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UID:10000127-1765008000-1765029600@vhl.org
SUMMARY:VHL Connect: Atlanta
DESCRIPTION:When: December 6\, 2025 | 8:30 AM – 2:00 PM ET \nWhere: Hilton Millennium Center\, Atlanta\n2301 Sullivan Rd\, College Park\, GA 30337 \nCost: $10 (includes lunch) \n  \nJoin the VHL Alliance in Atlanta for VHL Connect\, an in-person event designed to bring together people living with VHL\, their families\, and leading experts in the field. \n  \nManaging VHL can be complex – but you don’t have to do it alone. This event offers the chance to hear directly from clinicians and researchers who specialize in VHL care\, learn from others who are living with the condition\, and connect with the community that understands your journey. \n  \nHosted in partnership with the Georgia Cancer Center at Augusta University\, a VHL Alliance Clinical Care Center\, the day will include educational sessions\, open Q&A discussions\, and opportunities to share experiences in a supportive setting. Lunch and refreshments are included. \n  \nWhat to expect: \n\nUpdates and insights from VHL experts\nConversations with patients and caregivers\nGuidance on managing the emotional and practical sides of VHL\nTime to connect with others in the community over lunch\n\n  \nWhether you’re newly diagnosed or have been managing VHL for years\, VHL Connect: Atlanta is a chance to learn\, ask questions\, and connect with our community. \n  \nSpace is limited. Register today to join us for this day of connection and learning: https://vhl.app.neoncrm.com/np/clients/vhl/eventRegistration.jsp?event=81& \n  \n  \nThis event is brought to you with support from:  \n  \n \n 
URL:https://vhl.org/vhla-event/vhl-connect-atlanta/
LOCATION:Hilton Millennium Center\, 2301 Sullivan Rd\, College Park\, GA\, 30337\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/10/vhl-connect-atlanta.jpg
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DTSTART;TZID=America/Los_Angeles:20260321T090000
DTEND;TZID=America/Los_Angeles:20260321T120000
DTSTAMP:20260303T193637Z
CREATED:20260126T170233Z
LAST-MODIFIED:20260303T193637Z
UID:10000140-1774083600-1774094400@vhl.org
SUMMARY:VHL Connect | Seattle
DESCRIPTION:  \nJoin us for VHL Connect: Seattle on March 21st\, 2026! \n  \nDate: March 21st\, 2026 \nCost: $10 \nLocation: 255 South King Street\, 18th floor\, Seattle\, WA\, 98104. We will be in Slalom Hawk Tower on the 18th floor\, which is where the reception area is located. Note that there is a hotel connected to the building which can make locating the office part of the building a little confusing. The elevator bank for the offices is in the middle of the building lobby\, across from the waterfall sculpture. \nSchedule: 9:00 AM – Noon PST. \n  \nJoin us for a day of presentations on current VHL Research and treatment options\, along with the opportunity to meet with leading VHL Clinicians. Registration will open at 8:30 am! Lunch is included! \n  \nClick here to register now: https://vhl.app.neoncrm.com/np/clients/vhl/event.jsp?event=86& \n 
URL:https://vhl.org/vhla-event/vhl-connect-seattle/
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Family-Weekend-2025-Promo-University-of-Michigan-7.jpg
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DTSTART;TZID=America/New_York:20260807T170000
DTEND;TZID=America/New_York:20260809T143000
DTSTAMP:20260615T171735Z
CREATED:20260428T145054Z
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UID:10000144-1786122000-1786285800@vhl.org
SUMMARY:Family Weekend 2026
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n  \nWhen: August 7-9\, 2026 \nWhere: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \nRegistration Link: Click here to secure your spot today! \n  \nWhat to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n  \nWho Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n  \nWhether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL. \n  \nWant to attend but worried about the cost? Travel scholarships are available! We are pleased to offer travel reimbursement scholarships of *up to $500.00\, to be reimbursed on the final day of the event. Click here to apply before June 25th\, 2026. \n  \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! [EARLY BIRD PRICING EXTENDED TO JULY 1ST!] \n*Please note that every attendee must register for a ticket to secure their spot* \n					\n									Register Now!\n					\n															\n															\n																														 \nFamily Weekend is brought to you with support from: 
URL:https://vhl.org/vhla-event/family-weekend-2026/
LOCATION:Kimpton Everly Hotel\, 1800 Argyle Ave\, Los Angeles\, 90028\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/fam-weekend-promo.png
ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org
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DTSTART;VALUE=DATE:20261106
DTEND;VALUE=DATE:20261109
DTSTAMP:20260423T130204Z
CREATED:20260423T125305Z
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UID:10000142-1793923200-1794182399@vhl.org
SUMMARY:VHL Alliance Medical Symposium
DESCRIPTION:Advancing Research\, Treatment\, and Care for Von Hippel-Lindau Disease\nJoin leading researchers\, clinicians\, and advocates for groundbreaking discussions on VHL disease management and innovation. \n  \nThe 17th International VHL Medical Symposium\, hosted by the VHL Alliance and Mass General Brigham\, will bring scientists\, clinicians\, and advocates together for two days of collaboration\, idea exchange\, and thought leadership. \n  \nThis premier event features cutting-edge presentations\, collaborative workshops\, and networking opportunities designed to accelerate progress in understanding and treating VHL disease. \n  \nWhere: Boston\, MA \nWhen: Nov 6-8\, 2026 \n  \nThis biennial event\, hosted by the VHL Alliance\, is one of the most important gatherings in our field. It’s where researchers\, clinicians\, and advocates come together to share the latest discoveries\, explore emerging treatments\, and collaborate on what’s next for VHL care. \nWhether you’re a healthcare professional\, researcher\, or advocate\, this is your opportunity to be part of the conversations shaping the future of VHL. \n  \nWhat to expect: \n\nThe latest breakthroughs in VHL research and treatment\nInsights from leading global experts\nCollaborative discussions across disciplines\nOpportunities to connect with peers advancing VHL care\n\n\nAt the most recent symposium\, more than 200 experts gathered to exchange ideas and advance progress toward better outcomes for people living with VHL. \nThis year’s event builds on that momentum\, creating space for innovation\, collaboration\, and meaningful progress. Secure your spot today by clicking the button below! \n					\n									Register Now\n					\n					\n									Submit An Abstract\n					\n					\n									Visit the Symposium Website\n					\n																														 \n  \nExperience three days of comprehensive programming designed to advance VHL research\, improve patient outcomes\, and strengthen our global community. \n  \nVisit the Symposium Website by clicking here to learn more about the host committee\, hotel details for the event\, keynote speakers\, and more.  \n  \nRegistration is open now! \n  \nPatient Advocates & Students: $25 \nPostdocs & Residents: $50 \nScientists & Clinicians: $100 \nCorporate & Industry Rate: $1\,000
URL:https://vhl.org/vhla-event/vhl-alliance-medical-symposium/
LOCATION:Hyatt Regency Boston/Cambridge\, 575 Memorial Drive\, Cambridge\, MA\, 02139\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/04/iStock-801296936-copy.jpg
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