July Parents of VHL Patients Call

Zoom / Online

Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL.   Our topic "Dealing with Uncertainty"   All parents of VHL patients are welcome to join—whether you have questions or just want to find out more. There will...

August Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

August Low/No Vision Call

Zoom / Online

Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic: "What is the Best Advice about VHL or Vision Loss That You Have Given or...

Family Weekend 2024 | Dallas, TX

UT Southwestern 5201 Harry Hines Blvd, Dallas, TX, United States

Join us for VHL Alliance Family Weekend hosted at UT Southwestern in Dallas on September 6-8! Immerse yourself in a community of strength as we come together to share our VHL experience, build lasting connections, and learn directly from VHL experts. UT Southwestern will serve as the backdrop for a series of engaging events, informative sessions, and...

$50

September Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

September Low/No Vision Call

Zoom / Online

Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic: "How do we maintain our physical health with VHL and vision loss?"   All are...

September Parents of VHL Patients Call

Zoom / Online

Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL.   Our topic "Find out how what you believe about VHL and its impact on you can increase or decrease your child’s health outcomes and what you can...

October Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

October Low/No Vision Call

Zoom / Online

Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic: "How does blindness add to mental health challenges? What practices, courses, books, etc. have you...

16th International VHL Medical Symposium | Milan, Italy

Join the leading VHL researchers, physicians, and experts in Milan!What: The 16th International VHL Medical Symposium, hosted by the VHL Alliance and the San Raffaele Scientific Institute, will bring scientists, clinicians and advocates together for two days of collaboration, idea exchange, and thought leadership. Where: Congress Centre HSR / Via Olgettina 58 – Milano, Italy When: October...

November Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

November Low/No Vision Call

Zoom / Online

Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic: "What keeps you from advocating for yourself? Manners, fear of drawing attention to yourself, fear...