Newsletter 2007

January - May - September - Annual Report

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VHL Family Forum, Volume 15, Number 1

January/February 2007 Download a printable copy of this issue

• A Great Victory: Real Hope for Patients - Dr. Stéphane Richard honored for his work on VHL
  • About the event
  • About the prize
• Overcoming Life’s Disappointments, an excerpt from a new book by Harold Kushner
• Partners in Hope - Tissue spurs Research
  • It's Easy for You, and it's Gold for us all
  • Enrolling as a Researcher to Obtain Tissue
• A Fast Horse, by Renée S., Ontario, Canada
• Hats Off to Audrey, Dawn, and Lois
• Dancing for VHL, by Cari E., Ohio
• Joyce's Leadership Displayed, by Alex Lewis
• Traveling for Treatment:
  • Mercy Airlift
  • Hospital Hospitality Houses
• Clinical Trial of Sunitinib at M.D. Anderson in Houston
• One-Stop Screening - a new study by Sally Watts, London, UK
• New Online Discussion - vhl.clinicahealth.com
• Influenza Vaccination for Caregivers
• How Can You Help?
• Become Part of the Team!

VHL Family Forum, Volume 15, Number 2

May 2007 Download a printable copy of this issue

• More Awareness - More Progress! - VHL hits the press
• We Need Your Vote! Five new candidates for the Board of Directors
• VHL in the Mainstream! President Bush learns about VHL
• The Legendary McCoys and their pheochromocytomas
• Mom Lives with Rare Genetic Condition - by Vikki Hopes, Abbotsford News, Ontario
• VHLFA Research Database - We Need Your Help!
• Nephrogenic Systemic Fibrosis: an uncommon side effect of MRI contrast agents in patients with impaired renal function, by Peter Choyke, M.D.
• The 2007 Annual Meeting in Boston - a 2-day meeting!
• Don't forget to vote!

VHL Family Forum, Volume 15, Number 3

September  2007     Download a printable copy of this issue 

• Improving our Understanding of Pancreatic Tumors by Steven K. Libutti, U.S. National Cancer Institute
• Report from the Boston meeting, June 2007, includings radiology, radio frequency ablation, and how we can improve diagnosis of pheochromocytomas.
• Online Learning - Hear the Boston presentations!
• Radio Show for VHL???
• Joyce invited to speak at two conferences in Japan
• VHL in South Africa
• Remember the Tissue Bank!
• New Clinical Care Center in New York City: Memorial Sloan Kettering Cancer Center, under the direction of Dr. Jonathan Coleman, Urology
• Join the Conversation! ClinicaHealth.com What would you like to say to Dig?
• Our Ambassadors - Chloe and Caleb E., Texas
• Cure Steven! Cure VHL! Eat Pancakes! by Beverly A., Florida
• Meeting Planning Survey
• Regional Meetings
  • Birmingham, October 13, 2007
  • Sandusky (near Cleveland), October 20, 2007
  • Houston, November 17, 2007
  • Free Teleconference meetings
• How Can You Help?
  • Workplace Charity Campaigns - CFC, United Way, and more
• Get Sox for your School Books!
• Getting Married?

VHL Family Forum, Volume 15, Number 4

Annual Report Issue
November  2007     Download a printable copy of this issue

• Hope - Strength - Community. One family tells how VHLFA helps them in their struggle with VHL
• Researchers you are funding - Teh, Pause, and Bellgrau
• VHLFA Annual Report - How the money is allocated
• Family Album - Honoring Volunteers
• Challenge Grants! Your donation goes even farther.
• Remember VHLFA in your will
• Gifts of the Artists - a bonus for your gift of $150 or more