BEGIN:VCALENDAR VERSION:2.0 PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:VHL Alliance X-ORIGINAL-URL:https://vhl.org X-WR-CALDESC:Events for VHL Alliance REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20230510T193000 DTEND;TZID=America/New_York:20230510T203000 DTSTAMP:20260525T061516 CREATED:20230328T165448Z LAST-MODIFIED:20230328T165448Z UID:10000041-1683747000-1683750600@vhl.org SUMMARY:May Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/may-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/need-for-independence.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230501T200000 DTEND;TZID=America/New_York:20230501T210000 DTSTAMP:20260525T061516 CREATED:20230320T185859Z LAST-MODIFIED:20230320T185917Z UID:10000027-1682971200-1682974800@vhl.org SUMMARY:May Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/may-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/build-a-support-network.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230419T200000 DTEND;TZID=America/New_York:20230419T203000 DTSTAMP:20260525T061516 CREATED:20230330T230408Z LAST-MODIFIED:20230330T230450Z UID:10000053-1681934400-1681936200@vhl.org SUMMARY:Adrenal Awareness Month Webinar DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/adrenal-awareness-month-webinar/ LOCATION:PA CATEGORIES:Non VHLA Event ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2023/03/April-Awareness-Month-20231.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230417T200000 DTEND;TZID=America/New_York:20230417T210000 DTSTAMP:20260525T061516 CREATED:20230310T194703Z LAST-MODIFIED:20230403T145602Z UID:10000019-1681761600-1681765200@vhl.org SUMMARY:April VHL Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/april-vhl-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230412T193000 DTEND;TZID=America/New_York:20230412T203000 DTSTAMP:20260525T061516 CREATED:20230323T180837Z LAST-MODIFIED:20230324T153927Z UID:10000040-1681327800-1681331400@vhl.org SUMMARY:April Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/april-low-no-vision-monthly-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230320T200000 DTEND;TZID=America/New_York:20230320T210000 DTSTAMP:20260525T061516 CREATED:20230123T193222Z LAST-MODIFIED:20230324T153910Z UID:10000010-1679342400-1679346000@vhl.org SUMMARY:March Parents of VHL Patients Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/parents-of-vhlers-call-march/ LOCATION:Zoom / Online CATEGORIES:Parents of VHL Patients Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/parents-of-vhlers-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230316T190000 DTEND;TZID=America/New_York:20230316T200000 DTSTAMP:20260525T061516 CREATED:20230123T203835Z LAST-MODIFIED:20230124T180317Z UID:10000015-1678993200-1678996800@vhl.org SUMMARY:New Patient / Caregiver Cohort Program DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-16/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230309T190000 DTEND;TZID=America/New_York:20230309T200000 DTSTAMP:20260525T061516 CREATED:20230123T203835Z LAST-MODIFIED:20230124T180317Z UID:10000014-1678388400-1678392000@vhl.org SUMMARY:New Patient / Caregiver Cohort Program DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-09/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230308T193000 DTEND;TZID=America/New_York:20230308T203000 DTSTAMP:20260525T061516 CREATED:20230210T163148Z LAST-MODIFIED:20230324T153918Z UID:10000017-1678303800-1678307400@vhl.org SUMMARY:March Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/march-low-no-vision-monthly-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230306T200000 DTEND;TZID=America/New_York:20230306T210000 DTSTAMP:20260525T061516 CREATED:20230210T163247Z LAST-MODIFIED:20230215T194902Z UID:10000018-1678132800-1678136400@vhl.org SUMMARY:March VHL Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/march-vhl-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230302T190000 DTEND;TZID=America/New_York:20230302T200000 DTSTAMP:20260525T061516 CREATED:20230123T203835Z LAST-MODIFIED:20230124T180317Z UID:10000013-1677783600-1677787200@vhl.org SUMMARY:New Patient / Caregiver Cohort Program DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-02/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20230224 DTEND;VALUE=DATE:20230227 DTSTAMP:20260525T061516 CREATED:20221230T135408Z LAST-MODIFIED:20230201T142014Z UID:10000004-1677196800-1677455999@vhl.org SUMMARY:2023 Julie Flynn HOPE Retreat for Young Adults DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/2023-julie-flynn-hope-retreat-for-young-adults/ LOCATION:Washington DC\, Washington DC\, DC\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/20190615_161938-2-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230223T190000 DTEND;TZID=America/New_York:20230223T203000 DTSTAMP:20260525T061516 CREATED:20230123T203835Z LAST-MODIFIED:20230124T180317Z UID:10000012-1677178800-1677184200@vhl.org SUMMARY:New Patient / Caregiver Cohort Program DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-02-23/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230223T130000 DTEND;TZID=America/New_York:20230223T143000 DTSTAMP:20260525T061516 CREATED:20230123T194146Z LAST-MODIFIED:20230124T144043Z UID:10000011-1677157200-1677162600@vhl.org SUMMARY:Navigating Tough Conversations Workshop DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/navigating-tough-conversations-workshop/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/Leona-Workshop-Template-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230214T080000 DTEND;TZID=America/New_York:20230214T090000 DTSTAMP:20260525T061516 CREATED:20230201T143550Z LAST-MODIFIED:20230201T143550Z UID:10000016-1676361600-1676365200@vhl.org SUMMARY:VHLentine's Day DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/vhlentines-day/ LOCATION:PA ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/02/vhlentines-2023.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230208T193000 DTEND;TZID=America/New_York:20230208T203000 DTSTAMP:20260525T061516 CREATED:20230123T193128Z LAST-MODIFIED:20230328T165308Z UID:10000009-1675884600-1675888200@vhl.org SUMMARY:February Low/No Vision Monthly Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/low-no-vision-monthly-call-feb/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230206T200000 DTEND;TZID=America/New_York:20230206T210000 DTSTAMP:20260525T061516 CREATED:20230123T193032Z LAST-MODIFIED:20230208T164624Z UID:10000008-1675713600-1675717200@vhl.org SUMMARY:February VHL Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/vhl-patient-caregiver-call-feb/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230123T200000 DTEND;TZID=America/New_York:20230123T210000 DTSTAMP:20260525T061516 CREATED:20221230T141306Z LAST-MODIFIED:20230324T154002Z UID:10000006-1674504000-1674507600@vhl.org SUMMARY:Parents of VHL Patients Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/parents-of-vhlers-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230111T193000 DTEND;TZID=America/New_York:20230111T203000 DTSTAMP:20260525T061516 CREATED:20221230T141228Z LAST-MODIFIED:20230328T165316Z UID:10000005-1673465400-1673469000@vhl.org SUMMARY:Low/No Vision Monthly Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/low-no-vision-monthly-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230109T200000 DTEND;TZID=America/New_York:20230109T210000 DTSTAMP:20260525T061516 CREATED:20221230T141401Z LAST-MODIFIED:20221230T141441Z UID:10000007-1673294400-1673298000@vhl.org SUMMARY:VHL Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/event-placeholder.jpg END:VEVENT END:VCALENDAR