Skip the Top Navigation                   BASIC FACTS
                  ABOUT VHL
        CARING FOR
        YOUR HEALTH
         RESEARCH
        
        PROFESSIONAL
        INFORMATION
       ABOUT VHL
       FAMILY ALLIANCE
Skip The Left Navigation

Home

 

Site Search

 

Current Issue

 

Printable Copies

 

Contact Us

 

Click to Donate

 

2008 Issues

 

2007 Issues

 

2006 Issues

 

2005 Issues

 

2004 Issues

 

2003 Issues

 

2002 Issues

 

2001 Issues

 

2000 Issues

 

1999 Issues

 

1998 Issues

 

1997 Issues

 

1996 Issues

 

1995 Issues

 

1994 Issues

 

1993 Issues

 

 

VHL Radio Show

 

September 2008

Powerful Patient tops 30,000 users a week!

 

The Powerful Patient radio show produced by the VHL Family Alliance is now being heard by more than 30,000 listeners each week.


That’s thirty thousand people each week who are hearing about VHL, learning some of the skills we have learned in dealing with a complex medical condition, and gaining an appreciation for the breadth of topics you have to deal with in managing your health.

 

When is it on?

PowerfulPatient is available on-demand on the internet whenever you want it to be on.  Just go to PowerfulPatient.org and select the program you want to hear.


It does run on “terrestrial radio” periodically.  The schedule is on the network website,
http://www.webtalkradio.net  You can help by suggesting to your favorite station that it carry the Powerful Patient.

 

Why does it talk about more than VHL?

When we select a guest, we always ask: What can we learn that would be helpful to people with VHL?  What can those of us with VHL teach others?  In speaking to a broader audience, it is also serving a role in public awareness of VHL.
What topics are covered?


Here are just a few of the topics that have recently appeared:

 -  Nutrition to keep that second copy of the VHL gene strong so it can naturally suppress tumors


 -  The importance of sleep in supporting the body’s own natural defenses


 -  Two people living with cancer (one with VHL) talk about how they are managing their risks


 -  A discussion of the importance of the health of both parents in making good copies of their DNA when having a baby.  Dr. Jeanne Wilson adds her expertise from Chinese medicine in partnership with a number of fertility clinics in California.


 -  Important insights on the mistakes that can happen in hospitals, the steps that hospitals are taking to reduce errors, and how we as patients can help to safeguard our own patient safety.

 

 -  The booming new industry of Medical Tourism.  In 2007, 750,000 Americans went outside the U.S. for medical treatment.  That number is expected to reach 1.5 million by the end of 2008, and 4.5 million by 2010.  We speak with one U.S. health care provider network that is offering its members the option of surgery in New Zealand with no co-pay.

Please join us!

Go to http://powerfulpatient.org

 

As printed in the VHL Family Forum 16:3, September 2008. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org.