BEGIN:VCALENDAR VERSION:2.0 PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:VHL Alliance X-ORIGINAL-URL:https://vhl.org X-WR-CALDESC:Events for VHL Alliance REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20270314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20271107T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20261014T193000 DTEND;TZID=America/New_York:20261014T203000 DTSTAMP:20260618T124910 CREATED:20260617T153956Z LAST-MODIFIED:20260617T153956Z UID:10000153-1792006200-1792009800@vhl.org SUMMARY:October 14h Low/No Vision Call DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nHow life as a blind person is different based on the age at which we lost our sight. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/oct-14-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/October-14-2026-age-of-blindness.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261102T200000 DTEND;TZID=America/New_York:20261102T210000 DTSTAMP:20260618T124910 CREATED:20260617T152626Z LAST-MODIFIED:20260617T152638Z UID:10000148-1793649600-1793653200@vhl.org SUMMARY:November 2nd Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nNavigating Independence and Asking for Help\nDiscussing the balance between self-sufficiency and accepting support\, including how patients and caregivers can communicate needs effectively. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/nov-2-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/November-2-2026-Navigating-Independence-and-Asking-for-Help.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20261106 DTEND;VALUE=DATE:20261109 DTSTAMP:20260618T124910 CREATED:20260423T125305Z LAST-MODIFIED:20260423T130204Z UID:10000142-1793923200-1794182399@vhl.org SUMMARY:VHL Alliance Medical Symposium DESCRIPTION:Advancing Research\, Treatment\, and Care for Von Hippel-Lindau Disease\nJoin leading researchers\, clinicians\, and advocates for groundbreaking discussions on VHL disease management and innovation. \n  \nThe 17th International VHL Medical Symposium\, hosted by the VHL Alliance and Mass General Brigham\, will bring scientists\, clinicians\, and advocates together for two days of collaboration\, idea exchange\, and thought leadership. \n  \nThis premier event features cutting-edge presentations\, collaborative workshops\, and networking opportunities designed to accelerate progress in understanding and treating VHL disease. \n  \nWhere: Boston\, MA \nWhen: Nov 6-8\, 2026 \n  \nThis biennial event\, hosted by the VHL Alliance\, is one of the most important gatherings in our field. It’s where researchers\, clinicians\, and advocates come together to share the latest discoveries\, explore emerging treatments\, and collaborate on what’s next for VHL care. \nWhether you’re a healthcare professional\, researcher\, or advocate\, this is your opportunity to be part of the conversations shaping the future of VHL. \n  \nWhat to expect: \n\nThe latest breakthroughs in VHL research and treatment\nInsights from leading global experts\nCollaborative discussions across disciplines\nOpportunities to connect with peers advancing VHL care\n\n\nAt the most recent symposium\, more than 200 experts gathered to exchange ideas and advance progress toward better outcomes for people living with VHL. \nThis year’s event builds on that momentum\, creating space for innovation\, collaboration\, and meaningful progress. Secure your spot today by clicking the button below! \n \n Register Now\n \n \n Submit An Abstract\n \n \n Visit the Symposium Website\n \n \n  \nExperience three days of comprehensive programming designed to advance VHL research\, improve patient outcomes\, and strengthen our global community. \n  \nVisit the Symposium Website by clicking here to learn more about the host committee\, hotel details for the event\, keynote speakers\, and more.  \n  \nRegistration is open now! \n  \nPatient Advocates & Students: $25 \nPostdocs & Residents: $50 \nScientists & Clinicians: $100 \nCorporate & Industry Rate: $1\,000 URL:https://vhl.org/vhla-event/vhl-alliance-medical-symposium/ LOCATION:Hyatt Regency Boston/Cambridge\, 575 Memorial Drive\, Cambridge\, MA\, 02139\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/04/iStock-801296936-copy.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261118T193000 DTEND;TZID=America/New_York:20261118T203000 DTSTAMP:20260618T124910 CREATED:20260617T154125Z LAST-MODIFIED:20260617T154125Z UID:10000154-1795030200-1795033800@vhl.org SUMMARY:November 18th Low/No Vision Call DESCRIPTION:Second Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day! \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nWe will be discussing basic blindness skills. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/nov-18-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/November-18-2026-moved-from-Nov-11-—-Veterans-Day-blindness-skills.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261207T200000 DTEND;TZID=America/New_York:20261207T210000 DTSTAMP:20260618T124910 CREATED:20260617T152732Z LAST-MODIFIED:20260617T152732Z UID:10000149-1796673600-1796677200@vhl.org SUMMARY:December 7th Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nTraditions\, Holidays\, and Special Occasions with VHL\nSharing experiences and strategies for navigating family gatherings\, travel\, celebrations\, and expectations during special times of the year. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/dec-7-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/December-7-2026-Traditions-Holidays-and-Special-Occasions-with-VHL.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20261209T193000 DTEND;TZID=America/New_York:20261209T203000 DTSTAMP:20260618T124910 CREATED:20260617T154231Z LAST-MODIFIED:20260617T154240Z UID:10000155-1796844600-1796848200@vhl.org SUMMARY:December 9th Low/No Vision Call DESCRIPTION:Second Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day! \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nWhat questions do you get asked most about blindness\, and what are your answers? \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/dec-9-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/December-9-2026-questions.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20270104T200000 DTEND;TZID=America/New_York:20270104T210000 DTSTAMP:20260618T124910 CREATED:20260617T152827Z LAST-MODIFIED:20260617T152827Z UID:10000150-1799092800-1799096400@vhl.org SUMMARY:January 4th Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLessons Learned: Wisdom from the VHL Journey\nA reflective discussion on personal growth\, unexpected strengths\, helpful perspectives\, and advice participants would share with someone newly diagnosed or new to caregiving. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/jan-4-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/January-4-2027-Lessons-Learned_-Wisdom-from-the-VHL-Journey.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20270113T193000 DTEND;TZID=America/New_York:20270113T203000 DTSTAMP:20260618T124910 CREATED:20260617T154323Z LAST-MODIFIED:20260617T154323Z UID:10000156-1799868600-1799872200@vhl.org SUMMARY:January 13th Low/No Vision Call DESCRIPTION:Second Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day! \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nShopping as a blind person. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/jan-13-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/jan-13th-shopping.png END:VEVENT END:VCALENDAR