BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Chicago
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20240310T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20241103T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250312T193000
DTEND;TZID=America/New_York:20250312T203000
DTSTAMP:20260617T113414
CREATED:20240605T174126Z
LAST-MODIFIED:20240605T174126Z
UID:10000093-1741807800-1741811400@vhl.org
SUMMARY:March Low/No Vision Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/march-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/March-12-How-does-blindness-and-VHL-effect-our-closest-relationships.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250303T200000
DTEND;TZID=America/New_York:20250303T210000
DTSTAMP:20260617T113414
CREATED:20240605T171257Z
LAST-MODIFIED:20240605T171257Z
UID:10000081-1741032000-1741035600@vhl.org
SUMMARY:March Patient/Caregiver Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/mar-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/March-3-Learn-mindfulness-techniques-to-reduce-constant-pain.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250303
DTSTAMP:20260617T113414
CREATED:20241113T150928Z
LAST-MODIFIED:20241113T154814Z
UID:10000105-1740700800-1740959999@vhl.org
SUMMARY:VHL Alliance Young Adult Retreat | Phoenix\, AZ
DESCRIPTION:
URL:https://vhl.org/vhla-event/vhl-alliance-young-adult-retreat-phoenix-az/
LOCATION:MA
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/11/YAR-2025-Promo-Image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250212T193000
DTEND;TZID=America/New_York:20250212T203000
DTSTAMP:20260617T113414
CREATED:20240605T173959Z
LAST-MODIFIED:20240605T173959Z
UID:10000092-1739388600-1739392200@vhl.org
SUMMARY:February Low/No Vision Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/feb-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Feb-12-What-two-things-does-blindness-make-most-difficult-for-you.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250203T200000
DTEND;TZID=America/New_York:20250203T210000
DTSTAMP:20260617T113414
CREATED:20240605T171144Z
LAST-MODIFIED:20240605T171144Z
UID:10000080-1738612800-1738616400@vhl.org
SUMMARY:February Patient/Caregiver Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/feb-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Feb-3rd-Three-ways-to-be-more-resilient.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250120T200000
DTEND;TZID=America/New_York:20250120T210000
DTSTAMP:20260617T113414
CREATED:20240605T193911Z
LAST-MODIFIED:20240605T193911Z
UID:10000100-1737403200-1737406800@vhl.org
SUMMARY:January Parents of VHL Patients Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/jan-parents-of-vhl-patients-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Jan-19-How-to-increase-positive-emotions-in-your-child-and-lessen-negative-emotions.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250108T193000
DTEND;TZID=America/New_York:20250108T203000
DTSTAMP:20260617T113414
CREATED:20240605T173900Z
LAST-MODIFIED:20240605T173900Z
UID:10000091-1736364600-1736368200@vhl.org
SUMMARY:January Low/No Vision Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/jan-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Jan-8-How-do-we-stand-up-for-ourselves-and-each-other.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250106T200000
DTEND;TZID=America/New_York:20250106T210000
DTSTAMP:20260617T113414
CREATED:20240605T171041Z
LAST-MODIFIED:20240605T171200Z
UID:10000079-1736193600-1736197200@vhl.org
SUMMARY:January Patient/Caregiver Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/jan-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Jan-6-How-to-navigate-the-incessant-thoughts-that-weigh-us-down.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241211T193000
DTEND;TZID=America/New_York:20241211T203000
DTSTAMP:20260617T113414
CREATED:20240605T173747Z
LAST-MODIFIED:20240605T173747Z
UID:10000090-1733945400-1733949000@vhl.org
SUMMARY:December Low/No Vision Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/dec-low-no-vision-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Dec-11-Holidays-and-all-that-comes-with-them-chores-family-etc.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241209T200000
DTEND;TZID=America/New_York:20241209T210000
DTSTAMP:20260617T113414
CREATED:20240605T170950Z
LAST-MODIFIED:20241104T155405Z
UID:10000078-1733774400-1733778000@vhl.org
SUMMARY:December Patient/Caregiver Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/dec-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Dec-2-Creating-healthy-relationships-with-good-communication-skills.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241118T200000
