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PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN
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METHOD:PUBLISH
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
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BEGIN:VTIMEZONE
TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20230312T070000
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DTSTART:20231105T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230302T190000
DTEND;TZID=America/New_York:20230302T200000
DTSTAMP:20260425T051414
CREATED:20230123T203835Z
LAST-MODIFIED:20230124T180317Z
UID:10000013-1677783600-1677787200@vhl.org
SUMMARY:New Patient / Caregiver Cohort Program
DESCRIPTION:  \nRecently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to… \n  \n\nMeet other VHL patients and caregivers and developed a personal support network\nLearn more about VHL disease from VHL experts\nLearn about the VHL Surveillance Guidelines and why they are important\nLearn about the importance of VHL-experienced clinical care and the CCC program\nLearn about resilience\, how to practice self-care and where to find support\nLearn how to be a better self-advocate and share your story\nLearn where to find available VHLA and external resources\nLearn how to get involved with VHLA and contribute to the VHL community\n\n  \nWeek 1 (February 23rd) – Welcome and What is VHL? \n\nWelcome and introductions\nVHL 101 and Research Discussion\n\n  \nWeek 2 (March 2nd) – Self-Care\, Self-Advocacy\, and Support \n\nWhat is self-care and why is it important?\nDealing with Stress and Anxiety\nFacing adversity and fostering resilience\nBeing a self-advocate\n“Elevator Pitch” – Communicating with those around you\n\n  \nWeek 3 (March 9th) – VHL Veterans Panel \n\nPanel discussion with VHL patients – “Ask the VHL Veterans”\n\n  \nWeek 4 (March 16th) – Available Resources and Getting Involved \n\nHow to find available resources\nVHLA resources\nExternal resources\nVolunteer opportunities\nUpcoming Events\nFeedback\n\n  \n  \nRegister Here
URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-02/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230309T190000
DTEND;TZID=America/New_York:20230309T200000
DTSTAMP:20260425T051414
CREATED:20230123T203835Z
LAST-MODIFIED:20230124T180317Z
UID:10000014-1678388400-1678392000@vhl.org
SUMMARY:New Patient / Caregiver Cohort Program
DESCRIPTION:  \nRecently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to… \n  \n\nMeet other VHL patients and caregivers and developed a personal support network\nLearn more about VHL disease from VHL experts\nLearn about the VHL Surveillance Guidelines and why they are important\nLearn about the importance of VHL-experienced clinical care and the CCC program\nLearn about resilience\, how to practice self-care and where to find support\nLearn how to be a better self-advocate and share your story\nLearn where to find available VHLA and external resources\nLearn how to get involved with VHLA and contribute to the VHL community\n\n  \nWeek 1 (February 23rd) – Welcome and What is VHL? \n\nWelcome and introductions\nVHL 101 and Research Discussion\n\n  \nWeek 2 (March 2nd) – Self-Care\, Self-Advocacy\, and Support \n\nWhat is self-care and why is it important?\nDealing with Stress and Anxiety\nFacing adversity and fostering resilience\nBeing a self-advocate\n“Elevator Pitch” – Communicating with those around you\n\n  \nWeek 3 (March 9th) – VHL Veterans Panel \n\nPanel discussion with VHL patients – “Ask the VHL Veterans”\n\n  \nWeek 4 (March 16th) – Available Resources and Getting Involved \n\nHow to find available resources\nVHLA resources\nExternal resources\nVolunteer opportunities\nUpcoming Events\nFeedback\n\n  \n  \nRegister Here
URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-09/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230316T190000
DTEND;TZID=America/New_York:20230316T200000
DTSTAMP:20260425T051414
CREATED:20230123T203835Z
LAST-MODIFIED:20230124T180317Z
UID:10000015-1678993200-1678996800@vhl.org
SUMMARY:New Patient / Caregiver Cohort Program
DESCRIPTION:  \nRecently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to… \n  \n\nMeet other VHL patients and caregivers and developed a personal support network\nLearn more about VHL disease from VHL experts\nLearn about the VHL Surveillance Guidelines and why they are important\nLearn about the importance of VHL-experienced clinical care and the CCC program\nLearn about resilience\, how to practice self-care and where to find support\nLearn how to be a better self-advocate and share your story\nLearn where to find available VHLA and external resources\nLearn how to get involved with VHLA and contribute to the VHL community\n\n  \nWeek 1 (February 23rd) – Welcome and What is VHL? \n\nWelcome and introductions\nVHL 101 and Research Discussion\n\n  \nWeek 2 (March 2nd) – Self-Care\, Self-Advocacy\, and Support \n\nWhat is self-care and why is it important?\nDealing with Stress and Anxiety\nFacing adversity and fostering resilience\nBeing a self-advocate\n“Elevator Pitch” – Communicating with those around you\n\n  \nWeek 3 (March 9th) – VHL Veterans Panel \n\nPanel discussion with VHL patients – “Ask the VHL Veterans”\n\n  \nWeek 4 (March 16th) – Available Resources and Getting Involved \n\nHow to find available resources\nVHLA resources\nExternal resources\nVolunteer opportunities\nUpcoming Events\nFeedback\n\n  \n  \nRegister Here
URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-16/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
END:VEVENT
END:VCALENDAR