BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260105T200000
DTEND;TZID=America/New_York:20260105T210000
DTSTAMP:20260619T141557
CREATED:20250725T134435Z
LAST-MODIFIED:20250725T134435Z
UID:10000125-1767643200-1767646800@vhl.org
SUMMARY:January Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLiving fully with VHL – celebrating small wins\, changing directions\, adapting goals \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/jan-patient-caregiver-call-2026/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/jan-5th-2025-living-fully-with-VHL-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260202T200000
DTEND;TZID=America/New_York:20260202T210000
DTSTAMP:20260619T141557
CREATED:20260108T162529Z
LAST-MODIFIED:20260108T162529Z
UID:10000128-1770062400-1770066000@vhl.org
SUMMARY:February 2nd Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nCoping with Uncertainty and the Future\nFocusing on managing the unpredictability of VHL\, planning for medical and life uncertainties\, and strategies to stay grounded while facing long-term challenges. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/feb-2-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Feb-2-2026-Coping-with-uncertainty-and-the-future.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260302T200000
DTEND;TZID=America/New_York:20260302T210000
DTSTAMP:20260619T141557
CREATED:20260108T162704Z
LAST-MODIFIED:20260108T162704Z
UID:10000129-1772481600-1772485200@vhl.org
SUMMARY:March 2nd Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nPain Management and Symptom Support\nPractical tools for coping with physical symptoms\, fatigue\, or pain\, and ways you and your caregivers can support day-to-day comfort and quality of life. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/march-2nd-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/March-2nd-2026-Pain-Management-Symptom-Supprt.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260406T200000
DTEND;TZID=America/New_York:20260406T210000
DTSTAMP:20260619T141557
CREATED:20260108T162806Z
LAST-MODIFIED:20260108T162806Z
UID:10000130-1775505600-1775509200@vhl.org
SUMMARY:April 6th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nBuilding Sustainable Routines\nTips and strategies for structuring routines that conserve energy\, reduce stress\, and making room for meaningful activities without overexertion. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/april-6-patient-caregiver-call-2/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/April-6-2026-Building-Sustainable-Routines.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T200000
DTEND;TZID=America/New_York:20260504T210000
DTSTAMP:20260619T141557
CREATED:20260108T162928Z
LAST-MODIFIED:20260108T162928Z
UID:10000131-1777924800-1777928400@vhl.org
SUMMARY:May 4th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nSustaining Yourself While Caring for Others\nPractical strategies for managing stress\, avoiding burnout\, and keeping your own life and goals in focus. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/may-4th-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/May4-2026-Sustaining-Yourself-While-Caring-For-Others.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260601T200000
DTEND;TZID=America/New_York:20260601T210000
DTSTAMP:20260619T141558
CREATED:20260108T163035Z
LAST-MODIFIED:20260108T163035Z
UID:10000132-1780344000-1780347600@vhl.org
SUMMARY:June 1st Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nCommunication and Advocacy in Healthcare Settings\nDeepening skills in communicating effectively with doctors\, navigating appointments\, and making shared decisions\, especially for patients and caregivers working as a team. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/june-1-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/June-1-2026-Communication-Advocacy-in-Healthcare-Settings.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260706T200000
DTEND;TZID=America/New_York:20260706T210000
DTSTAMP:20260619T141558
CREATED:20260108T163201Z
LAST-MODIFIED:20260108T163201Z
UID:10000133-1783368000-1783371600@vhl.org
SUMMARY:July 6th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nFinancial and Practical Planning\nAddressing work\, insurance\, medical bills\, disability resources\, and other practical challenges. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/july-6-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/July-6-2026-Financial-Practical-Planning.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260803T200000
DTEND;TZID=America/New_York:20260803T210000
DTSTAMP:20260619T141558
CREATED:20260617T152305Z
LAST-MODIFIED:20260617T152305Z
UID:10000145-1785787200-1785790800@vhl.org
SUMMARY:August 3rd Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nTraveling and Exploring with Confidence\nSharing strategies for planning trips\, managing medical needs on the go\, and adapting to unexpected challenges while continuing to explore and enjoy life. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/aug-3-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/August-3-2026-Traveling-and-Exploring-with-Confidence.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260914T200000
DTEND;TZID=America/New_York:20260914T210000
DTSTAMP:20260619T141558
CREATED:20260617T152435Z
LAST-MODIFIED:20260617T152435Z
UID:10000146-1789416000-1789419600@vhl.org
SUMMARY:September 14th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. *Please note that this call has been pushed back one week due to the holiday! \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nFinding Meaning and Purpose Through Change\nExploring how goals\, priorities\, and personal identity evolve over time\, and how we can continue pursuing a full life when life doesn’t go according to plan. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/sept-14-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/September-14-2026-moved-from-Sept-7-—-Labor-Day-Finding-Meaning-and-Purpose-Through-Change.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261005T200000
DTEND;TZID=America/New_York:20261005T210000
DTSTAMP:20260619T141558
CREATED:20260617T152529Z
LAST-MODIFIED:20260617T152529Z
UID:10000147-1791230400-1791234000@vhl.org
SUMMARY:October 5th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nWhat I Wish Others Understood About VHL\nDiscussing common misconceptions about VHL and sharing ways to help friends\, family\, healthcare providers\, and others better understand the realities of living with the condition. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/october-5th-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/October-5-2026-What-I-Wish-Others-Understood-About-VHL.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261102T200000
DTEND;TZID=America/New_York:20261102T210000
DTSTAMP:20260619T141558
CREATED:20260617T152626Z
LAST-MODIFIED:20260617T152638Z
UID:10000148-1793649600-1793653200@vhl.org
SUMMARY:November 2nd Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nNavigating Independence and Asking for Help\nDiscussing the balance between self-sufficiency and accepting support\, including how patients and caregivers can communicate needs effectively. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/nov-2-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/November-2-2026-Navigating-Independence-and-Asking-for-Help.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261207T200000
DTEND;TZID=America/New_York:20261207T210000
DTSTAMP:20260619T141558
CREATED:20260617T152732Z
LAST-MODIFIED:20260617T152732Z
UID:10000149-1796673600-1796677200@vhl.org
SUMMARY:December 7th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nTraditions\, Holidays\, and Special Occasions with VHL\nSharing experiences and strategies for navigating family gatherings\, travel\, celebrations\, and expectations during special times of the year. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/dec-7-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/December-7-2026-Traditions-Holidays-and-Special-Occasions-with-VHL.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270104T200000
DTEND;TZID=America/New_York:20270104T210000
DTSTAMP:20260619T141558
CREATED:20260617T152827Z
LAST-MODIFIED:20260617T152827Z
UID:10000150-1799092800-1799096400@vhl.org
SUMMARY:January 4th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLessons Learned: Wisdom from the VHL Journey\nA reflective discussion on personal growth\, unexpected strengths\, helpful perspectives\, and advice participants would share with someone newly diagnosed or new to caregiving. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/jan-4-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/January-4-2027-Lessons-Learned_-Wisdom-from-the-VHL-Journey.png
END:VEVENT
END:VCALENDAR