BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
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BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
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TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260706T200000
DTEND;TZID=America/New_York:20260706T210000
DTSTAMP:20260618T153343
CREATED:20260108T163201Z
LAST-MODIFIED:20260108T163201Z
UID:10000133-1783368000-1783371600@vhl.org
SUMMARY:July 6th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nFinancial and Practical Planning\nAddressing work\, insurance\, medical bills\, disability resources\, and other practical challenges. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/july-6-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/July-6-2026-Financial-Practical-Planning.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260803T200000
DTEND;TZID=America/New_York:20260803T210000
DTSTAMP:20260618T153343
CREATED:20260617T152305Z
LAST-MODIFIED:20260617T152305Z
UID:10000145-1785787200-1785790800@vhl.org
SUMMARY:August 3rd Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nTraveling and Exploring with Confidence\nSharing strategies for planning trips\, managing medical needs on the go\, and adapting to unexpected challenges while continuing to explore and enjoy life. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/aug-3-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/August-3-2026-Traveling-and-Exploring-with-Confidence.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260914T200000
DTEND;TZID=America/New_York:20260914T210000
DTSTAMP:20260618T153343
CREATED:20260617T152435Z
LAST-MODIFIED:20260617T152435Z
UID:10000146-1789416000-1789419600@vhl.org
SUMMARY:September 14th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. *Please note that this call has been pushed back one week due to the holiday! \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nFinding Meaning and Purpose Through Change\nExploring how goals\, priorities\, and personal identity evolve over time\, and how we can continue pursuing a full life when life doesn’t go according to plan. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/sept-14-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/September-14-2026-moved-from-Sept-7-—-Labor-Day-Finding-Meaning-and-Purpose-Through-Change.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261005T200000
DTEND;TZID=America/New_York:20261005T210000
DTSTAMP:20260618T153343
CREATED:20260617T152529Z
LAST-MODIFIED:20260617T152529Z
UID:10000147-1791230400-1791234000@vhl.org
SUMMARY:October 5th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nWhat I Wish Others Understood About VHL\nDiscussing common misconceptions about VHL and sharing ways to help friends\, family\, healthcare providers\, and others better understand the realities of living with the condition. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/october-5th-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/October-5-2026-What-I-Wish-Others-Understood-About-VHL.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261102T200000
DTEND;TZID=America/New_York:20261102T210000
DTSTAMP:20260618T153343
CREATED:20260617T152626Z
LAST-MODIFIED:20260617T152638Z
UID:10000148-1793649600-1793653200@vhl.org
SUMMARY:November 2nd Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nNavigating Independence and Asking for Help\nDiscussing the balance between self-sufficiency and accepting support\, including how patients and caregivers can communicate needs effectively. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/nov-2-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/November-2-2026-Navigating-Independence-and-Asking-for-Help.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261207T200000
DTEND;TZID=America/New_York:20261207T210000
DTSTAMP:20260618T153343
CREATED:20260617T152732Z
LAST-MODIFIED:20260617T152732Z
UID:10000149-1796673600-1796677200@vhl.org
SUMMARY:December 7th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nTraditions\, Holidays\, and Special Occasions with VHL\nSharing experiences and strategies for navigating family gatherings\, travel\, celebrations\, and expectations during special times of the year. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/dec-7-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/December-7-2026-Traditions-Holidays-and-Special-Occasions-with-VHL.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270104T200000
DTEND;TZID=America/New_York:20270104T210000
DTSTAMP:20260618T153343
CREATED:20260617T152827Z
LAST-MODIFIED:20260617T152827Z
UID:10000150-1799092800-1799096400@vhl.org
SUMMARY:January 4th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLessons Learned: Wisdom from the VHL Journey\nA reflective discussion on personal growth\, unexpected strengths\, helpful perspectives\, and advice participants would share with someone newly diagnosed or new to caregiving. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/jan-4-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/January-4-2027-Lessons-Learned_-Wisdom-from-the-VHL-Journey.png
END:VEVENT
END:VCALENDAR