DTEND;TZID=America/New_York:20241118T210000
DTSTAMP:20260617T113414
CREATED:20240605T193817Z
LAST-MODIFIED:20240605T193817Z
UID:10000099-1731960000-1731963600@vhl.org
SUMMARY:November Parents of VHL Patients Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/november-parents-of-vhl-patients-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Nov-17-Increase-your-wellbeing-by-increasing-your-sense-of-happiness-in-stressful-circumstances.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241114T183000
DTEND;TZID=America/New_York:20241114T193000
DTSTAMP:20260617T113414
CREATED:20241008T141354Z
LAST-MODIFIED:20241008T150006Z
UID:10000103-1731609000-1731612600@vhl.org
SUMMARY:Advances in VHL Disease and HIF2a Inhibitors: Insights from Recent Research with Othon Iliopoulos\, MD\, PhD
DESCRIPTION:
URL:https://vhl.org/vhla-event/advances-in-vhl-disease-and-hif2a-inhibitors-insights-from-recent-research-with-othon-iliopoulos-md-phd/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/10/VHL-101-Research-Update-with-Othon-Iliopoulos-MD.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241113T193000
DTEND;TZID=America/New_York:20241113T203000
DTSTAMP:20260617T113414
CREATED:20240605T173649Z
LAST-MODIFIED:20241024T134217Z
UID:10000089-1731526200-1731529800@vhl.org
SUMMARY:November Low/No Vision Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/nov-low-no-vision-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/prepping-for-disaster-with-blindness.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241104T200000
DTEND;TZID=America/New_York:20241104T210000
DTSTAMP:20260617T113414
CREATED:20240605T170843Z
LAST-MODIFIED:20240605T170843Z
UID:10000077-1730750400-1730754000@vhl.org
SUMMARY:November Patient/Caregiver Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/nov-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Nov-4th-Learn-to-understand-what-truly-matters-to-you-to-create-a-rich-life.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241019
DTEND;VALUE=DATE:20241021
DTSTAMP:20260617T113414
CREATED:20240330T131942Z
LAST-MODIFIED:20241017T174243Z
UID:10000070-1729296000-1729468799@vhl.org
SUMMARY:16th International VHL Medical Symposium | Milan\, Italy
DESCRIPTION:
URL:https://vhl.org/vhla-event/16th-international-vhl-medical-symposium-milan-italy/
LOCATION:MA
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/03/may-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241009T193000
DTEND;TZID=America/New_York:20241009T203000
DTSTAMP:20260617T113414
CREATED:20240605T173547Z
LAST-MODIFIED:20240605T173547Z
UID:10000088-1728502200-1728505800@vhl.org
SUMMARY:October Low/No Vision Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/oct-low-no-vision-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Oct-9-How-does-blindness-add-to-mental-health-challenges-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241007T200000
DTEND;TZID=America/New_York:20241007T210000
DTSTAMP:20260617T113414
CREATED:20240605T170735Z
LAST-MODIFIED:20240605T170735Z
UID:10000076-1728331200-1728334800@vhl.org
SUMMARY:October Patient/Caregiver Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/oct-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Oct-7th-How-to-increase-positive-emotions.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240916T200000
DTEND;TZID=America/New_York:20240916T210000
DTSTAMP:20260617T113414
CREATED:20240605T193648Z
LAST-MODIFIED:20240606T172411Z
UID:10000098-1726516800-1726520400@vhl.org
SUMMARY:September Parents of VHL Patients Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/sept-parents-of-vhl-patients-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Sept-15-how-your-beliefs-can-impact-your-childs-health-outcomes.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240911T193000
DTEND;TZID=America/New_York:20240911T203000
DTSTAMP:20260617T113414
CREATED:20240605T173304Z
LAST-MODIFIED:20240605T173304Z
UID:10000087-1726083000-1726086600@vhl.org
SUMMARY:September Low/No Vision Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/sept-low-no-vision-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Sept-11-How-do-we-maintain-our-physical-health-despite-vhl-and-vision-loss.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240909T200000
DTEND;TZID=America/New_York:20240909T210000
DTSTAMP:20260617T113414
CREATED:20240605T170630Z
LAST-MODIFIED:20240605T170630Z
UID:10000075-1725912000-1725915600@vhl.org
