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METHOD:PUBLISH
X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
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BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
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TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
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END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230717T200000
DTEND;TZID=America/New_York:20230717T210000
DTSTAMP:20260617T181036
CREATED:20230320T183811Z
LAST-MODIFIED:20230329T172001Z
UID:10000021-1689624000-1689627600@vhl.org
SUMMARY:July Parents of VHL Patients Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/july-parents-of-vhlers-call/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/increase-your-wellbeing-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230712T193000
DTEND;TZID=America/New_York:20230712T203000
DTSTAMP:20260617T181036
CREATED:20230328T165712Z
LAST-MODIFIED:20230328T165712Z
UID:10000043-1689190200-1689193800@vhl.org
SUMMARY:July Low/No Vision Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/july-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/What-has-VHL-taught-you.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230710T200000
DTEND;TZID=America/New_York:20230710T210000
DTSTAMP:20260617T181036
CREATED:20230320T190456Z
LAST-MODIFIED:20230320T190456Z
UID:10000029-1689019200-1689022800@vhl.org
SUMMARY:July Patient/Caregiver Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/july-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/increase-your-happiness.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230614T193000
DTEND;TZID=America/New_York:20230614T203000
DTSTAMP:20260617T181036
CREATED:20230328T165610Z
LAST-MODIFIED:20230328T165716Z
UID:10000042-1686771000-1686774600@vhl.org
SUMMARY:June Low/No Vision Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/june-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/best-vhl-advice-given-or-received.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230605T200000
DTEND;TZID=America/New_York:20230605T210000
DTSTAMP:20260617T181036
CREATED:20230320T190310Z
LAST-MODIFIED:20230320T190310Z
UID:10000028-1685995200-1685998800@vhl.org
SUMMARY:June Patient/Caregiver Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/june-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/increase-positive-emotions.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230515T200000
DTEND;TZID=America/New_York:20230515T210000
DTSTAMP:20260617T181036
CREATED:20230320T183532Z
LAST-MODIFIED:20230329T172019Z
UID:10000020-1684180800-1684184400@vhl.org
SUMMARY:May Parents of VHL Patients Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/may-parents-of-vhlers-call/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/what-you-believe-about-vhl-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230510T193000
DTEND;TZID=America/New_York:20230510T203000
DTSTAMP:20260617T181036
CREATED:20230328T165448Z
LAST-MODIFIED:20230328T165448Z
UID:10000041-1683747000-1683750600@vhl.org
SUMMARY:May Low/No Vision Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/may-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/need-for-independence.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230501T200000
DTEND;TZID=America/New_York:20230501T210000
DTSTAMP:20260617T181036
CREATED:20230320T185859Z
LAST-MODIFIED:20230320T185917Z
UID:10000027-1682971200-1682974800@vhl.org
SUMMARY:May Patient/Caregiver Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/may-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/build-a-support-network.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230419T200000
DTEND;TZID=America/New_York:20230419T203000
DTSTAMP:20260617T181036
CREATED:20230330T230408Z
LAST-MODIFIED:20230330T230450Z
UID:10000053-1681934400-1681936200@vhl.org
SUMMARY:Adrenal Awareness Month Webinar
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/adrenal-awareness-month-webinar/
CATEGORIES:Non VHLA Event
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2023/03/April-Awareness-Month-20231.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230417T200000
DTEND;TZID=America/New_York:20230417T210000
DTSTAMP:20260617T181036
CREATED:20230310T194703Z
LAST-MODIFIED:20230403T145602Z
UID:10000019-1681761600-1681765200@vhl.org
SUMMARY:April VHL Patient/Caregiver Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/april-vhl-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T193000
DTEND;TZID=America/New_York:20230412T203000
DTSTAMP:20260617T181036
CREATED:20230323T180837Z
LAST-MODIFIED:20230324T153927Z
UID:10000040-1681327800-1681331400@vhl.org
SUMMARY:April Low/No Vision Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/april-low-no-vision-monthly-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230320T200000
DTEND;TZID=America/New_York:20230320T210000
DTSTAMP:20260617T181036
CREATED:20230123T193222Z
LAST-MODIFIED:20230324T153910Z
UID:10000010-1679342400-1679346000@vhl.org
