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X-WR-CALDESC:Events for VHL Alliance
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260406T200000
DTEND;TZID=America/New_York:20260406T210000
DTSTAMP:20260416T232140
CREATED:20260108T162806Z
LAST-MODIFIED:20260108T162806Z
UID:10000130-1775505600-1775509200@vhl.org
SUMMARY:April 6th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nBuilding Sustainable Routines\nTips and strategies for structuring routines that conserve energy\, reduce stress\, and making room for meaningful activities without overexertion. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/april-6-patient-caregiver-call-2/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2026/01/April-6-2026-Building-Sustainable-Routines.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260302T200000
DTEND;TZID=America/New_York:20260302T210000
DTSTAMP:20260416T232140
CREATED:20260108T162704Z
LAST-MODIFIED:20260108T162704Z
UID:10000129-1772481600-1772485200@vhl.org
SUMMARY:March 2nd Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nPain Management and Symptom Support\nPractical tools for coping with physical symptoms\, fatigue\, or pain\, and ways you and your caregivers can support day-to-day comfort and quality of life. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/march-2nd-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2026/01/March-2nd-2026-Pain-Management-Symptom-Supprt.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260202T200000
DTEND;TZID=America/New_York:20260202T210000
DTSTAMP:20260416T232140
CREATED:20260108T162529Z
LAST-MODIFIED:20260108T162529Z
UID:10000128-1770062400-1770066000@vhl.org
SUMMARY:February 2nd Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nCoping with Uncertainty and the Future\nFocusing on managing the unpredictability of VHL\, planning for medical and life uncertainties\, and strategies to stay grounded while facing long-term challenges. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/feb-2-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2026/01/Feb-2-2026-Coping-with-uncertainty-and-the-future.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260105T200000
DTEND;TZID=America/New_York:20260105T210000
DTSTAMP:20260416T232140
CREATED:20250725T134435Z
LAST-MODIFIED:20250725T134435Z
UID:10000125-1767643200-1767646800@vhl.org
SUMMARY:January Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLiving fully with VHL – celebrating small wins\, changing directions\, adapting goals \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/jan-patient-caregiver-call-2026/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2025/07/jan-5th-2025-living-fully-with-VHL-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251201T200000
DTEND;TZID=America/New_York:20251201T210000
DTSTAMP:20260416T232140
CREATED:20250725T134227Z
LAST-MODIFIED:20250725T134227Z
UID:10000123-1764619200-1764622800@vhl.org
SUMMARY:December Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nNavigating the (very complicated) healthcare system – Demystifying the healthcare landscape \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/december-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2025/07/dec-1-2025-navigating-the-complicated-healthcare-system-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251103T200000
DTEND;TZID=America/New_York:20251103T210000
DTSTAMP:20260416T232140
CREATED:20250725T134135Z
LAST-MODIFIED:20250725T134135Z
UID:10000122-1762200000-1762203600@vhl.org
SUMMARY:November Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nFamily and relationship dynamics – Navigating marriage\, parenting\, and friendships with a rare disease in the mix \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/november-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2025/07/nov-3rd-2025-family-and-relationship-dynamics-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251006T200000
DTEND;TZID=America/New_York:20251006T210000
DTSTAMP:20260416T232140
CREATED:20250725T134023Z
LAST-MODIFIED:20250725T134023Z
UID:10000121-1759780800-1759784400@vhl.org
SUMMARY:October Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nSelf-advocacy and resilience – Becoming a powerful advocate for you and your loved ones through empowerment and emotional resilience \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/october-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2025/07/october-6th-2025-self-advocacy-and-resilience-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T200000
DTEND;TZID=America/New_York:20250908T210000
DTSTAMP:20260416T232140
CREATED:20250725T133911Z
LAST-MODIFIED:20250725T133911Z
UID:10000120-1757361600-1757365200@vhl.org
SUMMARY:September Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nEmotional well-being – Dealing with stress\, anxiety and uncertainty \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/september-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2025/07/sept-8th-2025-emotional-well-being-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250804T200000
