BEGIN:VCALENDAR VERSION:2.0 PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:VHL Alliance X-ORIGINAL-URL:https://vhl.org X-WR-CALDESC:Events for VHL Alliance REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20270314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20271107T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20260513T193000 DTEND;TZID=America/New_York:20260513T203000 DTSTAMP:20260618T161927 CREATED:20260113T152051Z LAST-MODIFIED:20260113T152051Z UID:10000137-1778700600-1778704200@vhl.org SUMMARY:May 13th Low/No Vision Call DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nWho were the most supportive people when you were losing your sight or going through other traumatic things with VHL? What did they do or not do that gave you strength\, confidence\, self worth\, etc? \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/may-13-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/may-13th-who-were-the-most-supportive-people-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260601T200000 DTEND;TZID=America/New_York:20260601T210000 DTSTAMP:20260618T161927 CREATED:20260108T163035Z LAST-MODIFIED:20260108T163035Z UID:10000132-1780344000-1780347600@vhl.org SUMMARY:June 1st Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nCommunication and Advocacy in Healthcare Settings\nDeepening skills in communicating effectively with doctors\, navigating appointments\, and making shared decisions\, especially for patients and caregivers working as a team. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/june-1-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/June-1-2026-Communication-Advocacy-in-Healthcare-Settings.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260610T193000 DTEND;TZID=America/New_York:20260610T203000 DTSTAMP:20260618T161927 CREATED:20260113T152145Z LAST-MODIFIED:20260113T152426Z UID:10000138-1781119800-1781123400@vhl.org SUMMARY:June 10th Low/No Vision Call DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nIs it important for the broader VHL community to understand the needs\, differences\, and similarities of low and no vision VHL patience? If so\, how might we go about sharing our own stories and struggles with them? \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/june-10-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/june-10th-needs-of-low-vis-community-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260706T200000 DTEND;TZID=America/New_York:20260706T210000 DTSTAMP:20260618T161927 CREATED:20260108T163201Z LAST-MODIFIED:20260108T163201Z UID:10000133-1783368000-1783371600@vhl.org SUMMARY:July 6th Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nFinancial and Practical Planning\nAddressing work\, insurance\, medical bills\, disability resources\, and other practical challenges. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/july-6-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/July-6-2026-Financial-Practical-Planning.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260708T193000 DTEND;TZID=America/New_York:20260708T203000 DTSTAMP:20260618T161927 CREATED:20260113T152523Z LAST-MODIFIED:20260113T152523Z UID:10000139-1783539000-1783542600@vhl.org SUMMARY:July 8th Low/No Vision Call DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nWhat mental health practices have you found both successful and accessible? What practices do you wish were accessible but aren’t? \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/july-8th-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/july-8th-mental-health-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260803T200000 DTEND;TZID=America/New_York:20260803T210000 DTSTAMP:20260618T161927 CREATED:20260617T152305Z LAST-MODIFIED:20260617T152305Z UID:10000145-1785787200-1785790800@vhl.org SUMMARY:August 3rd Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nTraveling and Exploring with Confidence\nSharing strategies for planning trips\, managing medical needs on the go\, and adapting to unexpected challenges while continuing to explore and enjoy life. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/aug-3-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/August-3-2026-Traveling-and-Exploring-with-Confidence.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260807T170000 DTEND;TZID=America/New_York:20260809T143000 DTSTAMP:20260618T161927 CREATED:20260428T145054Z LAST-MODIFIED:20260615T171735Z UID:10000144-1786122000-1786285800@vhl.org SUMMARY:Family Weekend 2026 DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n  \nWhen: August 7-9\, 2026 \nWhere: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \nRegistration Link: Click here to secure your spot today! \n  \nWhat to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n  \nWho Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n  \nWhether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL. \n  \nWant to attend but worried about the cost? Travel scholarships are available! We are pleased to offer travel reimbursement scholarships of *up to $500.00\, to be reimbursed on the final day of the event. Click here to apply before June 25th\, 2026. \n  \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! [EARLY BIRD PRICING EXTENDED TO JULY 1ST!] \n*Please note that every attendee must register for a ticket to secure their spot* \n \n Register Now!