Testing for Pheochromocytoma

An international consortium of physicians, The Pheochromocytoma RESearch Support ORganization (PRESSOR), has brought together the largest body of information ever assembled on this topic, and has made it available from their website, www.pressor.org.

If you are looking for a physician who understands pheos, you might want to check the membership list for PRESSOR.

Recommendations are posted at the Information Page

Several key articles available free from the PRESSOR website:

• Pacak K, Eisenhofer G, Ahlman H, Bornstein SR, Gimenez-Roqueplo AP, Grossman AB, Kimura N, Mannelli M, McNicol AM, Tischler AS. "Pheochromocytoma: recommendations for clinical practice from the First International Symposium".Nat Clin Pract Endocrinol Metab. 2007 Feb;3(2):92-102.

• Lenders JW, Willemsen JJ, Eisenhofer G, Ross HA, Pacak K, Timmers HJ, Sweep CG,."Is Supine Rest Necessary before Blood Sampling for Plasma Metanephrines?" Clin Chem. 2007 Feb;53(2):352-4. Epub 2007 Jan 2.

Tissue Banking. PRESSOR asks for tissue banking in their bank. If you have VHL, we would ask that you please deposit any surgically removed tissue in the VHL bank, to consolidate the VHL tissues in one place. Tissue banked in the VHL bank will also be available to researchers working on pheo, but VHL researchers may forget to look in the PRESSOR bank. Many thanks for your help.

As printed in the VHL Family Forum 15:1, January 2007. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org.