BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//VHL Alliance - ECPv6.17.4.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:http://vhl.org
X-WR-CALDESC:Events for VHL Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Chicago
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20230312T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20231105T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20240310T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20241103T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20250309T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20251102T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260807T170000
DTEND;TZID=America/New_York:20260809T143000
DTSTAMP:20260615T171735Z
CREATED:20260428T145054Z
LAST-MODIFIED:20260615T171735Z
UID:10000144-1786122000-1786285800@vhl.org
SUMMARY:Family Weekend 2026
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n  \nWhen: August 7-9\, 2026 \nWhere: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \nRegistration Link: Click here to secure your spot today! \n  \nWhat to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n  \nWho Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n  \nWhether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL. \n  \nWant to attend but worried about the cost? Travel scholarships are available! We are pleased to offer travel reimbursement scholarships of *up to $500.00\, to be reimbursed on the final day of the event. Click here to apply before June 25th\, 2026. \n  \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! [EARLY BIRD PRICING EXTENDED TO JULY 1ST!] \n*Please note that every attendee must register for a ticket to secure their spot* \n					\n									Register Now!\n					\n															\n															\n																														 \nFamily Weekend is brought to you with support from: 
URL:http://vhl.org/vhla-event/family-weekend-2026/
LOCATION:Kimpton Everly Hotel\, 1800 Argyle Ave\, Los Angeles\, 90028\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/png:http://vhl.org/wp-content/uploads/2026/04/fam-weekend-promo.png
ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240906T170000
DTEND;TZID=America/Chicago:20240908T140000
DTSTAMP:20240829T211256Z
CREATED:20240201T160650Z
LAST-MODIFIED:20240829T211256Z
UID:10000067-1725642000-1725804000@vhl.org
SUMMARY:Family Weekend 2024 | Dallas\, TX
DESCRIPTION:**Please note: You must register with the registration link below in order to attend!**\n  \nJoin us for VHL Alliance Family Weekend hosted at UT Southwestern in Dallas on September 6-8! \n  \nImmerse yourself in a community of strength as we come together to share our VHL experience\, build lasting connections\, and learn directly from VHL experts. \n  \n\nUT Southwestern will serve as the backdrop for a series of engaging events\, informative sessions\, and collaborative activities. Experts in VHL research and treatment will be on hand to provide valuable insights & presentations for the VHL Community. More details on the weekend agenda will be available soon!\nConnect with fellow VHL families\, forming bonds that extend beyond the weekend. Share experiences\, exchange advice\, and connect with a supportive network that understands the VHL experience.\nEngage with expert speakers\, participate in interactive workshops\, and gain a deeper understanding of the latest advancements in VHL research and treatment. This weekend aims to equip you with the tools to navigate the challenges of VHL with confidence.\nBeyond the informative sessions\, indulge in family-friendly activities & entertainment in Dallas. We’ll share more details about additional activities soon!\nSecure your spot today for the VHL Alliance Family Weekend at UT Southwestern for $50 today. \n\n  \nWe have secured a block of rooms at a discounted rate at the Canopy Dallas Uptown. Click here to contact the hotel to secure the discounted rate – Rooms are limited\, so we’d recommend reserving your place soon! \n  \n*Event registration fee waivers are available for those who quality. Email us at info@vhl.org to learn more.  \n**Please note that every person who plans to attend Family Weekend must register individually! \n			\n									Register Now\n					\n													\n														Previous\n														Next
URL:http://vhl.org/vhla-event/family-weekend-2024/
LOCATION:UT Southwestern\, 5201 Harry Hines Blvd\, Dallas\, TX\, 75235\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/02/Family-Weekend-Promo-1-1.jpg
ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240223
DTEND;VALUE=DATE:20240226
DTSTAMP:20231108T215418Z
CREATED:20231108T190219Z
LAST-MODIFIED:20231108T215418Z
UID:10000066-1708646400-1708905599@vhl.org
SUMMARY:Young Adult Retreat 2024 | VHL Alliance
DESCRIPTION:Join us for an empowering and enriching experience at the 2024 Young Adult Retreat! \n  \nDate: February 23-25\, 2024\nTiming: Events will start at 7 pm on Feb 23rd and run through midday on Sunday Feb 25th\nLocation: Embassy Suites Washington DC Chevy Chase Pavilion\n4300 Military Road NW\, Washington\, DC 20015\nAges: 21 – 36 years old\nCost: $75 Registration Fee (Attendees are responsible for their travel expenses to and from D.C.). Fee will increase to $100 on January 5th. \n  \nWhat’s Included: \nYour registration fee of $75 grants you access to a weekend filled with engaging activities\, meaningful discussions\, and a supportive VHL community of other young adults. After you arrive in Washington DC\, your registration fee covers your entire retreat experience\, including comfortable accommodations\, exciting group activities\, and more. Attendees will have the opportunity to connect with peers who understand the challenges of living with VHL disease\, fostering a sense of belonging and mutual understanding. \n  \nWhy Attend: \nThis retreat offers a unique chance to learn\, share\, and grow alongside other young adults living with VHL. Through interactive workshops\, expert-led discussions\, and social events\, attendees will gain valuable insights into managing VHL and grow their VHL community. \n  \nImportant Notes: \n  \nLimited Spots: The event is limited to 30 participants\, and spots will be allocated on a first-come\, first-served basis. Don’t miss your chance to be a part of this enriching experience! \n  \nTravel: Attendees are responsible for their travel costs to and from Washington\, D.C. Please plan your travel arrangements accordingly. \n  \nScholarships: Travel scholarships are available for those who qualify. Click here to apply for a travel scholarship. \n  \nInclusive Environment: Our retreat provides a safe\, inclusive\, and supportive environment for young adults with VHL disease. Whether you’re looking to connect with others\, gain valuable insights\, or simply unwind and have fun\, this retreat is designed with your needs in mind. \n  \nHow to Register: \nTo secure your spot at the 2024 Young Adult Retreat\, please fill out the registration form here! Act fast as space is limited!
URL:http://vhl.org/vhla-event/young-adult-retreat-2024-vhl-alliance/
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/11/Young-Adult-Retreat-Banner-Image.jpg
ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org
END:VEVENT
END:VCALENDAR