BEGIN:VCALENDAR VERSION:2.0 PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://vhl.org X-WR-CALDESC:Events for VHL Alliance REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Los_Angeles BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20260308T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20261101T090000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20251103T200000 DTEND;TZID=America/New_York:20251103T210000 DTSTAMP:20260619T132140 CREATED:20250725T134135Z LAST-MODIFIED:20250725T134135Z UID:10000122-1762200000-1762203600@vhl.org SUMMARY:November Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/november-patient-caregiver-call-2025/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/nov-3rd-2025-family-and-relationship-dynamics-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251112T193000 DTEND;TZID=America/New_York:20251112T203000 DTSTAMP:20260619T132140 CREATED:20250725T132832Z LAST-MODIFIED:20250725T132832Z UID:10000116-1762975800-1762979400@vhl.org SUMMARY:November Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/november-low-no-vision-call-2025/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/nov-12-2025-confidence-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251117T160000 DTEND;TZID=America/New_York:20251117T170000 DTSTAMP:20260619T132140 CREATED:20251020T141626Z LAST-MODIFIED:20251028T163144Z UID:10000126-1763395200-1763398800@vhl.org SUMMARY:Webinar Series: The Importance of Coordinated Care in Addressing VHL DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/webinar-series-the-importance-of-coordinated-care-in-addressing-vhl/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/10/VHL-101-Research-Update-with-Othon-Iliopoulos-MD-2.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251201T200000 DTEND;TZID=America/New_York:20251201T210000 DTSTAMP:20260619T132140 CREATED:20250725T134227Z LAST-MODIFIED:20250725T134227Z UID:10000123-1764619200-1764622800@vhl.org SUMMARY:December Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/december-patient-caregiver-call-2025/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/dec-1-2025-navigating-the-complicated-healthcare-system-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251206T080000 DTEND;TZID=America/New_York:20251206T140000 DTSTAMP:20260619T132140 CREATED:20251020T144931Z LAST-MODIFIED:20251022T164920Z UID:10000127-1765008000-1765029600@vhl.org SUMMARY:VHL Connect: Atlanta DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/vhl-connect-atlanta/ LOCATION:Hilton Millennium Center\, 2301 Sullivan Rd\, College Park\, GA\, 30337\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/10/vhl-connect-atlanta.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251210T193000 DTEND;TZID=America/New_York:20251210T203000 DTSTAMP:20260619T132140 CREATED:20250725T133019Z LAST-MODIFIED:20250725T133019Z UID:10000117-1765395000-1765398600@vhl.org SUMMARY:December Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/december-low-no-vision-call-2025/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/dec-10-2025-friendships-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260105T200000 DTEND;TZID=America/New_York:20260105T210000 DTSTAMP:20260619T132140 CREATED:20250725T134435Z LAST-MODIFIED:20250725T134435Z UID:10000125-1767643200-1767646800@vhl.org SUMMARY:January Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/jan-patient-caregiver-call-2026/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/jan-5th-2025-living-fully-with-VHL-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260114T193000 DTEND;TZID=America/New_York:20260114T203000 DTSTAMP:20260619T132140 CREATED:20250725T133227Z LAST-MODIFIED:20250725T133244Z UID:10000118-1768419000-1768422600@vhl.org SUMMARY:January Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/january-low-no-vision-call-2026/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/jan-14th-2025-bucket-lists-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260202T200000 DTEND;TZID=America/New_York:20260202T210000 DTSTAMP:20260619T132140 CREATED:20260108T162529Z LAST-MODIFIED:20260108T162529Z UID:10000128-1770062400-1770066000@vhl.org SUMMARY:February 2nd Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/feb-2-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Feb-2-2026-Coping-with-uncertainty-and-the-future.