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DTSTART;VALUE=DATE:20250801
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UID:10000104-1754006400-1754265599@vhl.org
SUMMARY:Family Weekend 2025 | Ann Arbor\, Michigan
DESCRIPTION:Can you join us for VHL Family Weekend 2025? \n  \nWhen: August 1-3\, 2025 \nWhere: University of Michigan\, Ann Arbor\, MI \n  \nThe VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. This year\, we’re thrilled to partner with the University of Michigan to host the event in beautiful Ann Arbor. \n  \nWhat to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families with lived experience and supporters of the VHL community\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\n\n  \nWho Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n  \nWhether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL. \n  \nTickets are available for only $50 – Click here to secure your spot! \n  \n\nPlease note that we require a registration for every person who plans to attend Family Weekend\nYour ticket price includes a welcome dinner on Friday night and additional activities throughout the weekend!\n\n  \nFRIDAY \nCheck in at The Graduate\, 615 E. Huron St\, Ann Arbor\, MI 48104 (855-605-0316) \nWhen checking in\, please look for us in the hotel lobby. We’ll have a general schedule for you\, as well as your name badge for the weekend.  \n  \n“The Big House” Tour  \nTransportation to the UM Stadium will leave promptly from the hotel lobby at 4:30 PM.  The tour is approximately 1-1.5 hours long. Transportation to the stadium\, and onto the Welcome Tailgate will be provided. If you are staying at a different location\, are a local\, or prefer to use your own transportation\, please meet at the Jack Roth Stadium Club Entrance on the east side of the Stadium just north of Crisler Center. Please Note: The tour is at capacity so only those who confirmed their attendance will be admitted on the tour.  \n  \n6:30 PM Welcome Dinner Tailgate: BURNS PARK 1300 Baldwin Ave\, Ann Arbor\, MI 48104 (enter at the corner of Wells and Baldwin) \nTailgating fun begins at 6:30 PM. Traditional BBQ fixings\, and other snacks\, will kick off an evening of fun and community. If you attend the tour\, transportation to Burns Park will be provided.  \n**If you are not attending the tour\, but are attending the Welcome Tailgate\, pick-up will be at 6:10 outside The Graduate lobby.  Transportation will be provided to The Graduate at the conclusion of the event.** \n  \nSATURDAY \n8:30 AM University of Michigan: Palmer Commons 100 Washtenaw Ave\, Ann Arbor\, MI 48109\,  Great Lakes Room 4th Fl \n  \nTransportation will not be provided from The Graduate to the UM\, as it is within walking distance. However\, those who have noted mobility exceptions will be driven to Palmer Commons by staff\, and we will depart promptly at 8:15 AM.   \n  \nParking is available in the Palmer Drive Parking Structure. Parking vouchers will be provided.  \nA light breakfast will be provided from 8:30\, with presentations beginning at 9 AM. Youth will depart for their day of fun at approximately 9:45. (Please see below for detailed information on their schedule).  Please be aware that there will be photography\, video\, and seminar recording throughout the day. Presentations will conclude at 3:30 PM \n  \nKids programming\, Chaperoned by UM Genetic Counseling Program Volunteers; departing Palmer Commons at 9:45 AM \nKids 10 and under: \n10:00 Hands-On Museum of Ann Arbor\n12:15 Lunch\n12:45 University of Michigan Museum of Natural History\n1 PM Planetarium-The Sky Tonight\n2 PM (Optional) T-Rex\n3:30 Return to Palmer Commons \n  \nTeens:\n10:00 Launch Family Entertainment\n12:15 Lunch\n1:00 University of Michigan Museum of Natural History\n1 PM Planetarium-The Sky Tonight\n2 PM (Optional) T-Rex\n3:30 Return to Palmer Commons \n  \nSUNDAY \n9 AM The Graduate\, 615 E Huron\, Ann Arbor\, MI 48109 \n  \nThe day will begin with an optional 7:30 Yoga class on the terrace\, followed by the Community Breakfast at 9 AM.  