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Families, Friends, Physicians, & Researchers working together
to improve diagnosis, treatment, & quality of life for people affected by von Hippel-Lindau disease.

Online Issues of the VHL Family Forum

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  File Document Date Lead Article: Click to see full index Help
vhln0804.pdf VHLFF May 2008 Reimbursement for DNA testing!
vhln0801.pdf VHLFF Jan 2008 It's Our 15th Birthday!
vhln0711rr.pdf Annual Report Nov 2007 Hope - Strength - Community
vhln0709.pdf VHLFF Sept 2007 Improving our Understanding of Pancreatic Tumors
vhln0704.pdf VHLFF Apr 2007 More Awareness - More Progress!
vhln0701.pdf VHLFF Jan 2007 A Great Victory: Real Hope for Patients
vhln06ar.pdf Annual Report Nov 2006 These Children Need Your Help -- Let's Find a Cure!
vhln0608.pdf VHLFF Aug/Sep 2006 Tissue Banking Spurs Research
vhln0605.pdf VHLFF Apr/May 2006 Membership Renewal/Derik's Big Heart
vhln0512.pdf VHLFF Dec 2005 Learning about Pheochromocytomas
vhln05ar.pdf Annual Report Nov 2005 It's in the Genes ... of some Pretty Terrific People
vhln0508.pdf VHLFF Aug/Sep 05 Stereotactic Radiation or Gamma Knife
vhln0504.pdf VHLFF Apr 05 20 Tips to Help Prevent Medical Errors
vhln0412.pdf VHLFF Dec 04 Improving Diagnosis of VHL
vhln04ar.pdf Annual Report Nov 04 Stronger Base, Reaching Outward
vhln0408.pdf VHLFF Aug/Sep 04 Endolymphatic Sac Tumors in VHL
vhln0403.pdf VHLFF Mar/Apr 04 Coping with VHL
vhln03ar.pdf Annual Report Nov 2003 100 Years of Progress
vhln0312.pdf VHLFF Dec 2003 Dogs Do More Than Bark
vhln0309.pdf VHLFF Sept 2003 VHL and Oxygen Regulation
vhln0306.pdf VHLFF June 2003 Down's Syndrome May Hold an Important Clue
vhln0303.pdf VHLFF March 2003 Natural History of Hemangioblastomas
vhln0212.pdf VHLFF & Annual Report December 2002 2002 Research Report
vhln0209.pdf VHLFF September 2002 Pheochromocytoma: Often Inherited
vhln0206.pdf VHLFF June 2002 Report from Padua
vhln0203.pdf VHLFF March 2002 Ophthalmic Issues in VHL
vhln01ar.pdf Annual Report September 2001 We Need Your Help!
vhln0112.pdf VHLFF December 2001 Pregnancy and VHL
vhln0109.pdf VHLFF September 2001 A Family's Milestone: Kidney Transplant
vhln0106.pdf VHLFF June 2001 Study of Rare Disease helps unravel key question of human biology
vhln0103.pdf VHLFF March 2001 Test for Genetic Privacy
vhln0012rr.pdf Research Report December 2000 New Hope ... New Drugs
vhln0012.pdf VHLFF December 2000 Q&A about DNA Testing
vhln0009.pdf VHLFF Sept 2000 The Human Genome has been Sequenced: Now What?
vhln0006.pdf VHLFF June 2000 First in the Family: VHL Mosaicism
vhln0003.pdf VHLFF March 2000 Laparoscopic Cryoablation for RCC
vhl9912.pdf VHLFF December 1999 Finding Elusive Pheochromocytomas
vhl9912rr.pdf Research Report December 1999 VHL Care in the New Millennium
vhl9909.pdf VHLFF September 1999 Managing Pancreatic Tumors
vhl9906.pdf VHLFF June 1999 The Structural Biology of VHL
vhl9903.pdf VHLFF March 1999 To Know, or Not to Know . . . That is the Question
vhl9812rr.pdf Research Report December 1998 Pioneers Needed for the New Frontier
vhl9812.pdf VHLFF December 1998 Report from the Paris Symposium
vhl9809.pdf VHLFF September 1998 Retired Marine Fights for Our Lives
vhl9806.pdf VHLFF June 1998 Caution Urged for Stereotactic Radiosurgery
vhl9803.pdf VHLFF March 1998 Childbearing Choices
vhl9712.pdf VHLFF December 1997 Exploring the Faith Factor
not available online Research Report December 1997 A Partnership with Families
vhl9709.pdf VHLFF September 1997 Ocular Manifestations of von Hippel-Lindau (VHL) Disease
vhl9706.pdf VHLFF June 1997 Endolymphatic Sac: Hearing Loss in VHL
not available online VHLFF March 1997 Living with a Brain Tumor
vhl9612.pdf VHLFF December 1996 Know Your Mutation!
not available online VHLFF September 1996 The Future Holds Promise and Problems
vhl9606.pdf VHLFF June 1996 VHLFA Research Database
vhl9603.pdf VHLFF March 1996 Taking a Closer Look at Phytochemicals
vhl9512.pdf VHLFF December 1995 Challenge Grant!
vhl9509.pdf VHLFF September 1995 Caring for your Reproductive Health
vhl9506.pdf VHLFF June 1995 Kidney Study Shows Effectiveness of Conservative Treatment
vhl9503.pdf VHLFF March 1995 New from the Laboratory of Immunobiology
vhl9412.pdf VHLFF December 1994 Breakthrough Research
vhl9409.pdf VHLFF September 1994 Robot Does Brain Surgery
vhl9406.pdf VHLFF June 1994 VHL Clinical Care Centers
vhl9403.pdf VHLFF March 1994 Teamwork for Health
vhl9312.pdf VHLFF December 1993 VHL Disease in France
vhl9309.pdf VHLFF September 1993 The Art of Conscious Living
vhl9306.pdf VHLFF June 1993 VHL Tumor Suppressor Gene Found!
vhl9303.pdf VHLFF March 1993 What is VHL?

 

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