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260211T193000 DTEND;TZID=America/New_York:20260211T203000 DTSTAMP:20260619T132140 CREATED:20260113T151810Z LAST-MODIFIED:20260113T151810Z UID:10000134-1770838200-1770841800@vhl.org SUMMARY:Feb 11th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/feb-11-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Feb-11-2026-go-bag-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260302T200000 DTEND;TZID=America/New_York:20260302T210000 DTSTAMP:20260619T132140 CREATED:20260108T162704Z LAST-MODIFIED:20260108T162704Z UID:10000129-1772481600-1772485200@vhl.org SUMMARY:March 2nd Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/march-2nd-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/March-2nd-2026-Pain-Management-Symptom-Supprt.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260311T193000 DTEND;TZID=America/New_York:20260311T203000 DTSTAMP:20260619T132140 CREATED:20260113T151857Z LAST-MODIFIED:20260113T151857Z UID:10000135-1773257400-1773261000@vhl.org SUMMARY:March 11th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/mar-11th-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/march-11th-household-management-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20260321T090000 DTEND;TZID=America/Los_Angeles:20260321T120000 DTSTAMP:20260619T132140 CREATED:20260126T170233Z LAST-MODIFIED:20260303T193637Z UID:10000140-1774083600-1774094400@vhl.org SUMMARY:VHL Connect | Seattle DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/vhl-connect-seattle/ CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Family-Weekend-2025-Promo-University-of-Michigan-7.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260406T200000 DTEND;TZID=America/New_York:20260406T210000 DTSTAMP:20260619T132140 CREATED:20260108T162806Z LAST-MODIFIED:20260108T162806Z UID:10000130-1775505600-1775509200@vhl.org SUMMARY:April 6th Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/april-6-patient-caregiver-call-2/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/April-6-2026-Building-Sustainable-Routines.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260408T193000 DTEND;TZID=America/New_York:20260408T203000 DTSTAMP:20260619T132140 CREATED:20260113T152012Z LAST-MODIFIED:20260113T152012Z UID:10000136-1775676600-1775680200@vhl.org SUMMARY:April 8th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/april-8th-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/april-8th-asking-for-what-you-need-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260413T180000 DTEND;TZID=America/New_York:20260413T190000 DTSTAMP:20260619T132140 CREATED:20260401T145021Z LAST-MODIFIED:20260401T155429Z UID:10000141-1776103200-1776106800@vhl.org SUMMARY:Avances en la enfermedad de VHL y la investigación del cáncer renal: De la biología a nuevas terapias DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/avances-en-la-enfermedad-de-vhl-y-la-investigacion-del-cancer-renal-de-la-biologia-a-nuevas-terapias/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/VHL-101-Research-Update-with-Othon-Iliopoulos-MD.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260504T200000 DTEND;TZID=America/New_York:20260504T210000 DTSTAMP:20260619T132140 CREATED:20260108T162928Z LAST-MODIFIED:20260108T162928Z UID:10000131-1777924800-1777928400@vhl.org SUMMARY:May 4th Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/may-4th-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/May4-2026-Sustaining-Yourself-While-Caring-For-Others.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260506T180000 DTEND;TZID=America/New_York:20260506T190000 DTSTAMP:20260619T132140 CREATED:20260424T140303Z LAST-MODIFIED:20260424T140510Z UID:10000143-1778090400-1778094000@vhl.org SUMMARY:Parents of VHLers: Navigating Care\, Emotions\, and Growing Independence DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/parents-of-vhlers-navigating-care-emotions-and-growing-independence/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/VHL-101-Research-Update-with-Othon-Iliopoulos-MD-4.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260513T193000 DTEND;TZID=America/New_York:20260513T203000 DTSTAMP:20260619T132140 CREATED:20260113T152051Z LAST-MODIFIED:20260113T152051Z UID:10000137-1778700600-1778704200@vhl.org SUMMARY:May 13th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/may-13-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/may-13th-who-were-the-most-supportive-people-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260601T200000 DTEND;TZID=America/New_York:20260601T210000 DTSTAMP:20260619T132140 CREATED:20260108T163035Z LAST-MODIFIED:20260108T163035Z UID:10000132-1780344000-1780347600@vhl.org SUMMARY:June 1st Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/june-1-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/June-1-2026-Communication-Advocacy-in-Healthcare-Settings.