\n \n \n \n \nFamily Weekend is brought to you with support from:  URL:https://vhl.org/vhla-event/family-weekend-2026/ LOCATION:Kimpton Everly Hotel\, 1800 Argyle Ave\, Los Angeles\, 90028\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/fam-weekend-promo.png ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260812T193000 DTEND;TZID=America/New_York:20260812T203000 DTSTAMP:20260618T161927 CREATED:20260617T153816Z LAST-MODIFIED:20260617T153816Z UID:10000151-1786563000-1786566600@vhl.org SUMMARY:August 12th Low/No Vision Call DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nStyle — fashion\, cars\, architecture\, and more. We’ll talk about how the world around us has changed since we lost our sight and how we learn about those changes. Is it even important for us to know? \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/aug-12-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/August-12-2026-Style.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260909T193000 DTEND;TZID=America/New_York:20260909T203000 DTSTAMP:20260618T161927 CREATED:20260617T153859Z LAST-MODIFIED:20260617T153859Z UID:10000152-1788982200-1788985800@vhl.org SUMMARY:September 9th Low/No Vision Call DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nAnnie Lapidus\, a blind yoga instructor with VHL\, will join us to talk about meditation and movement. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/sept-9-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/September-9-2026-yoga.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260914T200000 DTEND;TZID=America/New_York:20260914T210000 DTSTAMP:20260618T161927 CREATED:20260617T152435Z LAST-MODIFIED:20260617T152435Z UID:10000146-1789416000-1789419600@vhl.org SUMMARY:September 14th Patient/Caregiver Call DESCRIPTION:First Monday of every month. *Please note that this call has been pushed back one week due to the holiday! \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nFinding Meaning and Purpose Through Change\nExploring how goals\, priorities\, and personal identity evolve over time\, and how we can continue pursuing a full life when life doesn’t go according to plan. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/sept-14-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/September-14-2026-moved-from-Sept-7-—-Labor-Day-Finding-Meaning-and-Purpose-Through-Change.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261005T200000 DTEND;TZID=America/New_York:20261005T210000 DTSTAMP:20260618T161927 CREATED:20260617T152529Z LAST-MODIFIED:20260617T152529Z UID:10000147-1791230400-1791234000@vhl.org SUMMARY:October 5th Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nWhat I Wish Others Understood About VHL\nDiscussing common misconceptions about VHL and sharing ways to help friends\, family\, healthcare providers\, and others better understand the realities of living with the condition. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/october-5th-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/October-5-2026-What-I-Wish-Others-Understood-About-VHL.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261014T193000 DTEND;TZID=America/New_York:20261014T203000 DTSTAMP:20260618T161927 CREATED:20260617T153956Z LAST-MODIFIED:20260617T153956Z UID:10000153-1792006200-1792009800@vhl.org SUMMARY:October 14h Low/No Vision Call DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nHow life as a blind person is different based on the age at which we lost our sight. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/oct-14-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/October-14-2026-age-of-blindness.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261102T200000 DTEND;TZID=America/New_York:20261102T210000 DTSTAMP:20260618T161927 CREATED:20260617T152626Z LAST-MODIFIED:20260617T152638Z UID:10000148-1793649600-1793653200@vhl.org SUMMARY:November 2nd Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nNavigating Independence and Asking for Help\nDiscussing the balance between self-sufficiency and accepting support\, including how patients and caregivers can communicate needs effectively. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/nov-2-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/November-2-2026-Navigating-Independence-and-Asking-for-Help.