SUMMARY:March Parents of VHL Patients Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/parents-of-vhlers-call-march/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/parents-of-vhlers-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230316T190000
DTEND;TZID=America/New_York:20230316T200000
DTSTAMP:20260617T181036
CREATED:20230123T203835Z
LAST-MODIFIED:20230124T180317Z
UID:10000015-1678993200-1678996800@vhl.org
SUMMARY:New Patient / Caregiver Cohort Program
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-16/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230309T190000
DTEND;TZID=America/New_York:20230309T200000
DTSTAMP:20260617T181036
CREATED:20230123T203835Z
LAST-MODIFIED:20230124T180317Z
UID:10000014-1678388400-1678392000@vhl.org
SUMMARY:New Patient / Caregiver Cohort Program
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-09/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230308T193000
DTEND;TZID=America/New_York:20230308T203000
DTSTAMP:20260617T181036
CREATED:20230210T163148Z
LAST-MODIFIED:20230324T153918Z
UID:10000017-1678303800-1678307400@vhl.org
SUMMARY:March Low/No Vision Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/march-low-no-vision-monthly-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230306T200000
DTEND;TZID=America/New_York:20230306T210000
DTSTAMP:20260617T181036
CREATED:20230210T163247Z
LAST-MODIFIED:20230215T194902Z
UID:10000018-1678132800-1678136400@vhl.org
SUMMARY:March VHL Patient/Caregiver Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/march-vhl-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230302T190000
DTEND;TZID=America/New_York:20230302T200000
DTSTAMP:20260617T181036
CREATED:20230123T203835Z
LAST-MODIFIED:20230124T180317Z
UID:10000013-1677783600-1677787200@vhl.org
SUMMARY:New Patient / Caregiver Cohort Program
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-02/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230224
DTEND;VALUE=DATE:20230227
DTSTAMP:20260617T181036
CREATED:20221230T135408Z
LAST-MODIFIED:20230201T142014Z
UID:10000004-1677196800-1677455999@vhl.org
SUMMARY:2023 Julie Flynn HOPE Retreat for Young Adults
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/2023-julie-flynn-hope-retreat-for-young-adults/
LOCATION:Washington DC\, Washington DC\, DC\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/20190615_161938-2-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230223T190000
DTEND;TZID=America/New_York:20230223T203000
DTSTAMP:20260617T181036
CREATED:20230123T203835Z
LAST-MODIFIED:20230124T180317Z
UID:10000012-1677178800-1677184200@vhl.org
SUMMARY:New Patient / Caregiver Cohort Program
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-02-23/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230223T130000
DTEND;TZID=America/New_York:20230223T143000
DTSTAMP:20260617T181036
CREATED:20230123T194146Z
LAST-MODIFIED:20230124T144043Z
UID:10000011-1677157200-1677162600@vhl.org
SUMMARY:Navigating Tough Conversations Workshop
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/navigating-tough-conversations-workshop/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/Leona-Workshop-Template-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230214T080000
DTEND;TZID=America/New_York:20230214T090000
DTSTAMP:20260617T181036
CREATED:20230201T143550Z
LAST-MODIFIED:20230201T143550Z
UID:10000016-1676361600-1676365200@vhl.org
SUMMARY:VHLentine's Day
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/vhlentines-day/
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/02/vhlentines-2023.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230208T193000
DTEND;TZID=America/New_York:20230208T203000
DTSTAMP:20260617T181036
CREATED:20230123T193128Z
LAST-MODIFIED:20230328T165308Z
UID:10000009-1675884600-1675888200@vhl.org
SUMMARY:February Low/No Vision Monthly Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/low-no-vision-monthly-call-feb/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230206T200000
DTEND;TZID=America/New_York:20230206T210000
DTSTAMP:20260617T181036
CREATED:20230123T193032Z
LAST-MODIFIED:20230208T164624Z
UID:10000008-1675713600-1675717200@vhl.org
SUMMARY:February VHL Patient/Caregiver Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/vhl-patient-caregiver-call-feb/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230123T200000
DTEND;TZID=America/New_York:20230123T210000
DTSTAMP:20260617T181036
CREATED:20221230T141306Z
LAST-MODIFIED:20230324T154002Z
UID:10000006-1674504000-1674507600@vhl.org
SUMMARY:Parents of VHL Patients Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/parents-of-vhlers-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230111T193000
DTEND;TZID=America/New_York:20230111T203000
DTSTAMP:20260617T181036
CREATED:20221230T141228Z
LAST-MODIFIED:20230328T165316Z
UID:10000005-1673465400-1673469000@vhl.org
SUMMARY:Low/No Vision Monthly Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/low-no-vision-monthly-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230109T200000
DTEND;TZID=America/New_York:20230109T210000
DTSTAMP:20260617T181036
CREATED:20221230T141401Z
LAST-MODIFIED:20221230T141441Z
UID:10000007-1673294400-1673298000@vhl.org
SUMMARY:VHL Patient/Caregiver Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg
END:VEVENT
END:VCALENDAR