BEGIN:VCALENDAR VERSION:2.0 PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:VHL Alliance X-ORIGINAL-URL:https://vhl.org X-WR-CALDESC:Events for VHL Alliance REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20230510T193000 DTEND;TZID=America/New_York:20230510T203000 DTSTAMP:20260406T003905 CREATED:20230328T165448Z LAST-MODIFIED:20230328T165448Z UID:10000041-1683747000-1683750600@vhl.org SUMMARY:May Low/No Vision Call DESCRIPTION:Second Wednesday of every month \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic\n“What do I wish my family and friends would understand about my need for independence?”\n \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. If you would like to join the call\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join? \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n  URL:https://vhl.org/vhla-event/may-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/need-for-independence.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230501T200000 DTEND;TZID=America/New_York:20230501T210000 DTSTAMP:20260406T003905 CREATED:20230320T185859Z LAST-MODIFIED:20230320T185917Z UID:10000027-1682971200-1682974800@vhl.org SUMMARY:May Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nHow to build a healthy support network so you don’t have to carry this all on your own. \n  \nIf you would like to join the call list\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join? \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n  URL:https://vhl.org/vhla-event/may-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/build-a-support-network.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230419T200000 DTEND;TZID=America/New_York:20230419T203000 DTSTAMP:20260406T003905 CREATED:20230330T230408Z LAST-MODIFIED:20230330T230450Z UID:10000053-1681934400-1681936200@vhl.org SUMMARY:Adrenal Awareness Month Webinar DESCRIPTION:  \nJoin the American Association of Endocrine Surgeons (AAES) Adrenal Awareness Month webinar on April 19th! \n  \nThis Question & Answer panel will feature subject matter experts and is open to the public. No registration required – Just visit the AAES facebook page at 8 pm EST on April 19th! URL:https://vhl.org/vhla-event/adrenal-awareness-month-webinar/ CATEGORIES:Non VHLA Event ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2023/03/April-Awareness-Month-20231.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230417T200000 DTEND;TZID=America/New_York:20230417T210000 DTSTAMP:20260406T003905 CREATED:20230310T194703Z LAST-MODIFIED:20230403T145602Z UID:10000019-1681761600-1681765200@vhl.org SUMMARY:April VHL Patient/Caregiver Call DESCRIPTION:This call is normally the first Monday of every month – It has been delayed in April due to a scheduling conflict with our facilitator! See you on April 17th. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call normally takes place on the first Monday of every month at 8 PM ET – Please note the updated timing for April! \n  \nCall topic:\nContinuing the discussion: Navigating the grief that can come with having a chronic illness \n  \nIf you would like to join the call list\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join? \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n  URL:https://vhl.org/vhla-event/april-vhl-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230412T193000 DTEND;TZID=America/New_York:20230412T203000 DTSTAMP:20260406T003905 CREATED:20230323T180837Z LAST-MODIFIED:20230324T153927Z UID:10000040-1681327800-1681331400@vhl.org SUMMARY:April Low/No Vision Call DESCRIPTION:Second Wednesday of every month \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic\n“How do you get outside and take in the warmer days and warm weather activities?”\n \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. If you would like to join the call\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join? \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n  URL:https://vhl.org/vhla-event/april-low-no-vision-monthly-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230320T200000 DTEND;TZID=America/New_York:20230320T210000 DTSTAMP:20260406T003905 CREATED:20230123T193222Z LAST-MODIFIED:20230324T153910Z UID:10000010-1679342400-1679346000@vhl.org SUMMARY:March Parents of VHL Patients Call DESCRIPTION:Third Monday of every other month. \nPlease join us on the third Monday every other month to discuss how we can help our children thrive with VHL. \nAll parents of VHLers are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \nThis facilitated call takes place on the third Monday of every other month at 8 PM ET. If you would like to join the call\, please fill out the form below. \n  \n\n\n\n\n\n\n* indicates required\n\n Email Address *\n\n \n \n\n\n First Name *\n\n \n \n\n\n Last Name *\n\n \n \n\n\n\n Address \n \n \n\n Address Line 2\n \n \n\n\n City\n \n \n\n State/Province/Region\n \n \n\n Postal / Zip Code\n \n \n \n\n Country\n USAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n \n\n\n Phone Number \n \n \n\n\n What call would you like to join? \n\n\n \n Patient / Caregiver Call\n\n\n \n Parents of VHLers Call\n\n\n \n Low / No Vision Call URL:https://vhl.org/vhla-event/parents-of-vhlers-call-march/ LOCATION:Zoom / Online CATEGORIES:Parents of VHL Patients Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/parents-of-vhlers-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230316T190000 DTEND;TZID=America/New_York:20230316T200000 DTSTAMP:20260406T003905 CREATED:20230123T203835Z LAST-MODIFIED:20230124T180317Z UID:10000015-1678993200-1678996800@vhl.org SUMMARY:New Patient / Caregiver Cohort Program DESCRIPTION:  \nRecently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to… \n  \n\nMeet other VHL patients and caregivers and developed a personal support network\nLearn more about VHL disease from VHL experts\nLearn about the VHL Surveillance Guidelines and why they are important\nLearn about the importance of VHL-experienced clinical care and the CCC program\nLearn about resilience\, how to practice self-care and where to find support\nLearn how to be a better self-advocate and share your story\nLearn where to find available VHLA and external resources\nLearn how to get involved with VHLA and contribute to the VHL community\n\n  \nWeek 1 (February 23rd) – Welcome and What is VHL? \n\nWelcome and introductions\nVHL 101 and Research Discussion\n\n  \nWeek 2 (March 2nd) – Self-Care\, Self-Advocacy\, and Support \n\nWhat is self-care and why is it important?\nDealing with Stress and Anxiety\nFacing adversity and fostering resilience\nBeing a self-advocate\n“Elevator Pitch” – Communicating with those around you\n\n  \nWeek 3 (March 9th) – VHL Veterans Panel \n\nPanel discussion with VHL patients – “Ask the VHL Veterans”\n\n  \nWeek 4 (March 16th) – Available Resources and Getting Involved \n\nHow to find available resources\nVHLA resources\nExternal resources\nVolunteer opportunities\nUpcoming Events\nFeedback\n\n  \n  \nRegister Here URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-16/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230309T190000 DTEND;TZID=America/New_York:20230309T200000 DTSTAMP:20260406T003905 CREATED:20230123T203835Z LAST-MODIFIED:20230124T180317Z UID:10000014-1678388400-1678392000@vhl.org SUMMARY:New Patient / Caregiver Cohort Program DESCRIPTION:  \nRecently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to… \n  \n\nMeet other VHL patients and caregivers and developed a personal support network\nLearn more about VHL disease from VHL experts\nLearn about the VHL Surveillance Guidelines and why they are important\nLearn about the importance of VHL-experienced clinical care and the CCC program\nLearn about resilience\, how to practice self-care and where to find support\nLearn how to be a better self-advocate and share your story\nLearn where to find available VHLA and external resources\nLearn how to get involved with VHLA and contribute to the VHL community\n\n  \nWeek 1 (February 23rd) – Welcome and What is VHL? \n\nWelcome and introductions\nVHL 101 and Research Discussion\n\n  \nWeek 2 (March 2nd) – Self-Care\, Self-Advocacy\, and Support \n\nWhat is self-care and why is it important?\nDealing with Stress and Anxiety\nFacing adversity and fostering resilience\nBeing a self-advocate\n“Elevator Pitch” – Communicating with those around you\n\n  \nWeek 3 (March 9th) – VHL Veterans Panel \n\nPanel discussion with VHL patients – “Ask the VHL Veterans”\n\n  \nWeek 4 (March 16th) – Available Resources and Getting Involved \n\nHow to find available resources\nVHLA resources\nExternal resources\nVolunteer opportunities\nUpcoming Events\nFeedback\n\n  \n  \nRegister Here URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-09/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230308T193000 DTEND;TZID=America/New_York:20230308T203000 DTSTAMP:20260406T003905 CREATED:20230210T163148Z LAST-MODIFIED:20230324T153918Z UID:10000017-1678303800-1678307400@vhl.org SUMMARY:March Low/No Vision Call DESCRIPTION:Second Wednesday of every month \nLiving with low or no vision creates unique challenges for VHLers. