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DTSTART;TZID=America/New_York:20260803T200000
DTEND;TZID=America/New_York:20260803T210000
DTSTAMP:20260914T211053Z
CREATED:20260617T152305Z
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UID:10000145-1785787200-1785790800@vhl.org
SUMMARY:August 3rd Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nTraveling and Exploring with Confidence\nSharing strategies for planning trips\, managing medical needs on the go\, and adapting to unexpected challenges while continuing to explore and enjoy life. \n  \nIf you would like to join the call list please click here to register. \n  \nThis event is brought to you with support from: \n \n 
URL:http://vhl.org/vhla-event/aug-3-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:http://vhl.org/wp-content/uploads/2026/06/August-3-2026-Traveling-and-Exploring-with-Confidence.png
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DTSTART;TZID=America/New_York:20260807T170000
DTEND;TZID=America/New_York:20260809T143000
DTSTAMP:20260615T171735Z
CREATED:20260428T145054Z
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UID:10000144-1786122000-1786285800@vhl.org
SUMMARY:Family Weekend 2026
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n  \nWhen: August 7-9\, 2026 \nWhere: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \nRegistration Link: Click here to secure your spot today! \n  \nWhat to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n  \nWho Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n  \nWhether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL. \n  \nWant to attend but worried about the cost? Travel scholarships are available! We are pleased to offer travel reimbursement scholarships of *up to $500.00\, to be reimbursed on the final day of the event. Click here to apply before June 25th\, 2026. \n  \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! [EARLY BIRD PRICING EXTENDED TO JULY 1ST!] \n*Please note that every attendee must register for a ticket to secure their spot* \n					\n									Register Now!\n					\n															\n															\n																														 \nFamily Weekend is brought to you with support from: 
URL:http://vhl.org/vhla-event/family-weekend-2026/
LOCATION:Kimpton Everly Hotel\, 1800 Argyle Ave\, Los Angeles\, 90028\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/png:http://vhl.org/wp-content/uploads/2026/04/fam-weekend-promo.png
ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org
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DTSTART;TZID=America/New_York:20260812T193000
DTEND;TZID=America/New_York:20260812T203000
DTSTAMP:20260914T211049Z
CREATED:20260617T153816Z
LAST-MODIFIED:20260914T211049Z
UID:10000151-1786563000-1786566600@vhl.org
SUMMARY:August 12th Low/No Vision Call
DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nStyle — fashion\, cars\, architecture\, and more. We’ll talk about how the world around us has changed since we lost our sight and how we learn about those changes. Is it even important for us to know? \n  \nIf you are blind or visually impaired as a result of VHL\, we welcome you to participate on the low and no vision call. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. \n  \nThis event is brought to you with support from:
URL:http://vhl.org/vhla-event/aug-12-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/png:http://vhl.org/wp-content/uploads/2026/06/August-12-2026-Style.png
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