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DTSTART;TZID=America/New_York:20231120T200000
DTEND;TZID=America/New_York:20231120T210000
DTSTAMP:20230329T171848Z
CREATED:20230320T184133Z
LAST-MODIFIED:20230329T171848Z
UID:10000023-1700510400-1700514000@vhl.org
SUMMARY:Nov Parents of VHL Patients Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/nov-parents-of-vhlers-call/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/what-matters-to-your-child-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231116T190000
DTEND;TZID=America/New_York:20231116T200000
DTSTAMP:20231031T162410Z
CREATED:20231013T141411Z
LAST-MODIFIED:20231031T162410Z
UID:10000065-1700161200-1700164800@vhl.org
SUMMARY:VHL Veterans Panel
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/vhl-veterans-panel/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/10/vhl-veterans-panel-nov-16.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231108T193000
DTEND;TZID=America/New_York:20231108T203000
DTSTAMP:20230328T170250Z
CREATED:20230328T170250Z
LAST-MODIFIED:20230328T170250Z
UID:10000047-1699471800-1699475400@vhl.org
SUMMARY:Nov Low/No Vision Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/nov-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/food-and-cooking-with-blindness.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231106T200000
DTEND;TZID=America/New_York:20231106T210000
DTSTAMP:20230320T191000Z
CREATED:20230320T191000Z
LAST-MODIFIED:20230320T191000Z
UID:10000033-1699300800-1699304400@vhl.org
SUMMARY:Nov Patient/Caregiver Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/nov-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/challenging-emotions-w_-illness.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231011T193000
DTEND;TZID=America/New_York:20231011T203000
DTSTAMP:20230328T170139Z
CREATED:20230328T170139Z
LAST-MODIFIED:20230328T170139Z
UID:10000046-1697052600-1697056200@vhl.org
SUMMARY:Oct Low/No Vision Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/oct-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/communicating-with-medical-professionals.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231006T190000
DTEND;TZID=America/New_York:20231006T220000
DTSTAMP:20230911T145840Z
CREATED:20230622T171954Z
LAST-MODIFIED:20230911T145840Z
UID:10000063-1696618800-1696629600@vhl.org
SUMMARY:VHL Alliance 30th Anniversary Gala
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/vhl-alliance-30th-anniversary-gala/
LOCATION:Franklin Institute\, 222 North 20th Street\, Philadelphia\, PA\, 19103\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/06/VHLA-Gala-Web-Banner-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231002T200000
DTEND;TZID=America/New_York:20231002T210000
DTSTAMP:20230320T190859Z
CREATED:20230320T190859Z
LAST-MODIFIED:20230320T190859Z
UID:10000032-1696276800-1696280400@vhl.org
SUMMARY:Oct Patient/Caregiver Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/oct-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/navigate-constant-thoughts.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230925T200000
DTEND;TZID=America/New_York:20230925T210000
DTSTAMP:20230810T155228Z
CREATED:20230320T190739Z
LAST-MODIFIED:20230810T155228Z
UID:10000031-1695672000-1695675600@vhl.org
SUMMARY:Sept Patient/Caregiver Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/sept-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/improve-communication-skills.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230918T200000
DTEND;TZID=America/New_York:20230918T210000
DTSTAMP:20230329T171915Z
CREATED:20230320T183956Z
LAST-MODIFIED:20230329T171915Z
UID:10000022-1695067200-1695070800@vhl.org
SUMMARY:Sept Parents of VHL Patients Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/sept-parents-of-vhlers-call/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/increase-positive-emotions-w_-a-child-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230913T193000
DTEND;TZID=America/New_York:20230913T203000
DTSTAMP:20230328T170035Z
CREATED:20230328T170035Z
LAST-MODIFIED:20230328T170035Z
UID:10000045-1694633400-1694637000@vhl.org
SUMMARY:Sept Low/No Vision Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/sept-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/hobbies-and-leisure-activities.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230809T193000
DTEND;TZID=America/New_York:20230809T203000
DTSTAMP:20230328T165831Z
CREATED:20230328T165831Z
LAST-MODIFIED:20230328T165831Z
