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DTSTART;TZID=America/New_York:20241104T200000
DTEND;TZID=America/New_York:20241104T210000
DTSTAMP:20260429T032034
CREATED:20240605T170843Z
LAST-MODIFIED:20240605T170843Z
UID:10000077-1730750400-1730754000@vhl.org
SUMMARY:November Patient/Caregiver Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/nov-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Nov-4th-Learn-to-understand-what-truly-matters-to-you-to-create-a-rich-life.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241113T193000
DTEND;TZID=America/New_York:20241113T203000
DTSTAMP:20260429T032034
CREATED:20240605T173649Z
LAST-MODIFIED:20241024T134217Z
UID:10000089-1731526200-1731529800@vhl.org
SUMMARY:November Low/No Vision Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/nov-low-no-vision-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/prepping-for-disaster-with-blindness.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241114T183000
DTEND;TZID=America/New_York:20241114T193000
DTSTAMP:20260429T032034
CREATED:20241008T141354Z
LAST-MODIFIED:20241008T150006Z
UID:10000103-1731609000-1731612600@vhl.org
SUMMARY:Advances in VHL Disease and HIF2a Inhibitors: Insights from Recent Research with Othon Iliopoulos\, MD\, PhD
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/advances-in-vhl-disease-and-hif2a-inhibitors-insights-from-recent-research-with-othon-iliopoulos-md-phd/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/10/VHL-101-Research-Update-with-Othon-Iliopoulos-MD.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241118T200000
DTEND;TZID=America/New_York:20241118T210000
DTSTAMP:20260429T032034
CREATED:20240605T193817Z
LAST-MODIFIED:20240605T193817Z
UID:10000099-1731960000-1731963600@vhl.org
SUMMARY:November Parents of VHL Patients Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/november-parents-of-vhl-patients-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Nov-17-Increase-your-wellbeing-by-increasing-your-sense-of-happiness-in-stressful-circumstances.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241209T200000
DTEND;TZID=America/New_York:20241209T210000
DTSTAMP:20260429T032034
CREATED:20240605T170950Z
LAST-MODIFIED:20241104T155405Z
UID:10000078-1733774400-1733778000@vhl.org
SUMMARY:December Patient/Caregiver Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/dec-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Dec-2-Creating-healthy-relationships-with-good-communication-skills.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241211T193000
DTEND;TZID=America/New_York:20241211T203000
DTSTAMP:20260429T032034
CREATED:20240605T173747Z
LAST-MODIFIED:20240605T173747Z
UID:10000090-1733945400-1733949000@vhl.org
SUMMARY:December Low/No Vision Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/dec-low-no-vision-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Dec-11-Holidays-and-all-that-comes-with-them-chores-family-etc.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250106T200000
DTEND;TZID=America/New_York:20250106T210000
DTSTAMP:20260429T032034
CREATED:20240605T171041Z
LAST-MODIFIED:20240605T171200Z
UID:10000079-1736193600-1736197200@vhl.org
SUMMARY:January Patient/Caregiver Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/jan-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Jan-6-How-to-navigate-the-incessant-thoughts-that-weigh-us-down.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250108T193000
DTEND;TZID=America/New_York:20250108T203000
DTSTAMP:20260429T032034
CREATED:20240605T173900Z
LAST-MODIFIED:20240605T173900Z
UID:10000091-1736364600-1736368200@vhl.org
SUMMARY:January Low/No Vision Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/jan-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Jan-8-How-do-we-stand-up-for-ourselves-and-each-other.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250120T200000
DTEND;TZID=America/New_York:20250120T210000
DTSTAMP:20260429T032034
CREATED:20240605T193911Z
LAST-MODIFIED:20240605T193911Z
UID:10000100-1737403200-1737406800@vhl.org
SUMMARY:January Parents of VHL Patients Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/jan-parents-of-vhl-patients-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Jan-19-How-to-increase-positive-emotions-in-your-child-and-lessen-negative-emotions.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250203T200000
DTEND;TZID=America/New_York:20250203T210000
DTSTAMP:20260429T032034
CREATED:20240605T171144Z
LAST-MODIFIED:20240605T171144Z
UID:10000080-1738612800-1738616400@vhl.org
SUMMARY:February Patient/Caregiver Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/feb-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Feb-3rd-Three-ways-to-be-more-resilient.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250212T193000