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. If you would like to join the call\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\nWhat call would you like to join? \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n  URL:https://vhl.org/vhla-event/march-low-no-vision-monthly-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230306T200000 DTEND;TZID=America/New_York:20230306T210000 DTSTAMP:20260406T003905 CREATED:20230210T163247Z LAST-MODIFIED:20230215T194902Z UID:10000018-1678132800-1678136400@vhl.org SUMMARY:March VHL Patient/Caregiver Call DESCRIPTION:First Monday of every month. \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \nIf you would like to join the call list\, please fill out the form below. \n  \n\n\n\n\n\n\n* indicates required\n\n Email Address *\n\n \n \n\n\n First Name *\n\n \n \n\n\n Last Name *\n\n \n \n\n\n\n Address \n \n \n\n Address Line 2\n \n \n\n\n City\n \n \n\n State/Province/Region\n \n \n\n Postal / Zip Code\n \n \n \n\n Country\n USAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n \n\n\n Phone Number \n \n \n\n\n What call would you like to join? \n\n\n \n Patient / Caregiver Call\n\n\n \n Parents of VHLers Call\n\n\n \n Low / No Vision Call URL:https://vhl.org/vhla-event/march-vhl-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230302T190000 DTEND;TZID=America/New_York:20230302T200000 DTSTAMP:20260406T003905 CREATED:20230123T203835Z LAST-MODIFIED:20230124T180317Z UID:10000013-1677783600-1677787200@vhl.org SUMMARY:New Patient / Caregiver Cohort Program DESCRIPTION:  \nRecently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to… \n  \n\nMeet other VHL patients and caregivers and developed a personal support network\nLearn more about VHL disease from VHL experts\nLearn about the VHL Surveillance Guidelines and why they are important\nLearn about the importance of VHL-experienced clinical care and the CCC program\nLearn about resilience\, how to practice self-care and where to find support\nLearn how to be a better self-advocate and share your story\nLearn where to find available VHLA and external resources\nLearn how to get involved with VHLA and contribute to the VHL community\n\n  \nWeek 1 (February 23rd) – Welcome and What is VHL? \n\nWelcome and introductions\nVHL 101 and Research Discussion\n\n  \nWeek 2 (March 2nd) – Self-Care\, Self-Advocacy\, and Support \n\nWhat is self-care and why is it important?\nDealing with Stress and Anxiety\nFacing adversity and fostering resilience\nBeing a self-advocate\n“Elevator Pitch” – Communicating with those around you\n\n  \nWeek 3 (March 9th) – VHL Veterans Panel \n\nPanel discussion with VHL patients – “Ask the VHL Veterans”\n\n  \nWeek 4 (March 16th) – Available Resources and Getting Involved \n\nHow to find available resources\nVHLA resources\nExternal resources\nVolunteer opportunities\nUpcoming Events\nFeedback\n\n  \n  \nRegister Here URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-02/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20230224 DTEND;VALUE=DATE:20230227 DTSTAMP:20260406T003905 CREATED:20221230T135408Z LAST-MODIFIED:20230201T142014Z UID:10000004-1677196800-1677455999@vhl.org SUMMARY:2023 Julie Flynn HOPE Retreat for Young Adults DESCRIPTION:  \nAre you a young adult with VHL? If so\, join other young adults for a weekend of fun and information! We’re excited to get together in person after our digital event last year. \nParticipants must cover transportation costs to and from DC. VHLA will cover the cost of lodging\, meals\, and activities for the weekend. \nScholarships are available for those who need assistance covering travel costs. My info coming soon. \nDate: 2/24-2/26\nLocation: Washington\, DC\nCost: $70 on or before 1/27; $100 after \nRegister Here \n  \nThis event would not be possible without the support of our generous sponsors: \n  \n \n  URL:https://vhl.org/vhla-event/2023-julie-flynn-hope-retreat-for-young-adults/ LOCATION:Washington DC\, Washington DC\, DC\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/20190615_161938-2-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230223T190000 DTEND;TZID=America/New_York:20230223T203000 DTSTAMP:20260406T003905 CREATED:20230123T203835Z LAST-MODIFIED:20230124T180317Z UID:10000012-1677178800-1677184200@vhl.org SUMMARY:New Patient / Caregiver Cohort Program DESCRIPTION:  \nRecently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to… \n  \n\nMeet other VHL patients and caregivers and developed a personal support network\nLearn more about VHL disease from VHL experts\nLearn about the VHL Surveillance Guidelines and why they are important\nLearn about the importance of VHL-experienced clinical care and the CCC program\nLearn about resilience\, how to practice self-care and where to find support\nLearn how to be a better self-advocate and share your story\nLearn where to find available VHLA and external resources\nLearn how to get involved with VHLA and contribute to the VHL community\n\n  \nWeek 1 (February 23rd) – Welcome and What is VHL? \n\nWelcome and introductions\nVHL 101 and Research Discussion\n\n  \nWeek 2 (March 2nd) – Self-Care\, Self-Advocacy\, and Support \n\nWhat is self-care and why is it important?