UID:10000044-1691609400-1691613000@vhl.org
SUMMARY:August Low/No Vision Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/aug-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/blindness-and-mental-health.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230807T200000
DTEND;TZID=America/New_York:20230807T210000
DTSTAMP:20230320T190604Z
CREATED:20230320T190604Z
LAST-MODIFIED:20230320T190604Z
UID:10000030-1691438400-1691442000@vhl.org
SUMMARY:Aug Patient/Caregiver Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/aug-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/understand-what-truly-matters-to-you.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230806T090000
DTEND;TZID=America/New_York:20230806T110000
DTSTAMP:20230720T123707Z
CREATED:20230720T123635Z
LAST-MODIFIED:20230720T123707Z
UID:10000064-1691312400-1691319600@vhl.org
SUMMARY:Family Weekend Fun Walk / Run
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/family-weekend-fun-walk-run/
LOCATION:TN
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/07/iStock-907273480.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230804
DTEND;VALUE=DATE:20230807
DTSTAMP:20230720T124142Z
CREATED:20230418T193158Z
LAST-MODIFIED:20230720T124142Z
UID:10000054-1691107200-1691366399@vhl.org
SUMMARY:2023 Annual VHL Family Weekend
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/2023-annual-vhl-family-weekend/
LOCATION:Vanderbilt University\, 2555 West End Avenue\, Nashville\, TN\, 37203\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/04/2023-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230720T190000
DTEND;TZID=America/New_York:20230720T203000
DTSTAMP:20230714T134348Z
CREATED:20230607T155758Z
LAST-MODIFIED:20230714T134348Z
UID:10000059-1689879600-1689885000@vhl.org
SUMMARY:VHL 101 / Research Update Info Session
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/new-patient-caregiver-cohort-program/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230717T200000
DTEND;TZID=America/New_York:20230717T210000
DTSTAMP:20230329T172001Z
CREATED:20230320T183811Z
LAST-MODIFIED:20230329T172001Z
UID:10000021-1689624000-1689627600@vhl.org
SUMMARY:July Parents of VHL Patients Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/july-parents-of-vhlers-call/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/increase-your-wellbeing-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230712T193000
DTEND;TZID=America/New_York:20230712T203000
DTSTAMP:20230328T165712Z
CREATED:20230328T165712Z
LAST-MODIFIED:20230328T165712Z
UID:10000043-1689190200-1689193800@vhl.org
SUMMARY:July Low/No Vision Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/july-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/What-has-VHL-taught-you.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230710T200000
DTEND;TZID=America/New_York:20230710T210000
DTSTAMP:20230320T190456Z
CREATED:20230320T190456Z
LAST-MODIFIED:20230320T190456Z
UID:10000029-1689019200-1689022800@vhl.org
SUMMARY:July Patient/Caregiver Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/july-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/increase-your-happiness.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230614T193000
DTEND;TZID=America/New_York:20230614T203000
DTSTAMP:20230328T165716Z
CREATED:20230328T165610Z
LAST-MODIFIED:20230328T165716Z
UID:10000042-1686771000-1686774600@vhl.org
SUMMARY:June Low/No Vision Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/june-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/best-vhl-advice-given-or-received.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230605T200000
DTEND;TZID=America/New_York:20230605T210000
DTSTAMP:20230320T190310Z
CREATED:20230320T190310Z
LAST-MODIFIED:20230320T190310Z
UID:10000028-1685995200-1685998800@vhl.org
SUMMARY:June Patient/Caregiver Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/june-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/increase-positive-emotions.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230515T200000
DTEND;TZID=America/New_York:20230515T210000
DTSTAMP:20230329T172019Z
CREATED:20230320T183532Z
LAST-MODIFIED:20230329T172019Z
UID:10000020-1684180800-1684184400@vhl.org
SUMMARY:May Parents of VHL Patients Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/may-parents-of-vhlers-call/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/what-you-believe-about-vhl-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230510T193000
DTEND;TZID=America/New_York:20230510T203000
