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X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20260308T070000
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DTSTART:20261101T060000
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DTSTART;TZID=America/New_York:20261005T200000
DTEND;TZID=America/New_York:20261005T210000
DTSTAMP:20260709T194938
CREATED:20260617T152529Z
LAST-MODIFIED:20260617T152529Z
UID:10000147-1791230400-1791234000@vhl.org
SUMMARY:October 5th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nWhat I Wish Others Understood About VHL\nDiscussing common misconceptions about VHL and sharing ways to help friends\, family\, healthcare providers\, and others better understand the realities of living with the condition. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/october-5th-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/October-5-2026-What-I-Wish-Others-Understood-About-VHL.png
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