DTEND;TZID=America/New_York:20250212T203000
DTSTAMP:20260429T032034
CREATED:20240605T173959Z
LAST-MODIFIED:20240605T173959Z
UID:10000092-1739388600-1739392200@vhl.org
SUMMARY:February Low/No Vision Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/feb-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Feb-12-What-two-things-does-blindness-make-most-difficult-for-you.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250303
DTSTAMP:20260429T032034
CREATED:20241113T150928Z
LAST-MODIFIED:20241113T154814Z
UID:10000105-1740700800-1740959999@vhl.org
SUMMARY:VHL Alliance Young Adult Retreat | Phoenix\, AZ
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/vhl-alliance-young-adult-retreat-phoenix-az/
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/11/YAR-2025-Promo-Image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250303T200000
DTEND;TZID=America/New_York:20250303T210000
DTSTAMP:20260429T032034
CREATED:20240605T171257Z
LAST-MODIFIED:20240605T171257Z
UID:10000081-1741032000-1741035600@vhl.org
SUMMARY:March Patient/Caregiver Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/mar-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/March-3-Learn-mindfulness-techniques-to-reduce-constant-pain.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250312T193000
DTEND;TZID=America/New_York:20250312T203000
DTSTAMP:20260429T032034
CREATED:20240605T174126Z
LAST-MODIFIED:20240605T174126Z
UID:10000093-1741807800-1741811400@vhl.org
SUMMARY:March Low/No Vision Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/march-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/March-12-How-does-blindness-and-VHL-effect-our-closest-relationships.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250317T200000
DTEND;TZID=America/New_York:20250317T210000
DTSTAMP:20260429T032034
CREATED:20240605T194005Z
LAST-MODIFIED:20240605T194025Z
UID:10000101-1742241600-1742245200@vhl.org
SUMMARY:March Parents of VHL Patients Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/march-parents-of-vhl-patients-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Mar-16-Creating-healthy-relationships-with-good-communication-skills.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T200000
DTEND;TZID=America/New_York:20250407T210000
DTSTAMP:20260429T032034
CREATED:20240605T171401Z
LAST-MODIFIED:20240605T171401Z
UID:10000082-1744056000-1744059600@vhl.org
SUMMARY:April Patient/Caregiver Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/april-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/April-7-How-to-navigate-the-vulnerability-of-VHL.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250409T193000
DTEND;TZID=America/New_York:20250409T203000
DTSTAMP:20260429T032034
CREATED:20240605T174240Z
LAST-MODIFIED:20240605T174240Z
UID:10000094-1744227000-1744230600@vhl.org
SUMMARY:April Low/No Vision Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/april-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/April-9th-What-stories-do-you-tell-yourself-about-your-illness-your-disability-yourself.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250503T090000
DTEND;TZID=America/New_York:20250503T140000
DTSTAMP:20260429T032034
CREATED:20250310T180151Z
LAST-MODIFIED:20250310T180900Z
UID:10000107-1746262800-1746280800@vhl.org
SUMMARY:VHL Connect | MD Anderson
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/vhl-connect-md-anderson/
LOCATION:MD Anderson\, 1515 Holcombe Blvd.\, Houston\, TX\, 77030\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/03/3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250505T200000
DTEND;TZID=America/New_York:20250505T210000
DTSTAMP:20260429T032034
CREATED:20240605T171458Z
LAST-MODIFIED:20240605T171458Z
UID:10000083-1746475200-1746478800@vhl.org
SUMMARY:May Patient/Caregiver Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/may-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/May-5-Create-healthy-boundaries-to-increase-your-health.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250514T193000
DTEND;TZID=America/New_York:20250514T203000
DTSTAMP:20260429T032034
CREATED:20240605T174344Z
LAST-MODIFIED:20240605T174344Z
UID:10000095-1747251000-1747254600@vhl.org
SUMMARY:May Low/No Vision Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/may-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/May-14-Decision-Fatigue.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250516T100000
DTEND;TZID=America/New_York:20250516T140000
DTSTAMP:20260429T032034
CREATED:20250310T175631Z
LAST-MODIFIED:20250502T143624Z
UID:10000106-1747389600-1747404000@vhl.org
