vhl alliance

Participate in Research

VHLA is committed to advancing the understanding of VHL and related cancers. VHL patients can help researchers achieve this goal, improve treatments, and hopefully one day find a cure for VHL.


The Patient Natural History Study is an amazing tool that researchers are using to better understand how VHL impacts the whole person. This is a longitudinal study which means that participants take surveys about their health and submit medical scans every year.

Clinical trials are also a great option to contribute to the continuing journey toward a cure. Review the list of clinical trials in progress, and check with your doctor to see if you may qualify to participate. More information about the most updated information in the field of VHL research can be found here.