This survey is closed and results published. Click here for the report.

Stereotactic radiosurgery (SRS) is the use of finely focused beams of radiation, aimed from many angles toward a target tumor, to disable the tumor and hopefully keep it from growing. SRS is the generic name for this kind of procedure. Many different machines are used to deliver the radiation beams including the Gamma Knife, Linear Acceleteror (Linac), Peacock Conformal Therapy, Cyberknife, Proton Beam, and Shaped-Beam. In this survey we will use the term "SRS" to refer to all forms of stereotactic radiosurgery.

SRS has now been used for more than 15 years on various hemangioblastomas. There are few scientific articles evaluating its effectiveness with this rare kind of tumor, and most of these are single-site reports, which measure the effectiveness of one treatment team more than they measure the effectiveness of the treatment itself.

If you or someone in your family has undergone stereotactic radiosurgery, or has seriously considered it and opted not to go forward, we would appreciate your filling out this survey, to give us an idea of the overall success rate of stereotactic radiosurgery with hemangioblastomas in the real world. Results will be reported in the August 2005 newsletter.

Click here to take the survey

Thank you! There is a comment box for additional comments at the end, or feel free to send additional feedback via e-mail to director@vhl.org

This survey is closed and results published. Click here for the report.

As printed in the VHL Family Forum 13:1, April 2005. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org.