We have a great lineup of speakers and sessions for the final morning of the event. We will conclude at Noon\, with a boxed lunch for your travels! \n  \nLodging: \nWe recommend staying at The Graduate hotel in Ann Arbor. \n  \n*Please note that we cannot guarantee that we can accommodate dietary requests received after July 7th* \n  \nMark your calendars\, and stay tuned for more details\, including the agenda and guest speakers. We can’t wait to see you there! \n  \nWant to attend VHL Family Weekend 2025 in Ann Arbor\, Michigan\, but worried about travel costs? We’re here to help! \nThe VHL Alliance is offering travel scholarships of up to $500 to help make this special weekend accessible to as many families as possible. Apply by June 12 to be considered. Click here to apply now! \n  \nPlease direct any questions about this event to info@vhl.org \n  \n      \n  \nThis event is brought to you with support from  \n  \n \n  \n \n  \n \n  \n \n 
URL:https://vhl.org/vhla-event/family-weekend-2025-ann-arbor-michigan/
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/10/Family-Weekend-2025-Promo-University-of-Michigan-3.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251206T080000
DTEND;TZID=America/New_York:20251206T140000
DTSTAMP:20251022T164920Z
CREATED:20251020T144931Z
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UID:10000127-1765008000-1765029600@vhl.org
SUMMARY:VHL Connect: Atlanta
DESCRIPTION:When: December 6\, 2025 | 8:30 AM – 2:00 PM ET \nWhere: Hilton Millennium Center\, Atlanta\n2301 Sullivan Rd\, College Park\, GA 30337 \nCost: $10 (includes lunch) \n  \nJoin the VHL Alliance in Atlanta for VHL Connect\, an in-person event designed to bring together people living with VHL\, their families\, and leading experts in the field. \n  \nManaging VHL can be complex – but you don’t have to do it alone. This event offers the chance to hear directly from clinicians and researchers who specialize in VHL care\, learn from others who are living with the condition\, and connect with the community that understands your journey. \n  \nHosted in partnership with the Georgia Cancer Center at Augusta University\, a VHL Alliance Clinical Care Center\, the day will include educational sessions\, open Q&A discussions\, and opportunities to share experiences in a supportive setting. Lunch and refreshments are included. \n  \nWhat to expect: \n\nUpdates and insights from VHL experts\nConversations with patients and caregivers\nGuidance on managing the emotional and practical sides of VHL\nTime to connect with others in the community over lunch\n\n  \nWhether you’re newly diagnosed or have been managing VHL for years\, VHL Connect: Atlanta is a chance to learn\, ask questions\, and connect with our community. \n  \nSpace is limited. Register today to join us for this day of connection and learning: https://vhl.app.neoncrm.com/np/clients/vhl/eventRegistration.jsp?event=81& \n  \n  \nThis event is brought to you with support from:  \n  \n \n 
URL:https://vhl.org/vhla-event/vhl-connect-atlanta/
LOCATION:Hilton Millennium Center\, 2301 Sullivan Rd\, College Park\, GA\, 30337\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/10/vhl-connect-atlanta.jpg
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DTSTART;TZID=America/Los_Angeles:20260321T090000
DTEND;TZID=America/Los_Angeles:20260321T120000
DTSTAMP:20260303T193637Z
CREATED:20260126T170233Z
LAST-MODIFIED:20260303T193637Z
UID:10000140-1774083600-1774094400@vhl.org
SUMMARY:VHL Connect | Seattle
DESCRIPTION:  \nJoin us for VHL Connect: Seattle on March 21st\, 2026! \n  \nDate: March 21st\, 2026 \nCost: $10 \nLocation: 255 South King Street\, 18th floor\, Seattle\, WA\, 98104. We will be in Slalom Hawk Tower on the 18th floor\, which is where the reception area is located. Note that there is a hotel connected to the building which can make locating the office part of the building a little confusing. The elevator bank for the offices is in the middle of the building lobby\, across from the waterfall sculpture. \nSchedule: 9:00 AM – Noon PST. \n  \nJoin us for a day of presentations on current VHL Research and treatment options\, along with the opportunity to meet with leading VHL Clinicians. Registration will open at 8:30 am! Lunch is included! \n  \nClick here to register now: https://vhl.app.neoncrm.com/np/clients/vhl/event.jsp?event=86& \n 
URL:https://vhl.org/vhla-event/vhl-connect-seattle/
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Family-Weekend-2025-Promo-University-of-Michigan-7.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260807T170000
