VHL Handbook Download Here you can download the VHL Handbook Clinical Care Centers Directory The VHLA Clinical Care Centers program helps you identify and collaborate with others experienced in VHL in your area. CGIP Databank Learn or and participate in this FDA acknowledged groundbreaking research effort to help researchers learn more about VHL. Suggested Annual Surveillance Guidelines The latest VHL Surveillance Guidelines VHL Genetic Mutations Genetic mutations database – a resource of known VHL genetic mutations Caregiver Center VHLA Caregiver Website Resources Quarterly Newsletter/Annual Report The VHL Alliance publishes a quarterly newsletter (including one annual report), an important resource for patients, families, friends, clinicians, and researchers. News & Events Learn more about the exciting things happening at the VHL Alliance, including upcoming meetings. Annual Meeting Presentations Annual Family Meeting: Slides and Summary International VHL Medical Symposium Presentations International VHL Medical Symposia: Slides and Summary Caregiver Resources Support for VHL Patients and Caregivers Useful links Learn more about VHLA support programs, Regional Chapters, International affiliates, Our Fundraising Toolkit and other useful things. VHL Manuscripts A more detailed understanding of the basic science of VHL can be found in any one of the review articles listed in Manuscripts on VHL. VHL Facts Interesting facts about VHL and VHLA Collaborations We are partnering with “The Mighty” and The National Organization for Rare Diseases (NORD). Learn about these collaborations and watch interviews of VHLA’s Ilene Sussman and Andrea Berkemeier . References A list of references for all medical information provided on this site.