VHL disease is different in every person, so there are no universal treatment recommendations. Appropriate treatment options can only be determined by careful evaluation of each patient’s unique situation–symptoms, test results, imaging studies, and general physical condition. Early diagnosis and regular screenings are critical to delivering the best treatment.
There are a number of very effective treatments and more are being discovered. The VHLA Clinical Care Centers program helps you identify and collaborate with others experienced in VHL in your area.
Click here if you want to read more about becoming a Clinical Care Center.