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X-WR-CALDESC:Events for VHL Alliance
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DTSTART:20260308T070000
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DTSTART;VALUE=DATE:20261106
DTEND;VALUE=DATE:20261109
DTSTAMP:20260619T042621
CREATED:20260423T125305Z
LAST-MODIFIED:20260423T130204Z
UID:10000142-1793923200-1794182399@vhl.org
SUMMARY:VHL Alliance Medical Symposium
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/vhl-alliance-medical-symposium/
LOCATION:Hyatt Regency Boston/Cambridge\, 575 Memorial Drive\, Cambridge\, MA\, 02139\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/04/iStock-801296936-copy.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261118T193000
DTEND;TZID=America/New_York:20261118T203000
DTSTAMP:20260619T042621
CREATED:20260617T154125Z
LAST-MODIFIED:20260617T154125Z
UID:10000154-1795030200-1795033800@vhl.org
SUMMARY:November 18th Low/No Vision Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/nov-18-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/November-18-2026-moved-from-Nov-11-—-Veterans-Day-blindness-skills.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261207T200000
DTEND;TZID=America/New_York:20261207T210000
DTSTAMP:20260619T042621
CREATED:20260617T152732Z
LAST-MODIFIED:20260617T152732Z
UID:10000149-1796673600-1796677200@vhl.org
SUMMARY:December 7th Patient/Caregiver Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/dec-7-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/December-7-2026-Traditions-Holidays-and-Special-Occasions-with-VHL.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261209T193000
DTEND;TZID=America/New_York:20261209T203000
DTSTAMP:20260619T042621
CREATED:20260617T154231Z
LAST-MODIFIED:20260617T154240Z
UID:10000155-1796844600-1796848200@vhl.org
SUMMARY:December 9th Low/No Vision Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/dec-9-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/December-9-2026-questions.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270104T200000
DTEND;TZID=America/New_York:20270104T210000
DTSTAMP:20260619T042621
CREATED:20260617T152827Z
LAST-MODIFIED:20260617T152827Z
UID:10000150-1799092800-1799096400@vhl.org
SUMMARY:January 4th Patient/Caregiver Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/jan-4-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/January-4-2027-Lessons-Learned_-Wisdom-from-the-VHL-Journey.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270113T193000
DTEND;TZID=America/New_York:20270113T203000
DTSTAMP:20260619T042621
CREATED:20260617T154323Z
LAST-MODIFIED:20260617T154323Z
UID:10000156-1799868600-1799872200@vhl.org
SUMMARY:January 13th Low/No Vision Call
DESCRIPTION:The VHL Alliance proudly presents the VHL Veterans Panel! \n \nPrepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience.  \n \n Date: November 16th\, 2023Time: 7 pm ESTLocation: Zoom.  \n \n What to Expect: \n \n ✨ Courageous Stories: Hear firsthand from VHL veterans who have overcome adversity and turned their experiences into sources of strength. \n \n  ✨ Community Support: Connect with others who understand the VHL journey. \n \n ✨ Q&A Session: Engage with our panelists during an interactive Q&A session\, where you can ask questions\, seek advice\, and participate in insightful discussions. \n \n How to Participate: \nThis event is open to everyone\, from VHL patients and their families to healthcare professionals\, researchers\, and anyone interested in learning more about VHL disease. \n \nTo register for this free event\, click here or use the registration button below. See you on November 16th! 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/jan-13-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/jan-13th-shopping.png
END:VEVENT
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