Editor’s Note: In 2004, a family in California lost a brother to a massive stroke. Even
though he lay brain dead, they wanted to help him make the ultimate gift
of life to others. They helped arrange the donation of all his organs,
designating one of his kidneys for someone with VHL. We polled our membership
through the online distribution lists, and within hours we had four candidates.
Through the Designated Donor program of the United Network for Organ Sharing
(UNOS), the kidney was sent to New York state, and was successfully transplanted
into a gentleman with VHL who had spent five years on dialysis.
Living donors give the best chance for someone who needs
a kidney, serving the recipient as much as 30 years. The following story
tells of one woman’s decision to be a living kidney donor for someone
she had never met.
Two women lay waiting in adjacent operating rooms in St. John Hospital
in Detroit on Dec. 4, 2002. Neither knew the other. They had nothing in
common.
One was 55 years old, the other 43.
One is white and lives in Howell, Michigan, the other African-American
and lives in Southfield.
One is Roman Catholic, the other Pentecostal.
For two years, the first woman – Suzanne Fales, a parishioner at
St. Augustine in Deerfield Township – had been thinking, praying,
preparing for the moment she would donate a kidney to someone who needed
one. It felt good and right to her, and was something she wanted to do.
The second woman, Grace Drake, had had eight rough years prior to the
surgery. “My daily life was subdued,” she said. “I had
lupus and hypertension; then my kidneys started failing. I had a decreased
appetite; my diet and fluid intake were restricted because my kidneys
couldn’t filter correctly; I couldn’t work because I was so
drained from having dialysis treatments three times a week.”
Chris, her husband, was struggling, too. Concern for Grace’s health
was taking its toll. He was constantly wondering if someone who was the
right match would be willing to donate. He and Grace’s brother had
been tested but were not compatible donors. “It was trying my faith,”
he says. “I needed to learn to be a supporter, an encourager, a
motivator.”
Grace quoted Romans 8:28 to herself often: “For all things work
together for good for those who love God and are called according to his
purposes.” Three weeks before Christmas 2002, that verse was fulfilled
for Grace. In Howell, Suzanne was eager to go ahead, but wanted the go-ahead
from her family. Looking back, Suzanne’s husband, Tom, says the
whole thing “hit me by surprise. I didn’t even want to talk
about it.” However, Suzanne’s unwavering attitude and a lot
of reading about the transplant process broke down his reserve and, after
a year, he became a supporter.
With Suzanne’s mother, it just took some salesmanship to overcome
her immediate “No.”
“But, Mother, you are the one who taught me about sacrifice,”
Suzanne said to her. “And you know that if you could do it, you
would be the first one in line.” Her mother was trapped, and after
a silence, the only thing she said was, “Make sure you drink a lot
of water.”
Suzanne’s daughter, Michelle, responded immediately, “Go
for it.”
That left Catelyn, Suzanne’s granddaughter, who was 8 at the time.
For Tom and Suzanne, she had to give the final OK. After the situation
was explained to Catelyn, she agreed. “And if my brother or mother
need a kidney some day, I will give them one of mine,” she added.
“We received her response like a message from God sent through
an angel, a selfless angel,” Suzanne said.
Throughout the preparation time, Suzanne said fear and emotion were not
the most difficult things to cope with. “It was all the tests –
the EKGs, blood tests, psychiatric work-up. And along the way, the medical
people kept giving me every opportunity to back out, like I didn’t
know what I was doing. I guess they wanted to be certain that I was serious.”
At one point, shortly before the surgery, Suzanne did begin to fear going
under the knife. [But prayer renewed her courage.] Her excitement and
commitment returned.
During a three-hour laparoscopic surgery by Dr. Abdelkader Hawasli, Suzanne’s
kidney was removed. It was then placed into Grace by Dr. Henry Oh, chief
transplant surgeon at St. John’s, during a slightly longer surgery.
Dr. Oh said it was major, but not dangerous. “Anyone can undergo
it with minimal discomfort,” he said.
He noted later that, “We had screened two dozen potential donors
who had the right physical match, but Suzanne seemed the best as far as
overall willingness and psychological makeup.” He pointed out that
the rigid screening and testing beforehand is essential because there
are some people who donate organs for ulterior motives – like a
lonely person looking for attention, or someone who might do it in order
to get money from the recipient afterward. “Suzanne deserves applause
for what she did – giving the ultimate gift of life, part of her
body to someone else,” Dr. Oh said. “She carried out what
the Bible teaches.”
As a result, Grace not only had a new kidney, but she and her family
would soon have a new life.
Not everyone is so fortunate. According to the Gift of Life Michigan,
a non-profit full-service organ and tissue recovery agency in Ann Arbor,
there are 2,075 persons in the state waiting for a kidney transplant.
Last year, 663 of them received a transplant. One hundred fifty died while
waiting.
Suzanne worked for Gift of Life as a coordination specialist
until recently, and still speaks for them at some functions. Within a
week of the operation, Suzanne was driving a car. She was back to work
in four weeks. “God has given me incredible health all of my life,”
she said, “and within six weeks I was feeling as good as ever. When
I look at all that Grace had gone through compared to me, I consider her
a hero. I am grateful that God showed me one of the major purposes of
my life – why I am here – to donate a kidney.”
The second woman? Her life was totally transformed. Today, Grace states
that she is 100 percent better. “I have much more energy, eat whatever
I want, the hypertension is gone, the lupus in remission. I am grateful
to God, and have an increased faith in him.” Her career, not surprisingly,
is taking a new path. A registered nurse, she now intends to focus on
working with kidney patients. “My heart bleeds for them,”
she says. “Though I’m not sure exactly what yet, there is
a work for me to do.” Even her attitude has changed. “I see
how precious life is, and I have more compassion and tolerance for others.”
Fifteen days after the transplant, at Grace’s request, she was
able to meet Suzanne. Suzanne had never intended to learn who the recipient
was because it was “a personal, private thing for me.” But
her husband and others convinced her that meeting Grace could lead to
some positive publicity for organ transplants, and be an opportunity to
educate the public and reduce fears about the procedure. This was especially
true since Grace’s transplant was the first one in Michigan by a
live donor to someone who was not a friend or relative.
The two of them hit it off immediately. Grace calls Suzanne her angelic
hero. “I love her. Her priceless, selfless act of mercy gave me
a second chance at life,” she says.
Tom Fales, who has been married to Suzanne for 25 years, says, “She
is a saint in my mind. She answered the age-old question of why God gave
us two kidneys. She is the most selfless person I have ever met. I admire
and respect her for what she did. I wish I could be more like her.”
Note 1: Adapted
from FaithMag.com, the magazine of the Catholic Diocese of Lansing,
Michigan, 24 October 2005. Reprinted with permission.
As printed in the VHL Family Forum 13:4, December
2005. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.