Newsletter 2005

April - September - Annual Report - December

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VHL Family Forum, ISSN 1066-4130 Volume 13, Number 1
April  2005     Download a printable copy of this issue

• Survey! Please share your experiences (if any) with stereotactic radiosurgery. Results will be reported in the August 2005 issue.
• 20 Tips to Help Prevent Medical Errors
• Top 40 Under 40: Scott C., New Jersey
• Recycle for VHL!
• Hello to the VHLFA Family! by Sharon H., Michigan
• How the Weather Affects your Life, by Lucas J. Mire, the Weather Channel
• Ask the Family: Brain Tumor Size
• Green Tea -- Best As a Beverage
• Smoking and Kidney Cancer Risk, by Jay D. Hunt
• Book Review: Brain Tumors: Leaving the Garden of Eden, by Paul M. Zeltzer, M.D.
• Finding a Neurosurgeon
• Pancreas Study Open at the U.S. National Cancer Institute
• Meetings:
  • San Antonio, Texas, May 21, 2005
  • Binghamton, New York, June 4, 2005
  • VHLFA Annual Meeting, Chicago, June 25, 2005
• Handbook in Spanish, French, and Chinese!
• Going for the Gold! Meet the Janus Challenge!
• Gifts of the Artists - For a gift of $150 or more, you can choose one of these wonderful performances as your free gift. Help us meet the Janus Challenge!

VHL Family Forum, ISSN 1066-4130 Volume 13, Number 2, August/September  2005
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• Stereotactic Radiosurgery or Gamma Knife
  • reporting the results of the survey opened in April 2005
• Ask the Family: Affected Children
• Cancer Survivors Gather for Support, Kathy S., Wisconsin
  • Is VHL Cancer?
• Radiation Causes Cancer, But Rarely
• Resources: Grants to Individuals with disabilities
• New Chairman for Kansas and Missouri, Barbara S., Kansas
• Brooke McLaurin: Miss North Carolina 2005
• Another Great Birthday! Alex A., New Jersey
• Gokey-Thomas Can't Stop Smiling about "Amazing" Day, by Scott Kindberg, Post-Journal, Jamestown, New York
• One Biomarker for Angiogenesis - reporting research of John Heymach, Dana Farber
• Resources: Project Mobility
• VHL in England, by Mary Weetman and Carol Giblin
• VHL Handbook in Arabic! thanks to Dr. Decker and Bioscientia
• Fundraising ideas:
  • Free Krispy Kreme donut and coffee for Mom - expires 31 Aug 05
  • Personal fundraising pages
  • Donate car, truck, or recreational vehicle for benefit of VHL
  • Wristbands for a cure
  • Recycle inkjet cartridges, cell phones and more
  • Buy and sell on eBay to benefit VHLFA
  • and more ideas at vhl.org/help
• Meetings:
  • San Francisco, California, October 1, 2005
  • Bethesda, Maryland, October 23, 2005
  • Little Rock, Arkansas, November 19, 2005
  • Symposium: Toronto, Canada, May 19-21, 2006
  • Annual Meeting: Salt Lake City, Utah, June 24, 2006
• Gifts of the Artists - For a gift of $150 or more, you can choose one of these wonderful performances as your free gift. Help us meet the Janus Challenge!

VHL Family Forum, ISSN 1066-4130 Volume 13, Number 3
Annual Report  2005
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• It's in the Genes ... of some Pretty Terrific People
• Four New Grants awarded -- meet the researchers you are supporting 2005-2006
• On the Line ... When You Call -- meet your hotline team
• Challenge! Your Gift Goes Farther with matching grants from the Greene and Lusk families.
• Remember VHLFA in your Will
• Gifts of the Artists - For a gift of $150 or more, you can choose one of these wonderful performances as your free gift.

VHL Family Forum, ISSN 1066-4130 Volume 13, Number 4,
December  2005
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• Learning about Pheochromocytomas - Report of the First International Symposium on Pheochromocytoma, Bethesda, Maryland, October 20-23, 2005
• Pheos and Children, by Alison E., Texas
• Camron and Brayden, raising money for VHL
• A Patient's Perspective, by Altheada Johnson, Brooklyn, New York
• "Just Sayin'", by Keith "Just Sayin'" Richards, Brooklyn, New York
• Wear Your Wristbands Proudly!
• A Gift of Love, by Bob Horning - a kidney transplant story
• Religious opinions about Transplantation
• Annual Meeting - Salt Lake City, Utah, Saturday, June 24, 2006
• Call for Papers - Seventh Biennial Medical Symposium on VHL
  October 26-28, 2006, London, Ontario, Canada