SUMMARY:September Patient/Caregiver Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/sept-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Sept-9th-Increase-your-sense-of-happiness.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240906T170000
DTEND;TZID=America/Chicago:20240908T140000
DTSTAMP:20260617T113414
CREATED:20240201T160650Z
LAST-MODIFIED:20240829T211256Z
UID:10000067-1725642000-1725804000@vhl.org
SUMMARY:Family Weekend 2024 | Dallas\, TX
DESCRIPTION:
URL:https://vhl.org/vhla-event/family-weekend-2024/
LOCATION:UT Southwestern\, 5201 Harry Hines Blvd\, Dallas\, TX\, 75235\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/02/Family-Weekend-Promo-1-1.jpg
ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240814T193000
DTEND;TZID=America/New_York:20240814T203000
DTSTAMP:20260617T113414
CREATED:20240605T173101Z
LAST-MODIFIED:20240605T173117Z
UID:10000086-1723663800-1723667400@vhl.org
SUMMARY:August Low/No Vision Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/aug-low-no-vision-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Aug-14-What-is-the-best-advice-about-vhl-or-vision-loss-that-you-have-received.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240805T200000
DTEND;TZID=America/New_York:20240805T210000
DTSTAMP:20260617T113414
CREATED:20240605T170421Z
LAST-MODIFIED:20240605T170421Z
UID:10000074-1722888000-1722891600@vhl.org
SUMMARY:August Patient/Caregiver Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/aug-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Aug-5th-How-to-build-a-healthy-support-network.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240715T200000
DTEND;TZID=America/New_York:20240715T210000
DTSTAMP:20260617T113414
CREATED:20240605T193037Z
LAST-MODIFIED:20240605T193523Z
UID:10000097-1721073600-1721077200@vhl.org
SUMMARY:July Parents of VHL Patients Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/july-parents-of-vhl-patients-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/July-21-Dealing-with-uncertainty.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240710T193000
DTEND;TZID=America/New_York:20240710T203000
DTSTAMP:20260617T113414
CREATED:20240605T172129Z
LAST-MODIFIED:20240605T172129Z
UID:10000085-1720639800-1720643400@vhl.org
SUMMARY:July Low/No Vision Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/july-low-no-vision-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/JULY-10-How-do-you-perceive-the-world-differently-vs.-people-with-sight.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240708T200000
DTEND;TZID=America/New_York:20240708T210000
DTSTAMP:20260617T113414
CREATED:20240605T165737Z
LAST-MODIFIED:20240618T154403Z
UID:10000073-1720468800-1720472400@vhl.org
SUMMARY:July Patient/Caregiver Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/july-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/July-1st-Navigating-Grief-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240612T193000
DTEND;TZID=America/New_York:20240612T203000
DTSTAMP:20260617T113414
CREATED:20240524T173514Z
LAST-MODIFIED:20240603T153412Z
UID:10000071-1718220600-1718224200@vhl.org
SUMMARY:June Low/No Vision Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/june-low-no-vision-call-24/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2024/05/What-do-I-wish-my-family-and-friends-would-understand-about-my-need-for-independence.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240603T200000
DTEND;TZID=America/New_York:20240603T210000
DTSTAMP:20260617T113414
CREATED:20240524T173909Z
LAST-MODIFIED:20240524T173909Z
UID:10000072-1717444800-1717448400@vhl.org
SUMMARY:June Patient/Caregiver Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/june-patient-caregiver-call-24/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2024/05/guilt-and-other-tough-emotions-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240520T200000
DTEND;TZID=America/New_York:20240520T210000
DTSTAMP:20260617T113414
CREATED:20230320T184559Z
LAST-MODIFIED:20230329T171727Z
UID:10000026-1716235200-1716238800@vhl.org
SUMMARY:May Parents of VHL Patients Call
DESCRIPTION:
URL:https://vhl.org/vhla-event/may-parents-of-vhlers-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/child-w_-chronic-illness-the-thoughts-that-come-with-that-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240518T130000
DTEND;TZID=America/New_York:20240518T150000
DTSTAMP:20260617T113414
CREATED:20240221T171326Z
LAST-MODIFIED:20240507T182330Z
UID:10000068-1716037200-1716044400@vhl.org
SUMMARY:VHL Awareness Month Walk
DESCRIPTION:
URL:https://vhl.org/vhla-event/vhl-awareness-month-walk/
LOCATION:MA
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/02/VHL-Alliance-Walk-Image-1.jpg
END:VEVENT
END:VCALENDAR