BEGIN:VCALENDAR VERSION:2.0 PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://vhl.org X-WR-CALDESC:Events for VHL Alliance REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20270314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20271107T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20260413T180000 DTEND;TZID=America/New_York:20260413T190000 DTSTAMP:20260619T093857 CREATED:20260401T145021Z LAST-MODIFIED:20260401T155429Z UID:10000141-1776103200-1776106800@vhl.org SUMMARY:Avances en la enfermedad de VHL y la investigación del cáncer renal: De la biología a nuevas terapias DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/avances-en-la-enfermedad-de-vhl-y-la-investigacion-del-cancer-renal-de-la-biologia-a-nuevas-terapias/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/VHL-101-Research-Update-with-Othon-Iliopoulos-MD.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260504T200000 DTEND;TZID=America/New_York:20260504T210000 DTSTAMP:20260619T093857 CREATED:20260108T162928Z LAST-MODIFIED:20260108T162928Z UID:10000131-1777924800-1777928400@vhl.org SUMMARY:May 4th Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/may-4th-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/May4-2026-Sustaining-Yourself-While-Caring-For-Others.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260506T180000 DTEND;TZID=America/New_York:20260506T190000 DTSTAMP:20260619T093857 CREATED:20260424T140303Z LAST-MODIFIED:20260424T140510Z UID:10000143-1778090400-1778094000@vhl.org SUMMARY:Parents of VHLers: Navigating Care\, Emotions\, and Growing Independence DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/parents-of-vhlers-navigating-care-emotions-and-growing-independence/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/VHL-101-Research-Update-with-Othon-Iliopoulos-MD-4.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260513T193000 DTEND;TZID=America/New_York:20260513T203000 DTSTAMP:20260619T093857 CREATED:20260113T152051Z LAST-MODIFIED:20260113T152051Z UID:10000137-1778700600-1778704200@vhl.org SUMMARY:May 13th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/may-13-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/may-13th-who-were-the-most-supportive-people-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260601T200000 DTEND;TZID=America/New_York:20260601T210000 DTSTAMP:20260619T093857 CREATED:20260108T163035Z LAST-MODIFIED:20260108T163035Z UID:10000132-1780344000-1780347600@vhl.org SUMMARY:June 1st Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/june-1-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/June-1-2026-Communication-Advocacy-in-Healthcare-Settings.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260610T193000 DTEND;TZID=America/New_York:20260610T203000 DTSTAMP:20260619T093857 CREATED:20260113T152145Z LAST-MODIFIED:20260113T152426Z UID:10000138-1781119800-1781123400@vhl.org SUMMARY:June 10th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/june-10-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/june-10th-needs-of-low-vis-community-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260706T200000 DTEND;TZID=America/New_York:20260706T210000 DTSTAMP:20260619T093857 CREATED:20260108T163201Z LAST-MODIFIED:20260108T163201Z UID:10000133-1783368000-1783371600@vhl.org SUMMARY:July 6th Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/july-6-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/July-6-2026-Financial-Practical-Planning.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260708T193000 DTEND;TZID=America/New_York:20260708T203000 DTSTAMP:20260619T093857 CREATED:20260113T152523Z LAST-MODIFIED:20260113T152523Z UID:10000139-1783539000-1783542600@vhl.org SUMMARY:July 8th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/july-8th-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/july-8th-mental-health-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260803T200000 DTEND;TZID=America/New_York:20260803T210000 DTSTAMP:20260619T093857 CREATED:20260617T152305Z LAST-MODIFIED:20260617T152305Z UID:10000145-1785787200-1785790800@vhl.org SUMMARY:August 3rd Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/aug-3-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/August-3-2026-Traveling-and-Exploring-with-Confidence.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260807T170000 DTEND;TZID=America/New_York:20260809T143000 DTSTAMP:20260619T093857 CREATED:20260428T145054Z LAST-MODIFIED:20260615T171735Z UID:10000144-1786122000-1786285800@vhl.org SUMMARY:Family Weekend 2026 DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/family-weekend-2026/ LOCATION:Kimpton Everly Hotel\, 1800 Argyle Ave\, Los Angeles\, 90028\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/fam-weekend-promo.png ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260812T193000 DTEND;TZID=America/New_York:20260812T203000 DTSTAMP:20260619T093857 CREATED:20260617T153816Z LAST-MODIFIED:20260617T153816Z UID:10000151-1786563000-1786566600@vhl.org SUMMARY:August 12th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/aug-12-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/August-12-2026-Style.