vhl alliance

VHL Facts

General Health of VHL Patients
    • Excellent
    • Very Good
    • Good
    • Fair
    • Poor

General Health of VHL Patients

Onset Age of VHL Symptoms
23 years old

average age of first occurrence of VHL symptoms

VHL Diagnosis Age
32 years old

average age of diagnosis for VHL

Clinical Trial Participation
    • Has Participated
    • Has Not Participated
Exercise Frequency among VHL patients
    • Daily
    • 4-6 times per week
    • 2-3 times per week
    • Once per week
    • Rarely
    • Never
VHLA Funds for Education & Research
90%

VHLA funds spent on Education & Research

Funds Raised Over Time (in 100,000 dollars)
VHL Incidence Worldwide
One in 36,000

people in the world have VHL