vhl alliance

Clinical Care

With early detection, active surveillance and appropriate treatment, VHL disease has a better prognosis, or outcome, than many other tumor conditions and cancers.


People with VHL as well as individuals who have a family history of VHL are encouraged to seek care from a healthcare team experienced with this complex disease. In case your doctor is new to VHL, please provide him/her with this Quick Start Guide. Visit the Clinical Care Center page to see where centers of outstanding coordinated care for VHL are located around the world.