VHL Alliance

August 3rd Patient/Caregiver Call
2026-08-03 20:00 - 21:00 (America/New_York) | Zoom / Online
First Monday of every month.

All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!

This facilitated call takes place on the first Monday of every month at 8 PM ET.

Call topic:
Traveling and Exploring with Confidence
Sharing strategies for planning trips, managing medical needs on the go, and adapting to unexpected challenges while continuing to explore and enjoy life.

If you would like to join the call list please click here to register.

September 14th Patient/Caregiver Call
2026-09-14 20:00 - 21:00
First Monday of every month. *Please note that this call has been pushed back one week due to the holiday!

All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!

This facilitated call takes place on the first Monday of every month at 8 PM ET.

Call topic:
Finding Meaning and Purpose Through Change
Exploring how goals, priorities, and personal identity evolve over time, and how we can continue pursuing a full life when life doesn’t go according to plan.

If you would like to join the call list please click here to register.

October 5th Patient/Caregiver Call
2026-10-05 20:00 - 21:00
First Monday of every month.

All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!

This facilitated call takes place on the first Monday of every month at 8 PM ET.

Call topic:
What I Wish Others Understood About VHL
Discussing common misconceptions about VHL and sharing ways to help friends, family, healthcare providers, and others better understand the realities of living with the condition.

If you would like to join the call list please click here to register.

November 2nd Patient/Caregiver Call
2026-11-02 20:00 - 21:00
First Monday of every month.

All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!

This facilitated call takes place on the first Monday of every month at 8 PM ET.

Call topic:
Navigating Independence and Asking for Help
Discussing the balance between self-sufficiency and accepting support, including how patients and caregivers can communicate needs effectively.

If you would like to join the call list please click here to register.

December 7th Patient/Caregiver Call
2026-12-07 20:00 - 21:00
First Monday of every month.

All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!

This facilitated call takes place on the first Monday of every month at 8 PM ET.

Call topic:
Traditions, Holidays, and Special Occasions with VHL
Sharing experiences and strategies for navigating family gatherings, travel, celebrations, and expectations during special times of the year.

If you would like to join the call list please click here to register.

January 4th Patient/Caregiver Call
2027-01-04 20:00 - 21:00
First Monday of every month.

All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!

This facilitated call takes place on the first Monday of every month at 8 PM ET.

Call topic:
Lessons Learned: Wisdom from the VHL Journey
A reflective discussion on personal growth, unexpected strengths, helpful perspectives, and advice participants would share with someone newly diagnosed or new to caregiving.

If you would like to join the call list please click here to register.
