Navigating Tough Conversations Workshop

Zoom / Online

  No one likes conflict. Having VHL can feel very stressful and that can strain relationships, erode healthy communication, and increase the likelihood of conflict.   What if you could navigate tough conversations with greater expertise or avoid having conflict?   Join this session to discover research-based tools that you can implement immediately to improve...

Event Series New Patient Cohort Program

New Patient / Caregiver Cohort Program

Zoom / Online

  Recently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to...   Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...

Event Series New Patient Cohort Program

New Patient / Caregiver Cohort Program

Zoom / Online

  Recently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to...   Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...

Event Series New Patient Cohort Program

New Patient / Caregiver Cohort Program

Zoom / Online

  Recently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to...   Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...

Event Series New Patient Cohort Program

New Patient / Caregiver Cohort Program

Zoom / Online

  Recently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to...   Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...

Event Series New Patient Cohort Program

VHL 101 / Research Update Info Session

Zoom / Online

  Recently diagnosed? Join us for a VHL 101 / Research Update info session! This is a one off workshop with Othon Iliopoulos, MD!   A few reasons why you should consider joining us:   Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts...

VHL Veterans Panel

Zoom / Online

The VHL Alliance proudly presents the VHL Veterans Panel! Prepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  Date: November 16th, 2023Time: 7 pm ESTLocation: Zoom.  What to Expect: ✨ Courageous Stories:...

Advances in VHL Disease and HIF2a Inhibitors: Insights from Recent Research with Othon Iliopoulos, MD, PhD

Zoom / Online

  Date & Time: Nov 14th, 6:30 pm EST   Location: Zoom (Link to be provided upon registration)   Join us for an informative webinar featuring renowned VHL researcher Dr. Othon Iliopoulos as he delves into the latest advancements in understanding Von Hippel-Lindau (VHL) disease and the role of HIF2a inhibitors in treatment.   Dr....

Free