BEGIN:VCALENDAR VERSION:2.0 PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:VHL Alliance X-ORIGINAL-URL:https://vhl.org X-WR-CALDESC:Events for VHL Alliance REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20231006T190000 DTEND;TZID=America/New_York:20231006T220000 DTSTAMP:20260429T010652 CREATED:20230622T171954Z LAST-MODIFIED:20230911T145840Z UID:10000063-1696618800-1696629600@vhl.org SUMMARY:VHL Alliance 30th Anniversary Gala DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/vhl-alliance-30th-anniversary-gala/ LOCATION:Franklin Institute\, 222 North 20th Street\, Philadelphia\, PA\, 19103\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/06/VHLA-Gala-Web-Banner-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20231002T200000 DTEND;TZID=America/New_York:20231002T210000 DTSTAMP:20260429T010652 CREATED:20230320T190859Z LAST-MODIFIED:20230320T190859Z UID:10000032-1696276800-1696280400@vhl.org SUMMARY:Oct Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/oct-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/navigate-constant-thoughts.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230925T200000 DTEND;TZID=America/New_York:20230925T210000 DTSTAMP:20260429T010652 CREATED:20230320T190739Z LAST-MODIFIED:20230810T155228Z UID:10000031-1695672000-1695675600@vhl.org SUMMARY:Sept Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/sept-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/improve-communication-skills.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230918T200000 DTEND;TZID=America/New_York:20230918T210000 DTSTAMP:20260429T010652 CREATED:20230320T183956Z LAST-MODIFIED:20230329T171915Z UID:10000022-1695067200-1695070800@vhl.org SUMMARY:Sept Parents of VHL Patients Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/sept-parents-of-vhlers-call/ LOCATION:Zoom / Online CATEGORIES:Parents of VHL Patients Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/increase-positive-emotions-w_-a-child-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230913T193000 DTEND;TZID=America/New_York:20230913T203000 DTSTAMP:20260429T010652 CREATED:20230328T170035Z LAST-MODIFIED:20230328T170035Z UID:10000045-1694633400-1694637000@vhl.org SUMMARY:Sept Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/sept-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/hobbies-and-leisure-activities.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230809T193000 DTEND;TZID=America/New_York:20230809T203000 DTSTAMP:20260429T010652 CREATED:20230328T165831Z LAST-MODIFIED:20230328T165831Z UID:10000044-1691609400-1691613000@vhl.org SUMMARY:August Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/aug-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/blindness-and-mental-health.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230807T200000 DTEND;TZID=America/New_York:20230807T210000 DTSTAMP:20260429T010652 CREATED:20230320T190604Z LAST-MODIFIED:20230320T190604Z UID:10000030-1691438400-1691442000@vhl.org SUMMARY:Aug Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/aug-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/understand-what-truly-matters-to-you.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230806T090000 DTEND;TZID=America/New_York:20230806T110000 DTSTAMP:20260429T010652 CREATED:20230720T123635Z LAST-MODIFIED:20230720T123707Z UID:10000064-1691312400-1691319600@vhl.org SUMMARY:Family Weekend Fun Walk / Run DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/family-weekend-fun-walk-run/ LOCATION:PA CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/07/iStock-907273480.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20230804 DTEND;VALUE=DATE:20230807 DTSTAMP:20260429T010652 CREATED:20230418T193158Z LAST-MODIFIED:20230720T124142Z UID:10000054-1691107200-1691366399@vhl.org SUMMARY:2023 Annual VHL Family Weekend DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/2023-annual-vhl-family-weekend/ LOCATION:Vanderbilt University\, 2555 West End Avenue\, Nashville\, TN\, 37203\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/04/2023-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230720T190000 DTEND;TZID=America/New_York:20230720T203000 DTSTAMP:20260429T010652 CREATED:20230607T155758Z LAST-MODIFIED:20230714T134348Z UID:10000059-1689879600-1689885000@vhl.org SUMMARY:VHL 101 / Research Update Info Session DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/new-patient-caregiver-cohort-program/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230717T200000 DTEND;TZID=America/New_York:20230717T210000 DTSTAMP:20260429T010652 CREATED:20230320T183811Z LAST-MODIFIED:20230329T172001Z UID:10000021-1689624000-1689627600@vhl.org SUMMARY:July Parents of VHL Patients Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/july-parents-of-vhlers-call/ LOCATION:Zoom / Online CATEGORIES:Parents of VHL Patients Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/increase-your-wellbeing-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230712T193000 DTEND;TZID=America/New_York:20230712T203000 DTSTAMP:20260429T010652 CREATED:20230328T165712Z LAST-MODIFIED:20230328T165712Z UID:10000043-1689190200-1689193800@vhl.org SUMMARY:July Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/july-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/What-has-VHL-taught-you.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230710T200000 DTEND;TZID=America/New_York:20230710T210000 DTSTAMP:20260429T010652 CREATED:20230320T190456Z LAST-MODIFIED:20230320T190456Z UID:10000029-1689019200-1689022800@vhl.org SUMMARY:July Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/july-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/increase-your-happiness.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230614T193000 DTEND;TZID=America/New_York:20230614T203000 DTSTAMP:20260429T010652 CREATED:20230328T165610Z LAST-MODIFIED:20230328T165716Z UID:10000042-1686771000-1686774600@vhl.org SUMMARY:June Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/june-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/best-vhl-advice-given-or-received.