BEGIN:VCALENDAR VERSION:2.0 PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:VHL Alliance X-ORIGINAL-URL:https://vhl.org X-WR-CALDESC:Events for VHL Alliance REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20260706T200000 DTEND;TZID=America/New_York:20260706T210000 DTSTAMP:20260430T133316 CREATED:20260108T163201Z LAST-MODIFIED:20260108T163201Z UID:10000133-1783368000-1783371600@vhl.org SUMMARY:July 6th Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nFinancial and Practical Planning\nAddressing work\, insurance\, medical bills\, disability resources\, and other practical challenges. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/july-6-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/July-6-2026-Financial-Practical-Planning.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260708T193000 DTEND;TZID=America/New_York:20260708T203000 DTSTAMP:20260430T133316 CREATED:20260113T152523Z LAST-MODIFIED:20260113T152523Z UID:10000139-1783539000-1783542600@vhl.org SUMMARY:July 8th Low/No Vision Call DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nWhat mental health practices have you found both successful and accessible? What practices do you wish were accessible but aren’t? \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/july-8th-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/july-8th-mental-health-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260807T170000 DTEND;TZID=America/New_York:20260809T143000 DTSTAMP:20260430T133316 CREATED:20260428T145054Z LAST-MODIFIED:20260428T194603Z UID:10000144-1786122000-1786285800@vhl.org SUMMARY:Family Weekend 2026 DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n \nWhen: August 7-9\, 2026 \n \n \nWhere: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n \nRegistration Link: Click here to secure your spot today! \n \n \nWhat to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n \nWho Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n \nWhether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL. \n \nTravel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch! \n \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* \n \n Register Now! URL:https://vhl.org/vhla-event/family-weekend-2026/ LOCATION:Kimpton Everly Hotel\, 1800 Argyle Ave\, Los Angeles\, 90028\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/fam-weekend-promo.png ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20261106 DTEND;VALUE=DATE:20261109 DTSTAMP:20260430T133316 CREATED:20260423T125305Z LAST-MODIFIED:20260423T130204Z UID:10000142-1793923200-1794182399@vhl.org SUMMARY:VHL Alliance Medical Symposium DESCRIPTION:Advancing Research\, Treatment\, and Care for Von Hippel-Lindau Disease\nJoin leading researchers\, clinicians\, and advocates for groundbreaking discussions on VHL disease management and innovation. \n  \nThe 17th International VHL Medical Symposium\, hosted by the VHL Alliance and Mass General Brigham\, will bring scientists\, clinicians\, and advocates together for two days of collaboration\, idea exchange\, and thought leadership. \n  \nThis premier event features cutting-edge presentations\, collaborative workshops\, and networking opportunities designed to accelerate progress in understanding and treating VHL disease. \n  \nWhere: Boston\, MA \nWhen: Nov 6-8\, 2026 \n  \nThis biennial event\, hosted by the VHL Alliance\, is one of the most important gatherings in our field. It’s where researchers\, clinicians\, and advocates come together to share the latest discoveries\, explore emerging treatments\, and collaborate on what’s next for VHL care. \nWhether you’re a healthcare professional\, researcher\, or advocate\, this is your opportunity to be part of the conversations shaping the future of VHL. \n  \nWhat to expect: \n\nThe latest breakthroughs in VHL research and treatment\nInsights from leading global experts\nCollaborative discussions across disciplines\nOpportunities to connect with peers advancing VHL care\n\n\nAt the most recent symposium\, more than 200 experts gathered to exchange ideas and advance progress toward better outcomes for people living with VHL. \nThis year’s event builds on that momentum\, creating space for innovation\, collaboration\, and meaningful progress. Secure your spot today by clicking the button below! \n \n Register Now\n \n \n Submit An Abstract\n \n \n Visit the Symposium Website\n \n \n  \nExperience three days of comprehensive programming designed to advance VHL research\, improve patient outcomes\, and strengthen our global community. \n  \nVisit the Symposium Website by clicking here to learn more about the host committee\, hotel details for the event\, keynote speakers\, and more.  \n  \nRegistration is open now! \n  \nPatient Advocates & Students: $25 \nPostdocs & Residents: $50 \nScientists & Clinicians: $100 \nCorporate & Industry Rate: $1\,000 URL:https://vhl.org/vhla-event/vhl-alliance-medical-symposium/ LOCATION:Hyatt Regency Boston/Cambridge\, 575 Memorial Drive\, Cambridge\, MA\, 02139\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/04/iStock-801296936-copy.jpg END:VEVENT END:VCALENDAR