vhl alliance

International Medical/Research Symposium

The VHL Alliance invites researchers from around the world to discuss their tremendous contributions toward the goal of finding a cure for VHL disease.


The biennial International VHL Medical Symposium is an excellent opportunity for internationally renowned researchers to meet, interact with, and learn from VHL patients and their care teams. Most importantly, it is a venue to discuss the tremendous advances and start new collaborations on new research which brings us closer to effective treatments for VHL.

Additionally, an entire day is devoted to presentations and discussions directed to VHL patients, their families, and friends. This multi-disciplinary approach provides researchers with the unique opportunity to see the bigger picture about the effects of VHL has for patients and caregivers on self-perception, career path, family dynamics, and the progression of medical decisions from child to adult.

Clinical presentations are the focus of the Annual Family Meeting. Past presentations from these weekend meetings can be viewed in the Resources.


The 13th International VHL Medical Symposium will take place in 2018 in The Netherlands

DATES:  9.27.18 Р9.29.18
More details to come.