NEWSLETTER 2009

January - May - October - Annual Report

VHL Family Forum, Volume 17, Number 1

January 2009 Download a printable copy of this issue

• DNA Reimbursement Program Extended
• Tissue Available for Physicians and Researchers
• Call for Tissue
• Laughing Matters
• Nominations to the Board
• Calm in Stressful Times
• Art from Richard Mickley
• Pancreas and Digestion
• New Media Ways to Participate
• Benefits of Eating Fruit and Vegetables
• New Book by Tom Rath
• Cover the Uninsured Week
• Prize contest
  • Drawing/Photo
  • YouTube
  • T-shirt Design
• International VHL Day
• Rare Disease day
• Reporting 3 Exciting Conferences in Fall 2008
• Calendar

VHL Family Forum, Volume 17, Number 2

May 2009 Download a printable copy of this issue

• To Scan or Not to Scan
• Radiology Examinations - Weighing the Radiation Risk
• Issues in Imaging the Kidney
• Ariel's Story
• Alex's Story
• May is VHL Awareness Month
• Please, Renew your membership - and Vote!
• Kid's Book - NEW!
• Join us in Anaheim!

VHL Family Forum, Volume 17, Number 3

October 2009 Download a printable copy of this issue

• Dealing with Inconclusive DNA Testing
• Stormtroopers Unite
• Report from the Anaheim Meeting
• Remembering Rob Schoenhals
• Three New Clinical Care Centers
• Crab Fest in Maryland
• City Wide Fundraiser
• Beth Smith and friends complete the Powow
• Fixing VHL - Q&A
• Birthday Wishes to YOU!
• Steven’s Journey
• Honoring Gale Lugo
• New Affiliate in Argentina
• Remembering Pierre Jacomet
• Don't forget...
• Vote for VHLFA!

VHL Family Forum, Volume 17, Number 4

Annual Report 2009 Download a printable copy of this issue

• The Changing face of VHL
• Clinical Care Centers - Providing Coordinated Care
• Report for Fiscal 2009 (ended June 30, 2009)
• Holiday Gifts
• Challenge - Your Gift Goes Farther!
• Research efforts you are supporting 2008-2009
• Your donation goes Farther
• Remember VHL in Your Will