The New England Journal of Medicine published in its July 24, 2008, issue a "Perspective" on GINA entitled "The Genetic Information Nondiscrimination Act — A Half-Step toward Risk Sharing" by Russell Korobkin, J.D., and Rahul Rajkumar, M.D., J.D. This is a very good explanation of what GINA does and does not do.

Click here to read the full text of this article

Accompanying this article on their website is a video interview with Dr. Francis Collins, recently retired head of the Human Genome Research Institute at the National Institutes of Health. Dr. Collins shares what he feels are the strengths of GINA, and outlines some of the work yet to be done to protect people from being discriminated against on the basis of their genes.

Click here to view the video interview with Dr. Collins

As printed in the VHL Family Forum 16:3, September 2008. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org.