and to be your
advocate. Choose someone who can help get things done and speak up for
you if you can’t.
18. Ask why each test or procedure is being done. It is a good idea
to find out why a test or treatment is needed and how it can help. Your
child could be better off without it.
19. If your child has a test, ask when the results will be available.
If you don’t hear from the doctor or the lab, call to ask about
the test results.
20. Learn about your child’s condition and treatments by asking
the doctor and nurse and by using other reliable sources.
Ask your child’s doctor if his or her treatment is based on the
latest scientific evidence. For example, treatment recommendations based
on the latest scientific evidence are available from the National
Guideline Clearinghouse™ or other Web sites such as healthfinder®
at http://www.healthfinder.gov.
As printed in the VHL Family Forum 13:1, April
2005. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.