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DTSTART;TZID=America/New_York:20230308T193000
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DTSTAMP:20230324T153918Z
CREATED:20230210T163148Z
LAST-MODIFIED:20230324T153918Z
UID:10000017-1678303800-1678307400@vhl.org
SUMMARY:March Low/No Vision Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/march-low-no-vision-monthly-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230306T200000
DTEND;TZID=America/New_York:20230306T210000
DTSTAMP:20230215T194902Z
CREATED:20230210T163247Z
LAST-MODIFIED:20230215T194902Z
UID:10000018-1678132800-1678136400@vhl.org
SUMMARY:March VHL Patient/Caregiver Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/march-vhl-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230302T190000
DTEND;TZID=America/New_York:20230302T200000
DTSTAMP:20230124T180317Z
CREATED:20230123T203835Z
LAST-MODIFIED:20230124T180317Z
UID:10000013-1677783600-1677787200@vhl.org
SUMMARY:New Patient / Caregiver Cohort Program
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/new-patient-cohort-program/2023-03-02/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230224
DTEND;VALUE=DATE:20230227
DTSTAMP:20230201T142014Z
CREATED:20221230T135408Z
LAST-MODIFIED:20230201T142014Z
UID:10000004-1677196800-1677455999@vhl.org
SUMMARY:2023 Julie Flynn HOPE Retreat for Young Adults
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/2023-julie-flynn-hope-retreat-for-young-adults/
LOCATION:Washington DC\, Washington DC\, DC\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2022/12/20190615_161938-2-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230223T190000
DTEND;TZID=America/New_York:20230223T203000
DTSTAMP:20230124T180317Z
CREATED:20230123T203835Z
LAST-MODIFIED:20230124T180317Z
UID:10000012-1677178800-1677184200@vhl.org
SUMMARY:New Patient / Caregiver Cohort Program
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/new-patient-cohort-program/2023-02-23/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230223T130000
DTEND;TZID=America/New_York:20230223T143000
DTSTAMP:20230124T144043Z
CREATED:20230123T194146Z
LAST-MODIFIED:20230124T144043Z
UID:10000011-1677157200-1677162600@vhl.org
SUMMARY:Navigating Tough Conversations Workshop
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/navigating-tough-conversations-workshop/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/Leona-Workshop-Template-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230214T080000
DTEND;TZID=America/New_York:20230214T090000
DTSTAMP:20230201T143550Z
CREATED:20230201T143550Z
LAST-MODIFIED:20230201T143550Z
UID:10000016-1676361600-1676365200@vhl.org
SUMMARY:VHLentine's Day
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/vhlentines-day/
LOCATION:TN
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/02/vhlentines-2023.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230208T193000
DTEND;TZID=America/New_York:20230208T203000
DTSTAMP:20230328T165308Z
CREATED:20230123T193128Z
LAST-MODIFIED:20230328T165308Z
UID:10000009-1675884600-1675888200@vhl.org
SUMMARY:February Low/No Vision Monthly Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/low-no-vision-monthly-call-feb/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230206T200000
DTEND;TZID=America/New_York:20230206T210000
DTSTAMP:20230208T164624Z
CREATED:20230123T193032Z
LAST-MODIFIED:20230208T164624Z
UID:10000008-1675713600-1675717200@vhl.org
SUMMARY:February VHL Patient/Caregiver Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/vhl-patient-caregiver-call-feb/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230123T200000
DTEND;TZID=America/New_York:20230123T210000
DTSTAMP:20230324T154002Z
CREATED:20221230T141306Z
LAST-MODIFIED:20230324T154002Z
UID:10000006-1674504000-1674507600@vhl.org
SUMMARY:Parents of VHL Patients Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/parents-of-vhlers-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230111T193000
DTEND;TZID=America/New_York:20230111T203000
DTSTAMP:20230328T165316Z
CREATED:20221230T141228Z
LAST-MODIFIED:20230328T165316Z
UID:10000005-1673465400-1673469000@vhl.org
SUMMARY:Low/No Vision Monthly Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/low-no-vision-monthly-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230109T200000
DTEND;TZID=America/New_York:20230109T210000
DTSTAMP:20221230T141441Z
CREATED:20221230T141401Z
LAST-MODIFIED:20221230T141441Z
UID:10000007-1673294400-1673298000@vhl.org
SUMMARY:VHL Patient/Caregiver Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg
END:VEVENT
END:VCALENDAR