BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//VHL Alliance - ECPv6.17.2//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231006T190000
DTEND;TZID=America/New_York:20231006T220000
DTSTAMP:20230911T145840Z
CREATED:20230622T171954Z
LAST-MODIFIED:20230911T145840Z
UID:10000063-1696618800-1696629600@vhl.org
SUMMARY:VHL Alliance 30th Anniversary Gala
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!\nWe are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate. \nAs a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring: \nEric Jonasch\, MD\nDepartment of Genitourinary Medical Oncology\, Division of Cancer Medicine\nThe University of Texas MD Anderson Cancer Center\, Houston\, Texas \nDate: Friday\, October 6\, 2023\nTime: Reception: 6:00 pm\, Dinner: 7:00 pm\nLocation: The Franklin Institute\n222 North 20th Street\nPhiladelphia\, PA 19103 \nPrice:\nIndividual Tickets $300\nTables of 10 available for $2500 \n\nPurchase A Ticket\n\n\nBecome A Sponsor
URL:https://vhl.org/vhla-event/vhl-alliance-30th-anniversary-gala/
LOCATION:Franklin Institute\, 222 North 20th Street\, Philadelphia\, PA\, 19103\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/06/VHLA-Gala-Web-Banner-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230806T090000
DTEND;TZID=America/New_York:20230806T110000
DTSTAMP:20230720T123707Z
CREATED:20230720T123635Z
LAST-MODIFIED:20230720T123707Z
UID:10000064-1691312400-1691319600@vhl.org
SUMMARY:Family Weekend Fun Walk / Run
DESCRIPTION:Join us in Nashville for a Family Friendly fun walk! \n  \nOn Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! \n  \nWe’re encouraging walkers to: \n  \n– Create a fundraising page to solicit donations ahead of family weekend \n  \n– Wear blue the day of the event \n  \nClick here to register for the walk and create your fundraising page!
URL:https://vhl.org/vhla-event/family-weekend-fun-walk-run/
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/07/iStock-907273480.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230804
DTEND;VALUE=DATE:20230807
DTSTAMP:20230720T124142Z
CREATED:20230418T193158Z
LAST-MODIFIED:20230720T124142Z
UID:10000054-1691107200-1691366399@vhl.org
SUMMARY:2023 Annual VHL Family Weekend
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!\nThe VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend. \n  \nHere are a few highlights of the 2023 event: \n  \nDates: August 4-6\, 2023 \n  \nLocation: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.  \n  \nHotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300 \n  \nWhat are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance \n  \nHere is a brief recap of the weekend’s schedule: \n  \nFriday\, August 4\, 2023 \n– VHLA Board of Directors Meeting \n– VHL Family Weekend Community Evening (dinner) – more to come! \n  \nSaturday\, August 5\, 2023 \n– Welcome ceremony: Vanderbilt and Nashville \n– Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  \n– State of the VHL Alliance Presentation  \n– Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center \n– VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center \n– Small group connections and networking discussions. Coffee and ice cream included!  \n– VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville! \n  \nSunday\, August 6\, 2023 \n– On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:https://vhl.org/vhla-event/2023-annual-vhl-family-weekend/
LOCATION:Vanderbilt University\, 2555 West End Avenue\, Nashville\, TN\, 37203\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/04/2023-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230224
DTEND;VALUE=DATE:20230227
DTSTAMP:20230201T142014Z
CREATED:20221230T135408Z
LAST-MODIFIED:20230201T142014Z
UID:10000004-1677196800-1677455999@vhl.org
SUMMARY:2023 Julie Flynn HOPE Retreat for Young Adults
DESCRIPTION:  \nAre you a young adult with VHL? If so\, join other young adults for a weekend of fun and information! We’re excited to get together in person after our digital event last year. \nParticipants must cover transportation costs to and from DC. VHLA will cover the cost of lodging\, meals\, and activities for the weekend. \nScholarships are available for those who need assistance covering travel costs. My info coming soon. \nDate: 2/24-2/26\nLocation: Washington\, DC\nCost: $70 on or before 1/27; $100 after \nRegister Here \n  \nThis event would not be possible without the support of our generous sponsors: \n  \n \n 
URL:https://vhl.org/vhla-event/2023-julie-flynn-hope-retreat-for-young-adults/
LOCATION:Washington DC\, Washington DC\, DC\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/20190615_161938-2-scaled.jpg
END:VEVENT
END:VCALENDAR