DTEND;TZID=America/New_York:20250804T210000
DTSTAMP:20260416T232140
CREATED:20250725T133633Z
LAST-MODIFIED:20250725T133633Z
UID:10000119-1754337600-1754341200@vhl.org
SUMMARY:August Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nBuilding a healthy support network – Managing isolation and building connections \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/august-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2025/07/aug-4-2025-building-a-healthy-support-network-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250707T200000
DTEND;TZID=America/New_York:20250707T210000
DTSTAMP:20260416T232140
CREATED:20250630T191620Z
LAST-MODIFIED:20250630T191640Z
UID:10000111-1751918400-1751922000@vhl.org
SUMMARY:July Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nIntroducing our new call moderator\, Devon Ciampa\, DSW\, LCSW-C! \n  \nDevon Ciampa\, DSW\, LCSW-C\, has dedicated her career to supporting adolescents and young adults navigating crises\, both in the U.S. and internationally. After working in educational development throughout Asia\, she returned to the United States to work on program development for youth aging out of the child welfare system as well as for unaccompanied refugee minors in foster care. Shifting to social work\, Dr. Ciampa gained experience in medical settings at Children’s National Medical Center in Washington D.C. followed by Johns Hopkins Hospital in Baltimore\, MD\, where she served as the clinical social worker and adolescent and young adult (AYA) navigator for oncology patients between the ages of 15 and 28. Currently\, she is the first AYA Navigator and Program Coordinator at the National Institutes of Health Clinical Center tasked with building a comprehensive program across NIH institutes for patients ages 15 to 40. Dr. Ciampa regularly presents on AYA psychosocial needs and has a therapy practice dedicated to young adults. Dr. Ciampa holds two advanced degrees from Columbia University and recently received her doctorate from the University of Pennsylvania with a focus on advanced care planning for emerging adults. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/july-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2025/06/build-a-support-network-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250602T200000
DTEND;TZID=America/New_York:20250602T210000
DTSTAMP:20260416T232140
CREATED:20240605T171608Z
LAST-MODIFIED:20240605T171608Z
UID:10000084-1748894400-1748898000@vhl.org
SUMMARY:June Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLearn how to ask for help with less guilt from health care providers and loved ones \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/june-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/06/June-2-Learn-how-to-ask-for-help-with-less-guilt.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250505T200000
DTEND;TZID=America/New_York:20250505T210000
DTSTAMP:20260416T232140
CREATED:20240605T171458Z
LAST-MODIFIED:20240605T171458Z
UID:10000083-1746475200-1746478800@vhl.org
SUMMARY:May Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nCreate healthy boundaries so you can increase your health \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/may-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/06/May-5-Create-healthy-boundaries-to-increase-your-health.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T200000
DTEND;TZID=America/New_York:20250407T210000
DTSTAMP:20260416T232140
CREATED:20240605T171401Z
LAST-MODIFIED:20240605T171401Z
UID:10000082-1744056000-1744059600@vhl.org
SUMMARY:April Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nHow to navigate the vulnerability of VHL. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/april-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/06/April-7-How-to-navigate-the-vulnerability-of-VHL.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250303T200000
DTEND;TZID=America/New_York:20250303T210000
DTSTAMP:20260416T232140
CREATED:20240605T171257Z
LAST-MODIFIED:20240605T171257Z
UID:10000081-1741032000-1741035600@vhl.org
SUMMARY:March Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLearn mindfulness techniques that reduce persistent pain (physically or mentally) and create a sense of peace and control. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/mar-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/06/March-3-Learn-mindfulness-techniques-to-reduce-constant-pain.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250203T200000
DTEND;TZID=America/New_York:20250203T210000
DTSTAMP:20260416T232140
CREATED:20240605T171144Z
LAST-MODIFIED:20240605T171144Z
UID:10000080-1738612800-1738616400@vhl.org