DTEND;TZID=America/New_York:20260809T143000
DTSTAMP:20260615T171735Z
CREATED:20260428T145054Z
LAST-MODIFIED:20260615T171735Z
UID:10000144-1786122000-1786285800@vhl.org
SUMMARY:Family Weekend 2026
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n  \nWhen: August 7-9\, 2026 \nWhere: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \nRegistration Link: Click here to secure your spot today! \n  \nWhat to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n  \nWho Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n  \nWhether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL. \n  \nWant to attend but worried about the cost? Travel scholarships are available! We are pleased to offer travel reimbursement scholarships of *up to $500.00\, to be reimbursed on the final day of the event. Click here to apply before June 25th\, 2026. \n  \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! [EARLY BIRD PRICING EXTENDED TO JULY 1ST!] \n*Please note that every attendee must register for a ticket to secure their spot* \n					\n									Register Now!\n					\n															\n															\n																														 \nFamily Weekend is brought to you with support from: 
URL:https://vhl.org/vhla-event/family-weekend-2026/
LOCATION:Kimpton Everly Hotel\, 1800 Argyle Ave\, Los Angeles\, 90028\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/fam-weekend-promo.png
ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261106
DTEND;VALUE=DATE:20261109
DTSTAMP:20260423T130204Z
CREATED:20260423T125305Z
LAST-MODIFIED:20260423T130204Z
UID:10000142-1793923200-1794182399@vhl.org
SUMMARY:VHL Alliance Medical Symposium
DESCRIPTION:Advancing Research\, Treatment\, and Care for Von Hippel-Lindau Disease\nJoin leading researchers\, clinicians\, and advocates for groundbreaking discussions on VHL disease management and innovation. \n  \nThe 17th International VHL Medical Symposium\, hosted by the VHL Alliance and Mass General Brigham\, will bring scientists\, clinicians\, and advocates together for two days of collaboration\, idea exchange\, and thought leadership. \n  \nThis premier event features cutting-edge presentations\, collaborative workshops\, and networking opportunities designed to accelerate progress in understanding and treating VHL disease. \n  \nWhere: Boston\, MA \nWhen: Nov 6-8\, 2026 \n  \nThis biennial event\, hosted by the VHL Alliance\, is one of the most important gatherings in our field. It’s where researchers\, clinicians\, and advocates come together to share the latest discoveries\, explore emerging treatments\, and collaborate on what’s next for VHL care. \nWhether you’re a healthcare professional\, researcher\, or advocate\, this is your opportunity to be part of the conversations shaping the future of VHL. \n  \nWhat to expect: \n\nThe latest breakthroughs in VHL research and treatment\nInsights from leading global experts\nCollaborative discussions across disciplines\nOpportunities to connect with peers advancing VHL care\n\n\nAt the most recent symposium\, more than 200 experts gathered to exchange ideas and advance progress toward better outcomes for people living with VHL. \nThis year’s event builds on that momentum\, creating space for innovation\, collaboration\, and meaningful progress. Secure your spot today by clicking the button below! \n					\n									Register Now\n					\n					\n									Submit An Abstract\n					\n					\n									Visit the Symposium Website\n					\n																														 \n  \nExperience three days of comprehensive programming designed to advance VHL research\, improve patient outcomes\, and strengthen our global community. \n  \nVisit the Symposium Website by clicking here to learn more about the host committee\, hotel details for the event\, keynote speakers\, and more.  \n  \nRegistration is open now! \n  \nPatient Advocates & Students: $25 \nPostdocs & Residents: $50 \nScientists & Clinicians: $100 \nCorporate & Industry Rate: $1\,000
URL:https://vhl.org/vhla-event/vhl-alliance-medical-symposium/
LOCATION:Hyatt Regency Boston/Cambridge\, 575 Memorial Drive\, Cambridge\, MA\, 02139\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/04/iStock-801296936-copy.jpg
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