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20261106 DTEND;VALUE=DATE:20261109 DTSTAMP:20260618T161927 CREATED:20260423T125305Z LAST-MODIFIED:20260423T130204Z UID:10000142-1793923200-1794182399@vhl.org SUMMARY:VHL Alliance Medical Symposium DESCRIPTION:Advancing Research\, Treatment\, and Care for Von Hippel-Lindau Disease\nJoin leading researchers\, clinicians\, and advocates for groundbreaking discussions on VHL disease management and innovation. \n  \nThe 17th International VHL Medical Symposium\, hosted by the VHL Alliance and Mass General Brigham\, will bring scientists\, clinicians\, and advocates together for two days of collaboration\, idea exchange\, and thought leadership. \n  \nThis premier event features cutting-edge presentations\, collaborative workshops\, and networking opportunities designed to accelerate progress in understanding and treating VHL disease. \n  \nWhere: Boston\, MA \nWhen: Nov 6-8\, 2026 \n  \nThis biennial event\, hosted by the VHL Alliance\, is one of the most important gatherings in our field. It’s where researchers\, clinicians\, and advocates come together to share the latest discoveries\, explore emerging treatments\, and collaborate on what’s next for VHL care. \nWhether you’re a healthcare professional\, researcher\, or advocate\, this is your opportunity to be part of the conversations shaping the future of VHL. \n  \nWhat to expect: \n\nThe latest breakthroughs in VHL research and treatment\nInsights from leading global experts\nCollaborative discussions across disciplines\nOpportunities to connect with peers advancing VHL care\n\n\nAt the most recent symposium\, more than 200 experts gathered to exchange ideas and advance progress toward better outcomes for people living with VHL. \nThis year’s event builds on that momentum\, creating space for innovation\, collaboration\, and meaningful progress. Secure your spot today by clicking the button below! \n \n Register Now\n \n \n Submit An Abstract\n \n \n Visit the Symposium Website\n \n \n  \nExperience three days of comprehensive programming designed to advance VHL research\, improve patient outcomes\, and strengthen our global community. \n  \nVisit the Symposium Website by clicking here to learn more about the host committee\, hotel details for the event\, keynote speakers\, and more.  \n  \nRegistration is open now! \n  \nPatient Advocates & Students: $25 \nPostdocs & Residents: $50 \nScientists & Clinicians: $100 \nCorporate & Industry Rate: $1\,000 URL:https://vhl.org/vhla-event/vhl-alliance-medical-symposium/ LOCATION:Hyatt Regency Boston/Cambridge\, 575 Memorial Drive\, Cambridge\, MA\, 02139\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/04/iStock-801296936-copy.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261118T193000 DTEND;TZID=America/New_York:20261118T203000 DTSTAMP:20260618T161927 CREATED:20260617T154125Z LAST-MODIFIED:20260617T154125Z UID:10000154-1795030200-1795033800@vhl.org SUMMARY:November 18th Low/No Vision Call DESCRIPTION:Second Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day! \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nWe will be discussing basic blindness skills. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/nov-18-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/November-18-2026-moved-from-Nov-11-—-Veterans-Day-blindness-skills.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261207T200000 DTEND;TZID=America/New_York:20261207T210000 DTSTAMP:20260618T161927 CREATED:20260617T152732Z LAST-MODIFIED:20260617T152732Z UID:10000149-1796673600-1796677200@vhl.org SUMMARY:December 7th Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nTraditions\, Holidays\, and Special Occasions with VHL\nSharing experiences and strategies for navigating family gatherings\, travel\, celebrations\, and expectations during special times of the year. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/dec-7-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/December-7-2026-Traditions-Holidays-and-Special-Occasions-with-VHL.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261209T193000 DTEND;TZID=America/New_York:20261209T203000 DTSTAMP:20260618T161927 CREATED:20260617T154231Z LAST-MODIFIED:20260617T154240Z UID:10000155-1796844600-1796848200@vhl.org SUMMARY:December 9th Low/No Vision Call DESCRIPTION:Second Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day! \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nWhat questions do you get asked most about blindness\, and what are your answers? \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/dec-9-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/December-9-2026-questions.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20270104T200000 DTEND;TZID=America/New_York:20270104T210000 DTSTAMP:20260618T161927 CREATED:20260617T152827Z LAST-MODIFIED:20260617T152827Z UID:10000150-1799092800-1799096400@vhl.org SUMMARY:January 4th Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLessons Learned: Wisdom from the VHL Journey\nA reflective discussion on personal growth\, unexpected strengths\, helpful perspectives\, and advice participants would share with someone newly diagnosed or new to caregiving. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/jan-4-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/January-4-2027-Lessons-Learned_-Wisdom-from-the-VHL-Journey.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20270113T193000 DTEND;TZID=America/New_York:20270113T203000 DTSTAMP:20260618T161927 CREATED:20260617T154323Z LAST-MODIFIED:20260617T154323Z UID:10000156-1799868600-1799872200@vhl.org SUMMARY:January 13th Low/No Vision Call DESCRIPTION:Second Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day! \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nShopping as a blind person. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/jan-13-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/jan-13th-shopping.png END:VEVENT END:VCALENDAR