SUMMARY:February Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLearn three ways to be more resilient. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/feb-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/06/Feb-3rd-Three-ways-to-be-more-resilient.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250106T200000
DTEND;TZID=America/New_York:20250106T210000
DTSTAMP:20260416T232140
CREATED:20240605T171041Z
LAST-MODIFIED:20240605T171200Z
UID:10000079-1736193600-1736197200@vhl.org
SUMMARY:January Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nHow to navigate incessant thoughts that weigh us down. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/jan-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/06/Jan-6-How-to-navigate-the-incessant-thoughts-that-weigh-us-down.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241209T200000
DTEND;TZID=America/New_York:20241209T210000
DTSTAMP:20260416T232140
CREATED:20240605T170950Z
LAST-MODIFIED:20241104T155405Z
UID:10000078-1733774400-1733778000@vhl.org
SUMMARY:December Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. *Please note that this call is delayed one week due to a scheduling conflict* \n  \nCall topic:\nCreating healthy relationships with good communication skills \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/dec-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/06/Dec-2-Creating-healthy-relationships-with-good-communication-skills.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241104T200000
DTEND;TZID=America/New_York:20241104T210000
DTSTAMP:20260416T232140
CREATED:20240605T170843Z
LAST-MODIFIED:20240605T170843Z
UID:10000077-1730750400-1730754000@vhl.org
SUMMARY:November Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLearn to understand what truly matters to you and create a plan to create an incredibly rich life-despite all that VHL entails. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/nov-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/06/Nov-4th-Learn-to-understand-what-truly-matters-to-you-to-create-a-rich-life.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241007T200000
DTEND;TZID=America/New_York:20241007T210000
DTSTAMP:20260416T232140
CREATED:20240605T170735Z
LAST-MODIFIED:20240605T170735Z
UID:10000076-1728331200-1728334800@vhl.org
SUMMARY:October Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nHow to increase positive emotions to lessen the intense negative ones. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/oct-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/06/Oct-7th-How-to-increase-positive-emotions.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240909T200000
DTEND;TZID=America/New_York:20240909T210000
DTSTAMP:20260416T232140
CREATED:20240605T170630Z
LAST-MODIFIED:20240605T170630Z
UID:10000075-1725912000-1725915600@vhl.org
SUMMARY:September Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. Please note that this call has been delayed one week due to Labor Day.  \n  \nCall topic:\nIncrease your wellbeing by increasing your sense of happiness despite extremely stressful circumstances. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/sept-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/06/Sept-9th-Increase-your-sense-of-happiness.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240805T200000
DTEND;TZID=America/New_York:20240805T210000
DTSTAMP:20260416T232140
CREATED:20240605T170421Z
LAST-MODIFIED:20240605T170421Z
UID:10000074-1722888000-1722891600@vhl.org
SUMMARY:August Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nHow to build a healthy support network so you don’t have to carry this all on your own. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/aug-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/06/Aug-5th-How-to-build-a-healthy-support-network.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240708T200000
DTEND;TZID=America/New_York:20240708T210000
DTSTAMP:20260416T232140
CREATED:20240605T165737Z
LAST-MODIFIED:20240618T154403Z
UID:10000073-1720468800-1720472400@vhl.org
SUMMARY:July Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n*This call is delayed one week to accommodate a scheduling conflict with our facilitator.  \n  \nCall topic:\nNavigating the grief that can come with having a chronic illness. \n  \nIf you would like to join the call list please click here to register. \n 
URL:http://vhl.org/vhla-event/july-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2024/06/July-1st-Navigating-Grief-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240603T200000
DTEND;TZID=America/New_York:20240603T210000
DTSTAMP:20260416T232140
CREATED:20240524T173909Z
LAST-MODIFIED:20240524T173909Z
UID:10000072-1717444800-1717448400@vhl.org
SUMMARY:June Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nGuilt and other tough emotions that come with VHL. \n  \nIf you would like to join the call list\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join?  \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n 
