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PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
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TZID:America/New_York
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TZNAME:EDT
DTSTART:20260308T070000
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TZNAME:EST
DTSTART:20261101T060000
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DTSTART:20270314T070000
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DTSTART;TZID=America/New_York:20261209T193000
DTEND;TZID=America/New_York:20261209T203000
DTSTAMP:20260618T161340
CREATED:20260617T154231Z
LAST-MODIFIED:20260617T154240Z
UID:10000155-1796844600-1796848200@vhl.org
SUMMARY:December 9th Low/No Vision Call
DESCRIPTION:Second Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day! \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nWhat questions do you get asked most about blindness\, and what are your answers? \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register.
URL:https://vhl.org/vhla-event/dec-9-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/December-9-2026-questions.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270104T200000
DTEND;TZID=America/New_York:20270104T210000
DTSTAMP:20260618T161340
CREATED:20260617T152827Z
LAST-MODIFIED:20260617T152827Z
UID:10000150-1799092800-1799096400@vhl.org
SUMMARY:January 4th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLessons Learned: Wisdom from the VHL Journey\nA reflective discussion on personal growth\, unexpected strengths\, helpful perspectives\, and advice participants would share with someone newly diagnosed or new to caregiving. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/jan-4-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/January-4-2027-Lessons-Learned_-Wisdom-from-the-VHL-Journey.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270113T193000
DTEND;TZID=America/New_York:20270113T203000
DTSTAMP:20260618T161340
CREATED:20260617T154323Z
LAST-MODIFIED:20260617T154323Z
UID:10000156-1799868600-1799872200@vhl.org
SUMMARY:January 13th Low/No Vision Call
DESCRIPTION:Second Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day! \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nShopping as a blind person. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register.
URL:https://vhl.org/vhla-event/jan-13-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/06/jan-13th-shopping.png
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