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X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
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TZID:America/New_York
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TZOFFSETFROM:-0500
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DTSTART:20230312T070000
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DTSTART:20231105T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230123T200000
DTEND;TZID=America/New_York:20230123T210000
DTSTAMP:20260406T052726
CREATED:20221230T141306Z
LAST-MODIFIED:20230324T154002Z
UID:10000006-1674504000-1674507600@vhl.org
SUMMARY:Parents of VHL Patients Call
DESCRIPTION:Third Monday of every other month (Delayed 1 week in Jan. due to MLK Day) \nPlease join us on the third Monday every other month to discuss how we can help our children thrive with VHL. \nAll parents of VHLers are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \nThis facilitated call takes place on the third Monday of every other month at 8 PM ET. If you would like to join the call\, please email us at calls@vhl.org
URL:https://vhl.org/vhla-event/parents-of-vhlers-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230111T193000
DTEND;TZID=America/New_York:20230111T203000
DTSTAMP:20260406T052726
CREATED:20221230T141228Z
LAST-MODIFIED:20230328T165316Z
UID:10000005-1673465400-1673469000@vhl.org
SUMMARY:Low/No Vision Monthly Call
DESCRIPTION:Second Wednesday of every month \nLiving with low or no vision creates unique challenges for VHLers. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. If you would like to join the call\, please email us at calls@vhl.org.
URL:https://vhl.org/vhla-event/low-no-vision-monthly-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230109T200000
DTEND;TZID=America/New_York:20230109T210000
DTSTAMP:20260406T052726
CREATED:20221230T141401Z
LAST-MODIFIED:20221230T141441Z
UID:10000007-1673294400-1673298000@vhl.org
SUMMARY:VHL Patient/Caregiver Call
DESCRIPTION:First Monday of every month (Delayed 1 week in Jan. due to New Years holiday) \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \nIf you would like to join the call list\, please send us an email at calls@vhl.org
URL:https://vhl.org/vhla-event/patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg
END:VEVENT
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