URL:http://vhl.org/vhla-event/june-patient-caregiver-call-24/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:http://vhl.org/wp-content/uploads/2024/05/guilt-and-other-tough-emotions-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240506T200000
DTEND;TZID=America/New_York:20240506T210000
DTSTAMP:20260416T232140
CREATED:20230320T191718Z
LAST-MODIFIED:20230320T191718Z
UID:10000039-1715025600-1715029200@vhl.org
SUMMARY:May Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLearn how to ask for help with less guilt from health care providers and loved ones. \n  \nIf you would like to join the call list\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join?  \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n 
URL:http://vhl.org/vhla-event/may-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/what-you-believe-about-vhl-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240408T200000
DTEND;TZID=America/New_York:20240408T210000
DTSTAMP:20260416T232140
CREATED:20230320T191601Z
LAST-MODIFIED:20230320T191601Z
UID:10000038-1712606400-1712610000@vhl.org
SUMMARY:April Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. We’re delayed one week this month due to the holiday! \n  \nCall topic:\nCreate healthy boundaries so you can increase your health. \n  \nIf you would like to join the call list\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join?  \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n 
URL:http://vhl.org/vhla-event/april-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/create-healthy-boundaries.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240304T200000
DTEND;TZID=America/New_York:20240304T210000
DTSTAMP:20260416T232140
CREATED:20230320T191423Z
LAST-MODIFIED:20230320T191423Z
UID:10000037-1709582400-1709586000@vhl.org
SUMMARY:Mar Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nHow to meditate to improve your health. \n  \nIf you would like to join the call list\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join?  \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n 
URL:http://vhl.org/vhla-event/mar-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/meditation.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240205T200000
DTEND;TZID=America/New_York:20240205T210000
DTSTAMP:20260416T232140
CREATED:20230320T191334Z
LAST-MODIFIED:20230320T191334Z
UID:10000036-1707163200-1707166800@vhl.org
SUMMARY:Feb Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLearn mindfulness techniques that reduce persistent pain (physically or mentally) and create a sense of peace and control. \n  \nIf you would like to join the call list\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join?  \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n 
URL:http://vhl.org/vhla-event/feb-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/mindfullness.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240108T200000
DTEND;TZID=America/New_York:20240108T210000
DTSTAMP:20260416T232140
CREATED:20230320T191223Z
LAST-MODIFIED:20230320T191223Z
UID:10000035-1704744000-1704747600@vhl.org
SUMMARY:Jan Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. We’re delayed one week this month due to the holiday! \n  \nCall topic:\nLearn three ways to be more resilient. \n  \nIf you would like to join the call list\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join?  \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n 
URL:http://vhl.org/vhla-event/jan-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/be-more-resilient.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231211T200000
DTEND;TZID=America/New_York:20231211T210000
DTSTAMP:20260416T232140
CREATED:20230320T191108Z
LAST-MODIFIED:20231114T151811Z
UID:10000034-1702324800-1702328400@vhl.org
SUMMARY:Dec Patient/Caregiver Call
DESCRIPTION:  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. This weeks call is delayed one week to Dec 11th! \n  \nCall topic:\nHow to grieve well so it doesn’t feel so overwhelming. \n  \nIf you would like to join the call list\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join?  \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n 
URL:http://vhl.org/vhla-event/dec-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/grieving.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231106T200000
DTEND;TZID=America/New_York:20231106T210000
DTSTAMP:20260416T232140
CREATED:20230320T191000Z
LAST-MODIFIED:20230320T191000Z
UID:10000033-1699300800-1699304400@vhl.org
SUMMARY:Nov Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nHow to navigate the challenging emotions that come with having a chronic illness (and how to know when we aren’t doing that well. \n  \nIf you would like to join the call list\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join?  \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n 
URL:http://vhl.org/vhla-event/nov-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/challenging-emotions-w_-illness.jpg
END:VEVENT
END:VCALENDAR