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X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
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TZID:America/New_York
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TZOFFSETFROM:-0500
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DTSTART:20260308T070000
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DTSTART:20261101T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261106
DTEND;VALUE=DATE:20261109
DTSTAMP:20260617T043433
CREATED:20260423T125305Z
LAST-MODIFIED:20260423T130204Z
UID:10000142-1793923200-1794182399@vhl.org
SUMMARY:VHL Alliance Medical Symposium
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease.   When: August 7-9\, 2026 Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States Click here to secure a discounted room at the Everly Hotel. Registration Link: Click here to secure your spot today!   What to Expect: Educational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.Community Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.Interactive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.Kid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.A dedicated Young Adult track for VHLers between the ages of 21 and 35 Who Should Attend: Individuals and families living with VHLMedical professionals and researchersCaregivers\, advocates\, and supporters Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.   Want to attend but worried about the cost? Travel scholarships are available! We are pleased to offer travel reimbursement scholarships of *up to $500.00\, to be reimbursed on the final day of the event. Click here to apply before June 25th\, 2026.   Early bird tickets are available for only $25 if you register before June 1st\, 2026! [EARLY BIRD PRICING EXTENDED TO JULY 1ST!] *Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!\n					\n					\n				\n								\n				\n		\n				\n				\n																														\n				\n				\n				\n																														\n				\n				\n				\n																														\n				\n				\n				\n				\n							\n			\n		\n						\n				\n				\n				\n									Family Weekend is brought to you with support from: 
URL:https://vhl.org/vhla-event/vhl-alliance-medical-symposium/
LOCATION:Hyatt Regency Boston/Cambridge\, 575 Memorial Drive\, Cambridge\, MA\, 02139\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/04/iStock-801296936-copy.jpg
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