DTSTAMP:20230328T165448Z
CREATED:20230328T165448Z
LAST-MODIFIED:20230328T165448Z
UID:10000041-1683747000-1683750600@vhl.org
SUMMARY:May Low/No Vision Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/may-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/need-for-independence.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230501T200000
DTEND;TZID=America/New_York:20230501T210000
DTSTAMP:20230320T185917Z
CREATED:20230320T185859Z
LAST-MODIFIED:20230320T185917Z
UID:10000027-1682971200-1682974800@vhl.org
SUMMARY:May Patient/Caregiver Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/may-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/03/build-a-support-network.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230419T200000
DTEND;TZID=America/New_York:20230419T203000
DTSTAMP:20230330T230450Z
CREATED:20230330T230408Z
LAST-MODIFIED:20230330T230450Z
UID:10000053-1681934400-1681936200@vhl.org
SUMMARY:Adrenal Awareness Month Webinar
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/adrenal-awareness-month-webinar/
LOCATION:TN
CATEGORIES:Non VHLA Event
ATTACH;FMTTYPE=image/png:http://vhl.org/wp-content/uploads/2023/03/April-Awareness-Month-20231.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230417T200000
DTEND;TZID=America/New_York:20230417T210000
DTSTAMP:20230403T145602Z
CREATED:20230310T194703Z
LAST-MODIFIED:20230403T145602Z
UID:10000019-1681761600-1681765200@vhl.org
SUMMARY:April VHL Patient/Caregiver Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/april-vhl-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T193000
DTEND;TZID=America/New_York:20230412T203000
DTSTAMP:20230324T153927Z
CREATED:20230323T180837Z
LAST-MODIFIED:20230324T153927Z
UID:10000040-1681327800-1681331400@vhl.org
SUMMARY:April Low/No Vision Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/april-low-no-vision-monthly-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230320T200000
DTEND;TZID=America/New_York:20230320T210000
DTSTAMP:20230324T153910Z
CREATED:20230123T193222Z
LAST-MODIFIED:20230324T153910Z
UID:10000010-1679342400-1679346000@vhl.org
SUMMARY:March Parents of VHL Patients Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/parents-of-vhlers-call-march/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/parents-of-vhlers-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230316T190000
DTEND;TZID=America/New_York:20230316T200000
DTSTAMP:20230124T180317Z
CREATED:20230123T203835Z
LAST-MODIFIED:20230124T180317Z
UID:10000015-1678993200-1678996800@vhl.org
SUMMARY:New Patient / Caregiver Cohort Program
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/new-patient-cohort-program/2023-03-16/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230309T190000
DTEND;TZID=America/New_York:20230309T200000
DTSTAMP:20230124T180317Z
CREATED:20230123T203835Z
LAST-MODIFIED:20230124T180317Z
UID:10000014-1678388400-1678392000@vhl.org
SUMMARY:New Patient / Caregiver Cohort Program
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/new-patient-cohort-program/2023-03-09/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230308T193000
DTEND;TZID=America/New_York:20230308T203000
DTSTAMP:20230324T153918Z
CREATED:20230210T163148Z
LAST-MODIFIED:20230324T153918Z
UID:10000017-1678303800-1678307400@vhl.org
SUMMARY:March Low/No Vision Call
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend.   Here are a few highlights of the 2023 event:   Dates: August 4-6\, 2023   Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.    Hotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300   What are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance   Here is a brief recap of the weekend’s schedule:   Friday\, August 4\, 2023 – VHLA Board of Directors Meeting – VHL Family Weekend Community Evening (dinner) – more to come!   Saturday\, August 5\, 2023 – Welcome ceremony: Vanderbilt and Nashville – Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  – State of the VHL Alliance Presentation  – Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center – VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center – Small group connections and networking discussions. Coffee and ice cream included!  – VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!   Sunday\, August 6\, 2023 – On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:http://vhl.org/vhla-event/march-low-no-vision-monthly-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:http://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg
END:VEVENT
END:VCALENDAR