vhl alliance

CGIP Databank

Cancer in our Genes International Patient Databank

The Cancer in our Genes International Databank is a partnership between patients and clinical researchers, and was developed at the recommendation of the VHLA Research Council. VHL, BHD, HLRCC, SDH and other related genetic risks for cancer are different from many other conditions that cause tumors to grow.

In order to preserve the functions of the affected organs, tumors are watched over time and only removed when necessary. This gives researchers a unique opportunity to understand factors affecting tumor development and growth rate.

You can provide a crucial piece of the puzzle needed to fully understand these conditions and find a cure. You and your family can make a difference. Cancer does not give up its secrets easily, but your information, combined with the information from thousands of others will give researchers a chance to fight cancer on your behalf.

Don’t let your information be the missing piece. Register and participate in the Databank today!


All of the information you share with the CGIP Databank will remain secure and confidential.