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260610T193000 DTEND;TZID=America/New_York:20260610T203000 DTSTAMP:20260619T132140 CREATED:20260113T152145Z LAST-MODIFIED:20260113T152426Z UID:10000138-1781119800-1781123400@vhl.org SUMMARY:June 10th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/june-10-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/june-10th-needs-of-low-vis-community-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260706T200000 DTEND;TZID=America/New_York:20260706T210000 DTSTAMP:20260619T132140 CREATED:20260108T163201Z LAST-MODIFIED:20260108T163201Z UID:10000133-1783368000-1783371600@vhl.org SUMMARY:July 6th Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/july-6-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/July-6-2026-Financial-Practical-Planning.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260708T193000 DTEND;TZID=America/New_York:20260708T203000 DTSTAMP:20260619T132140 CREATED:20260113T152523Z LAST-MODIFIED:20260113T152523Z UID:10000139-1783539000-1783542600@vhl.org SUMMARY:July 8th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/july-8th-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/july-8th-mental-health-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260803T200000 DTEND;TZID=America/New_York:20260803T210000 DTSTAMP:20260619T132140 CREATED:20260617T152305Z LAST-MODIFIED:20260617T152305Z UID:10000145-1785787200-1785790800@vhl.org SUMMARY:August 3rd Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/aug-3-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/August-3-2026-Traveling-and-Exploring-with-Confidence.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260807T170000 DTEND;TZID=America/New_York:20260809T143000 DTSTAMP:20260619T132140 CREATED:20260428T145054Z LAST-MODIFIED:20260615T171735Z UID:10000144-1786122000-1786285800@vhl.org SUMMARY:Family Weekend 2026 DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/family-weekend-2026/ LOCATION:Kimpton Everly Hotel\, 1800 Argyle Ave\, Los Angeles\, 90028\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/fam-weekend-promo.png ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260812T193000 DTEND;TZID=America/New_York:20260812T203000 DTSTAMP:20260619T132140 CREATED:20260617T153816Z LAST-MODIFIED:20260617T153816Z UID:10000151-1786563000-1786566600@vhl.org SUMMARY:August 12th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/aug-12-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/August-12-2026-Style.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260909T193000 DTEND;TZID=America/New_York:20260909T203000 DTSTAMP:20260619T132140 CREATED:20260617T153859Z LAST-MODIFIED:20260617T153859Z UID:10000152-1788982200-1788985800@vhl.org SUMMARY:September 9th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/sept-9-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/September-9-2026-yoga.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260914T200000 DTEND;TZID=America/New_York:20260914T210000 DTSTAMP:20260619T132140 CREATED:20260617T152435Z LAST-MODIFIED:20260617T152435Z UID:10000146-1789416000-1789419600@vhl.org SUMMARY:September 14th Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/sept-14-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/September-14-2026-moved-from-Sept-7-—-Labor-Day-Finding-Meaning-and-Purpose-Through-Change.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261005T200000 DTEND;TZID=America/New_York:20261005T210000 DTSTAMP:20260619T132140 CREATED:20260617T152529Z LAST-MODIFIED:20260617T152529Z UID:10000147-1791230400-1791234000@vhl.org SUMMARY:October 5th Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/october-5th-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/October-5-2026-What-I-Wish-Others-Understood-About-VHL.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261014T193000 DTEND;TZID=America/New_York:20261014T203000 DTSTAMP:20260619T132140 CREATED:20260617T153956Z LAST-MODIFIED:20260617T153956Z UID:10000153-1792006200-1792009800@vhl.org SUMMARY:October 14h Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/oct-14-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/October-14-2026-age-of-blindness.png END:VEVENT END:VCALENDAR