SUMMARY:VHL Connect | Penn Medicine
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/vhl-connect-penn-medicine/
LOCATION:Penn Medicine\, 3400 Civic Center Blvd\, Philadelphia\, PA\, 19104\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/03/2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250519T200000
DTEND;TZID=America/New_York:20250519T210000
DTSTAMP:20260429T032034
CREATED:20240605T194133Z
LAST-MODIFIED:20240605T194133Z
UID:10000102-1747684800-1747688400@vhl.org
SUMMARY:May Parents of VHL Patients Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/may-parents-of-vhl-patients-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/May-18-How-to-navigate-the-challenging-emotions-that-come-with-having-a-child-with-chronic-disease.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250531T100000
DTEND;TZID=America/Denver:20250531T140000
DTSTAMP:20260429T032035
CREATED:20250423T194555Z
LAST-MODIFIED:20250502T143505Z
UID:10000108-1748685600-1748700000@vhl.org
SUMMARY:VHL Connect | Huntsman Cancer Institute
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/vhl-connect-huntsman-cancer-institute/
LOCATION:Huntsman Cancer Institute\, 1950 Circle of Hope\, Salt Lake City\, UT\, 84112\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/04/Family-Weekend-2025-Promo-University-of-Michigan-4.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250602T200000
DTEND;TZID=America/New_York:20250602T210000
DTSTAMP:20260429T032035
CREATED:20240605T171608Z
LAST-MODIFIED:20240605T171608Z
UID:10000084-1748894400-1748898000@vhl.org
SUMMARY:June Patient/Caregiver Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/june-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/June-2-Learn-how-to-ask-for-help-with-less-guilt.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250609T190000
DTEND;TZID=America/New_York:20250609T190000
DTSTAMP:20260429T032035
CREATED:20250521T141328Z
LAST-MODIFIED:20250527T190641Z
UID:10000110-1749495600-1749495600@vhl.org
SUMMARY:Charla Informativa con Dr. Alejandro Sanchez sobre Von Hippel-Lindau\, con Preguntas y Respuestas  | VHL Informational Session and Q&A with Dr. Alejandro Sanchez [IN SPANISH]
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/charla-informativa-con-dr-alejandro-sanchez-sobre-von-hippel-lindau-con-preguntas-y-respuestas-vhl-informational-session-and-qa-with-dr-alejandro-sanchez-in-spanish/
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/05/Spanish-webinar-promo-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250611T193000
DTEND;TZID=America/New_York:20250611T203000
DTSTAMP:20260429T032035
CREATED:20240605T174457Z
LAST-MODIFIED:20240605T174457Z
UID:10000096-1749670200-1749673800@vhl.org
SUMMARY:June Low/No Vision Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/june-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/June-11-What-are-your-worries-related-to-VHL-_-vision-loss-and-how-do-you-handle-them.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250614T090000
DTEND;TZID=America/New_York:20250614T130000
DTSTAMP:20260429T032035
CREATED:20250429T084039Z
LAST-MODIFIED:20250502T143416Z
UID:10000109-1749891600-1749906000@vhl.org
SUMMARY:VHL Connect | Mass General
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/vhl-connect-mass-general/
LOCATION:Mass General\, 185 Cambridge St\, Boston\, MA\, 02114\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/04/vhl-connect-boston.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250707T200000
DTEND;TZID=America/New_York:20250707T210000
DTSTAMP:20260429T032035
CREATED:20250630T191620Z
LAST-MODIFIED:20250630T191640Z
UID:10000111-1751918400-1751922000@vhl.org
SUMMARY:July Patient/Caregiver Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/july-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/06/build-a-support-network-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250709T193000
DTEND;TZID=America/New_York:20250709T203000
DTSTAMP:20260429T032035
CREATED:20250701T192832Z
LAST-MODIFIED:20250701T192832Z
UID:10000112-1752089400-1752093000@vhl.org
SUMMARY:July Low/No Vision Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/july-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/Decision-Fatigue-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250801
DTEND;VALUE=DATE:20250804
DTSTAMP:20260429T032035
CREATED:20241028T172715Z
LAST-MODIFIED:20250721T164225Z
UID:10000104-1754006400-1754265599@vhl.org
SUMMARY:Family Weekend 2025 | Ann Arbor\, Michigan
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/family-weekend-2025-ann-arbor-michigan/
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/10/Family-Weekend-2025-Promo-University-of-Michigan-3.jpg
END:VEVENT
END:VCALENDAR