\nDealing with Stress and Anxiety\nFacing adversity and fostering resilience\nBeing a self-advocate\n“Elevator Pitch” – Communicating with those around you\n\n  \nWeek 3 (March 9th) – VHL Veterans Panel \n\nPanel discussion with VHL patients – “Ask the VHL Veterans”\n\n  \nWeek 4 (March 16th) – Available Resources and Getting Involved \n\nHow to find available resources\nVHLA resources\nExternal resources\nVolunteer opportunities\nUpcoming Events\nFeedback\n\n  \n  \nRegister Here URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-02-23/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230223T130000 DTEND;TZID=America/New_York:20230223T143000 DTSTAMP:20260406T003905 CREATED:20230123T194146Z LAST-MODIFIED:20230124T144043Z UID:10000011-1677157200-1677162600@vhl.org SUMMARY:Navigating Tough Conversations Workshop DESCRIPTION:  \nNo one likes conflict. Having VHL can feel very stressful and that can strain relationships\, erode healthy communication\, and increase the likelihood of conflict. \n  \nWhat if you could navigate tough conversations with greater expertise or avoid having conflict? \n  \nJoin this session to discover research-based tools that you can implement immediately to improve your communication skills and bring harmony to your relationships. \n\nClick here to register URL:https://vhl.org/vhla-event/navigating-tough-conversations-workshop/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/Leona-Workshop-Template-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230214T080000 DTEND;TZID=America/New_York:20230214T090000 DTSTAMP:20260406T003905 CREATED:20230201T143550Z LAST-MODIFIED:20230201T143550Z UID:10000016-1676361600-1676365200@vhl.org SUMMARY:VHLentine's Day DESCRIPTION: URL:https://vhl.org/vhla-event/vhlentines-day/ ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/02/vhlentines-2023.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230208T193000 DTEND;TZID=America/New_York:20230208T203000 DTSTAMP:20260406T003905 CREATED:20230123T193128Z LAST-MODIFIED:20230328T165308Z UID:10000009-1675884600-1675888200@vhl.org SUMMARY:February Low/No Vision Monthly Call DESCRIPTION:Second Wednesday of every month \nLiving with low or no vision creates unique challenges for VHLers. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. If you would like to join the call\, please email us at calls@vhl.org. URL:https://vhl.org/vhla-event/low-no-vision-monthly-call-feb/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230206T200000 DTEND;TZID=America/New_York:20230206T210000 DTSTAMP:20260406T003905 CREATED:20230123T193032Z LAST-MODIFIED:20230208T164624Z UID:10000008-1675713600-1675717200@vhl.org SUMMARY:February VHL Patient/Caregiver Call DESCRIPTION:First Monday of every month. \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \nIf you would like to join the call list\, please send us an email at calls@vhl.org URL:https://vhl.org/vhla-event/vhl-patient-caregiver-call-feb/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230123T200000 DTEND;TZID=America/New_York:20230123T210000 DTSTAMP:20260406T003905 CREATED:20221230T141306Z LAST-MODIFIED:20230324T154002Z UID:10000006-1674504000-1674507600@vhl.org SUMMARY:Parents of VHL Patients Call DESCRIPTION:Third Monday of every other month (Delayed 1 week in Jan. due to MLK Day) \nPlease join us on the third Monday every other month to discuss how we can help our children thrive with VHL. \nAll parents of VHLers are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \nThis facilitated call takes place on the third Monday of every other month at 8 PM ET. If you would like to join the call\, please email us at calls@vhl.org URL:https://vhl.org/vhla-event/parents-of-vhlers-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230111T193000 DTEND;TZID=America/New_York:20230111T203000 DTSTAMP:20260406T003905 CREATED:20221230T141228Z LAST-MODIFIED:20230328T165316Z UID:10000005-1673465400-1673469000@vhl.org SUMMARY:Low/No Vision Monthly Call DESCRIPTION:Second Wednesday of every month \nLiving with low or no vision creates unique challenges for VHLers. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. If you would like to join the call\, please email us at calls@vhl.org. URL:https://vhl.org/vhla-event/low-no-vision-monthly-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230109T200000 DTEND;TZID=America/New_York:20230109T210000 DTSTAMP:20260406T003905 CREATED:20221230T141401Z LAST-MODIFIED:20221230T141441Z UID:10000007-1673294400-1673298000@vhl.org SUMMARY:VHL Patient/Caregiver Call DESCRIPTION:First Monday of every month (Delayed 1 week in Jan. due to New Years holiday) \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \nIf you would like to join the call list\, please send us an email at calls@vhl.org URL:https://vhl.org/vhla-event/patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg END:VEVENT END:VCALENDAR