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230605T200000 DTEND;TZID=America/New_York:20230605T210000 DTSTAMP:20260429T010652 CREATED:20230320T190310Z LAST-MODIFIED:20230320T190310Z UID:10000028-1685995200-1685998800@vhl.org SUMMARY:June Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/june-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/increase-positive-emotions.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230515T200000 DTEND;TZID=America/New_York:20230515T210000 DTSTAMP:20260429T010652 CREATED:20230320T183532Z LAST-MODIFIED:20230329T172019Z UID:10000020-1684180800-1684184400@vhl.org SUMMARY:May Parents of VHL Patients Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/may-parents-of-vhlers-call/ LOCATION:Zoom / Online CATEGORIES:Parents of VHL Patients Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/what-you-believe-about-vhl-3.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230510T193000 DTEND;TZID=America/New_York:20230510T203000 DTSTAMP:20260429T010652 CREATED:20230328T165448Z LAST-MODIFIED:20230328T165448Z UID:10000041-1683747000-1683750600@vhl.org SUMMARY:May Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/may-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/need-for-independence.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230501T200000 DTEND;TZID=America/New_York:20230501T210000 DTSTAMP:20260429T010652 CREATED:20230320T185859Z LAST-MODIFIED:20230320T185917Z UID:10000027-1682971200-1682974800@vhl.org SUMMARY:May Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/may-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/build-a-support-network.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230419T200000 DTEND;TZID=America/New_York:20230419T203000 DTSTAMP:20260429T010652 CREATED:20230330T230408Z LAST-MODIFIED:20230330T230450Z UID:10000053-1681934400-1681936200@vhl.org SUMMARY:Adrenal Awareness Month Webinar DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/adrenal-awareness-month-webinar/ LOCATION:PA CATEGORIES:Non VHLA Event ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2023/03/April-Awareness-Month-20231.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230417T200000 DTEND;TZID=America/New_York:20230417T210000 DTSTAMP:20260429T010652 CREATED:20230310T194703Z LAST-MODIFIED:20230403T145602Z UID:10000019-1681761600-1681765200@vhl.org SUMMARY:April VHL Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/april-vhl-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230412T193000 DTEND;TZID=America/New_York:20230412T203000 DTSTAMP:20260429T010652 CREATED:20230323T180837Z LAST-MODIFIED:20230324T153927Z UID:10000040-1681327800-1681331400@vhl.org SUMMARY:April Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/april-low-no-vision-monthly-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230320T200000 DTEND;TZID=America/New_York:20230320T210000 DTSTAMP:20260429T010652 CREATED:20230123T193222Z LAST-MODIFIED:20230324T153910Z UID:10000010-1679342400-1679346000@vhl.org SUMMARY:March Parents of VHL Patients Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/parents-of-vhlers-call-march/ LOCATION:Zoom / Online CATEGORIES:Parents of VHL Patients Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/parents-of-vhlers-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230316T190000 DTEND;TZID=America/New_York:20230316T200000 DTSTAMP:20260429T010652 CREATED:20230123T203835Z LAST-MODIFIED:20230124T180317Z UID:10000015-1678993200-1678996800@vhl.org SUMMARY:New Patient / Caregiver Cohort Program DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-16/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230309T190000 DTEND;TZID=America/New_York:20230309T200000 DTSTAMP:20260429T010652 CREATED:20230123T203835Z LAST-MODIFIED:20230124T180317Z UID:10000014-1678388400-1678392000@vhl.org SUMMARY:New Patient / Caregiver Cohort Program DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-09/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230308T193000 DTEND;TZID=America/New_York:20230308T203000 DTSTAMP:20260429T010652 CREATED:20230210T163148Z LAST-MODIFIED:20230324T153918Z UID:10000017-1678303800-1678307400@vhl.org SUMMARY:March Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/march-low-no-vision-monthly-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/low-no-vision-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230306T200000 DTEND;TZID=America/New_York:20230306T210000 DTSTAMP:20260429T010652 CREATED:20230210T163247Z LAST-MODIFIED:20230215T194902Z UID:10000018-1678132800-1678136400@vhl.org SUMMARY:March VHL Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/march-vhl-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/patient-cg-call.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230302T190000 DTEND;TZID=America/New_York:20230302T200000 DTSTAMP:20260429T010652 CREATED:20230123T203835Z LAST-MODIFIED:20230124T180317Z UID:10000013-1677783600-1677787200@vhl.org SUMMARY:New Patient / Caregiver Cohort Program DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-03-02/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20230224 DTEND;VALUE=DATE:20230227 DTSTAMP:20260429T010652 CREATED:20221230T135408Z LAST-MODIFIED:20230201T142014Z UID:10000004-1677196800-1677455999@vhl.org SUMMARY:2023 Julie Flynn HOPE Retreat for Young Adults DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/2023-julie-flynn-hope-retreat-for-young-adults/ LOCATION:Washington DC\, Washington DC\, DC\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2022/12/20190615_161938-2-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230223T190000 DTEND;TZID=America/New_York:20230223T203000 DTSTAMP:20260429T010652 CREATED:20230123T203835Z LAST-MODIFIED:20230124T180317Z UID:10000012-1677178800-1677184200@vhl.org SUMMARY:New Patient / Caregiver Cohort Program DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/new-patient-cohort-program/2023-02-23/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230223T130000 DTEND;TZID=America/New_York:20230223T143000 DTSTAMP:20260429T010652 CREATED:20230123T194146Z LAST-MODIFIED:20230124T144043Z UID:10000011-1677157200-1677162600@vhl.org SUMMARY:Navigating Tough Conversations Workshop DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/navigating-tough-conversations-workshop/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/Leona-Workshop-Template-1.jpg END:VEVENT END:VCALENDAR