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260909T193000 DTEND;TZID=America/New_York:20260909T203000 DTSTAMP:20260619T093857 CREATED:20260617T153859Z LAST-MODIFIED:20260617T153859Z UID:10000152-1788982200-1788985800@vhl.org SUMMARY:September 9th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/sept-9-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/September-9-2026-yoga.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260914T200000 DTEND;TZID=America/New_York:20260914T210000 DTSTAMP:20260619T093857 CREATED:20260617T152435Z LAST-MODIFIED:20260617T152435Z UID:10000146-1789416000-1789419600@vhl.org SUMMARY:September 14th Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/sept-14-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/September-14-2026-moved-from-Sept-7-—-Labor-Day-Finding-Meaning-and-Purpose-Through-Change.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261005T200000 DTEND;TZID=America/New_York:20261005T210000 DTSTAMP:20260619T093857 CREATED:20260617T152529Z LAST-MODIFIED:20260617T152529Z UID:10000147-1791230400-1791234000@vhl.org SUMMARY:October 5th Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/october-5th-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/October-5-2026-What-I-Wish-Others-Understood-About-VHL.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261014T193000 DTEND;TZID=America/New_York:20261014T203000 DTSTAMP:20260619T093857 CREATED:20260617T153956Z LAST-MODIFIED:20260617T153956Z UID:10000153-1792006200-1792009800@vhl.org SUMMARY:October 14h Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/oct-14-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/October-14-2026-age-of-blindness.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261102T200000 DTEND;TZID=America/New_York:20261102T210000 DTSTAMP:20260619T093857 CREATED:20260617T152626Z LAST-MODIFIED:20260617T152638Z UID:10000148-1793649600-1793653200@vhl.org SUMMARY:November 2nd Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/nov-2-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/November-2-2026-Navigating-Independence-and-Asking-for-Help.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20261106 DTEND;VALUE=DATE:20261109 DTSTAMP:20260619T093857 CREATED:20260423T125305Z LAST-MODIFIED:20260423T130204Z UID:10000142-1793923200-1794182399@vhl.org SUMMARY:VHL Alliance Medical Symposium DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/vhl-alliance-medical-symposium/ LOCATION:Hyatt Regency Boston/Cambridge\, 575 Memorial Drive\, Cambridge\, MA\, 02139\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/04/iStock-801296936-copy.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261118T193000 DTEND;TZID=America/New_York:20261118T203000 DTSTAMP:20260619T093857 CREATED:20260617T154125Z LAST-MODIFIED:20260617T154125Z UID:10000154-1795030200-1795033800@vhl.org SUMMARY:November 18th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/nov-18-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/November-18-2026-moved-from-Nov-11-—-Veterans-Day-blindness-skills.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261207T200000 DTEND;TZID=America/New_York:20261207T210000 DTSTAMP:20260619T093857 CREATED:20260617T152732Z LAST-MODIFIED:20260617T152732Z UID:10000149-1796673600-1796677200@vhl.org SUMMARY:December 7th Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/dec-7-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/December-7-2026-Traditions-Holidays-and-Special-Occasions-with-VHL.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261209T193000 DTEND;TZID=America/New_York:20261209T203000 DTSTAMP:20260619T093857 CREATED:20260617T154231Z LAST-MODIFIED:20260617T154240Z UID:10000155-1796844600-1796848200@vhl.org SUMMARY:December 9th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/dec-9-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/December-9-2026-questions.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20270104T200000 DTEND;TZID=America/New_York:20270104T210000 DTSTAMP:20260619T093857 CREATED:20260617T152827Z LAST-MODIFIED:20260617T152827Z UID:10000150-1799092800-1799096400@vhl.org SUMMARY:January 4th Patient/Caregiver Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/jan-4-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/January-4-2027-Lessons-Learned_-Wisdom-from-the-VHL-Journey.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20270113T193000 DTEND;TZID=America/New_York:20270113T203000 DTSTAMP:20260619T093857 CREATED:20260617T154323Z LAST-MODIFIED:20260617T154323Z UID:10000156-1799868600-1799872200@vhl.org SUMMARY:January 13th Low/No Vision Call DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! \n \n \n \n \n \n \n Register Now! URL:https://vhl.org/vhla-event/jan-13-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/jan-13th-shopping.png END:VEVENT END:VCALENDAR